Final Plan *sigh*

I can't take much more of this, I just want to crawl in a closet and cry. Fox Valley Children's Hospital isn't properly trained to take my son (but he can go home with me?) so we will be staying put in Milwaukee. For however long it may take to get him off PCA and converted over to all oral meds. Then the plan is to go home for a MUCH NEEDED BREAK and see the doctor at clinic the beginning of September to plan our next steps