Rocky Start

We've been on this new seizure med now for about a week. It has definitely shown improvement in Danny's seizure, NOW. In the beginning I wasn't too sure it was the right fix for him. Then on Tuesday morning he had a very long intense seizure and I was ready to throw in the towel, but after talking with Dr. Kasper we realized it wasn't the new med it was the titration off the old med that Danny was reacting to. His system has been on this older med FOREVER and is obviously dependent on it more then the neurologist's eagerness to get him off of it. So Danny's seizure on Tuesday was induced by withdrawal.....poor bug :( Dr Kasper set out a new titration plan and Danny has been doing well ever since. The quantity and severity of his seizures have lessened. Woohooo!! The significant side effect of Onfi is the increase of secretions. SO the suction machine is getting a work out. Then again I'm not totally sure I can blame all of the added secretions on Onfi as we've been having unseasonal like warm temps and the allergy levels are HIGH here. We all know how well Danny does with Allergies....NOT GOOD. Every year the allergies have admitted him in the hospital with some respiratory CRAP. Danny has always had heightened respiratory junk for allergies then he does during cold n flu season. With allergies knocking on our door AND Onfi.....hold on tight Danny here we go. While we were into see Dr. Kasper on Tuesday he took a look into Danny's left ear. It started bleeding last Saturday and it bleed for just about 2 days straight, pretty alarming to say the least. Well Dr K pulled out a clot that just tickled my tummy. I swear it looked like a leech......GROSS! I'm sure Danny can hear better with that thing out of there, but now the inside looks just painful and traumatized. So this afternoon we are heading down to CHOW for the ENT to take a look at it and give us some insight as to what to do to get his ear to recover. After years and years of issues with Danny's right ear now the left ear is wanting to play ~ poor bug that HAS to be very painful. It's going to take us twice a long to drive one way to get there then the time we are going to spend in the office with the ENT. At least the weather is nice out AND we enjoy talking with the ENT. Dr Martin to the rescue ~ lol.

Like I said the weather around here has been just BEAUTIFUL. It's great! The temps during the day have been in the 60's and 70's and the sun is out. Things are starting to turn green and I can see the sprouts of my flowers n plants popping out of the ground. YAY!!! The heater is off and the windows are open in the house, BREATHE!! We've decided to cancel out trip to Florida over spring break. With the weather here I see no need to drive 27 hours straight to go down south. There is more for us to do here then down there and there's not tiring drive to go along with it. We are planning on taking Avrianna (and possibly her cousin from Tomahawk might stay with us for the week) to a water park and maybe down to Chicago to the aquarium. Avrianna would be content to just stay home as we are going to be opening the pool early this year, due to the warm temps AND we put up her trampoline that she got for Christmas up in the yard. We don't see much of her at all......she LOVES that thing. It helps that for dive they also practice on the trampoline so this for her is a dream come true. I now have more leverage to get things done from her......or NO Trampoline/Dive. Avrianna just LOVES this sport~ she still talks about it alot to anyone that will listen and shows alot of enthusiasm.

I can't keep this girl on the grounded on her two feet she'd rather be flipping around

Have a safe and Happy St Patrick's Day from us to YOU! Take Care and thanks for stopping by.

How wonderful

I do have to say the new store in Oshkosh has been surprisingly booming with business. The first few days of being open (without any advertisement) and the place is just hoping with people. It's very exciting to see. Let's see how it does now that our ad is in the local paper. It looks as if we found a perfect location for our second store. How wonderful!

I went down to Milwaukee this week for my annual tune-up. My mom went with me for the day as I new it was going to be a long day and I didn't know how I was going to fair with the drive home. Other then being a LONG day and having a severe case of flatassatosis I had a good day. It was nice that my mom came with so she could see what goes on and she was able to ask questions that she had to my neurologist. I also enjoy having someone along with so I'm not talking to myself, lol. My infusion went well and then I was off to get a MRI of my head n C spine. That took alil over an hour....I actually dosed off in the tube :) Then it was off to go over the MRI result with the Doctor. I still can't believe I was able to talk about the MRI about an hour after I had it done. That's just unheard of with my older doctors.....I sat and waited FOREVER. Good news is ~ all my "Waegner's" are stable. They are not "Active" at the moment and they have NOT invited any new friends to come and join them. I have about 7 of them in my brain and the count in my C spine is up for debate, I believe there are only 3 there. So it looks as if this new med I've been on for the last year is working. I am not relapsing right now ~ How wonderful!

Danny went to see his Neurologist this week too. It's Neurologist week around here. Which I don't mind as both of our neurologist are AMAZING doctors. They both think outside the box when it's needed and they treat the person not just our diseases/disorders. They both listen and they both have a personality. We are truly blessed to be in the care of these doctors....I don't know where we'd be without them.

Danny's appt started off with getting his ITB pump refill and then we chatted with the doctor after that. Danny needs to have his pump replaced in the next year as his battery life is almost out. So I will be trying to coordinating that surgery for this year :( I am going to try to coordinate it with his rode lengthening in October, but it will all depend on if the surgeons feel it's safe to due both at the same time. Then we were off to the BIG Question as to what to do with these increasing "episodes" that have wrecked havoc once again with Danny. Fortunately Danny was having an off morning the day in the office and Dr Edgar was able to see first hand what is going on with these episodes. It's bitter sweet, as a mom you hate to watch your child go thru these but as a mom trying to figure out what's going on it was great he did them in front of the doctor. As we talked more in depth about them and what's going on, Dr Edgar now feels strongly that these are indeed Seizures, even though the EEG'S don't show them as a seizure. Danny's EEG is crazy active constantly with spikes, but they have never broke out into a seizure, on the outer surface so the EEG can pick them up . Seeing that these happen while he's sleeping and will wake him up, and now the Dr has seen how and what all goes on during these episodes....it all points to seizures. Hmmmm, I could have sworn I've been saying that for the last couple years. These seizures are coming from deep inside his brain where the EEG can't pick them up, just all the activity on the outside areas that is going on. Makes sense to where most of his brain damage is located. There is a test that can be done to verify seizure activity, that involves drilling a hold into his skull and putting probes internally on the brain so they can read whats going on throughout the whole thing, but we are NOT going to do that. They are seizures and we are going to treat them as such. Danny started a new seizure med, just last night, but it will take awhile to get up to the proper dosage while weening him off one of his other seizure med. The process should take about a month to get to where Danny needs to be and then we'll go back to see Dr Edgar again to discuss how it's working. Cross your fingers! This med Onfi, even though it brand new on the market, is the "best" option right now for Danny as the other 2 we were told about has significant side effects that are not options I need Danny to endure. How wonderful :(

Last weekend Avrianna had 4 days off due to conferences. She is doing GREAT in school! I'm so proud of her and her accomplishments. She alil chatty at school, I'm not sure where she gets that from ~ lol, but she remains all A's and 2 B+'s. Way to go Avrianna!! We went out to the ice arena with a girl friend of hers on Sunday to get out of the house and have some fun. Unfortunately about 20 minutes into the "fun" A's friend fell on the ice knocking herself out and cutting her face. I knew immediately she needed to go in for stitches so off to the ER we went. Making that phone call to another parent that they need to meet us in the ER there's been an accident really SUCKS. Once there they realized that there was more issues then just stitches as she started to get sick and she got confused. After 2 CT scans and xrays she was cleared of any brain bleed or broken bones, but she did have a bad concussion. Poor thing :( Of course this would have to happen on my watch, I felt horrible for her. She had to miss a whole week of school, no gym for her now for the rest of the week, and not to mention she now is sporting a pretty large shiner with stitches by her eye. She's been a trooper with all of this, I'm really glad to she doing better .... she had me scared the first night in the hospital. Avrianna feels awful for her friend so we went out and got her some flowers, toys, and her favorite Chocolate in hopes to cheer her up. We've visited just about everyday to bring her get well cards and to let her know we are thinking of her. This weekend we are having her over to watch some movies and play some board games. Very low key for her for awhile ~ How wonderful :(

6 days after fall

Avrianna got her braces off this week too. She was SO EXCITED to finally get them off. Phase 1 was a longer process then we had anticipated but now it's done and we await the process of Phase 2 which should start in about 2 years. UGH! She now has to wear a retainer and to hold all the correction in place. Boy did the retainers change ... she picked out the colors and it's lime green n blue that glows is in the dark and has dog paw prints all over it. Who needs a nite lite when your mouth glows, lol. How Wonderful!

Here is the mold from day one before her correction to what her teeth and bite look like now. Nice to SEE an improvement ~ WOW

Definitely Avrianna style!!
Thanks for checking up on us. Never a dull moment over here :)

Something's in the air..........

Welcome March.....we're just alil closer to spring ~ YAY! But we can complain about the weather too much around here as we've had record highs this winter and record lows of snow amount. The last big storm that was suppose to hit us was to drop about 6" of snow...well we got a thunderstorm that knocked out the power here at the house for about 2 hours. Boy am I grateful for the back up generator. Honestly we didn't even know the power had gone out till ALL of the house powered back up causing some things to make noises. None of Danny's machines skipped a beat or alarmed with the loss of power, FINALLY something worked like it was suppose too.

Danny has been off his game this last week. I started with him getting alil more junkier. The culture from his trache came back with another party of germs ~ staph, psuedomonas, and stenotrophomonas. All of which are not playing well with the same antibiotic. I believe because of the antibiotics he is having tummy issues. Poor bug is either down right pissy or sleeping the last 2 days, in addition to having multiple dirty diapers a day :( So I've been spending some extra cuddling time with him. He's either learning to get irritable and "mom will cuddle with me" or he's just that comfy when we cuddle that he can nap. Either way I win ~

As you can see I went out and get my hair cut off again. It was just getting to be difficult for me to do anything with it long. So off it went, thanks to my girlfriend Lynn. There was more hair on her floor then on my head when she was done :)Sassy ~

Sassy with Highlights! It's so much easier to care for when it's shorter. I like it !!

This week I go in for a MS work up. I am going down on Tuesday for my 2 hour infusion, then a 2 hour MRI of my brain/spinal, and after that I will be going over the results with my Neurologist. I can't believe she is going to be going over the results with me the SAME DAY!! How awesome is that. I've started to take some supplements that have been known the help with inflammation which is a big factor in MS. I really haven't seen a BIG difference yet, but I'm not going to give up on it yet. I'm feeling awkward things going on here an there IE: not being able to walk well, numbness in my arms/hands/fingers, weakness and fatigue, headaches, and vision issues. I'll be interested to see if I have more/new lesions. Seeing these lesions have their own personality and independence I've decided to give them a name ..... I have called them "Waegner's". For those of you who know me personally, you will know the importance of that name....a name that I think is appropriate to these lesions that have wreaked havoc on my life. Have I told you how much this disease SUCKS?! But I do have to say my mood/attitude has gotten better so that in itself it is an achievement. I started to take meds for it, but it's Baby steps! I will keep fighting for my independence and to keep MS at bay. Some days I think it would have been easier if they diagnosed me with cancer, not an INCURABLE DISEASE.

*hum*

On a better note....The Clothes Hamper in Oshkosh, WI on Jackson St is now open for business. Come check it out!! We are open 365 days a year from 5am-10pm.

SLOW DOWN

February is a short month, but WOW where did it go?? I've been running my butt off EVERYDAY going here n there for Ms Avrianna's activities and doctor appts for Danny n myself .....you would "think" I would be shedding off the butt ~ NOPE. This Monday we went down to CHOW for Danny's Orthopedic appt. I was going to cancel it, but I'm glad I hadn't .... I TOTALLY Jinx myself on the last post as after I wrote it down Lil Man MUST have gotten access to it and read that he was doing well. So he decided to turn it up alil bit ....He's been teetering with respiratory crud, nothing full blown, but alil more attention is needed to be given. I just did a spit collection this morning to be sent to be cultured, just to stay ahead of the game, in case things turn. We've also needed to put his leg brace back on due to more discomfort :( While we were down in CHOW for xrays to monitor his VEPTR rod growth I mentioned that his leg/knee is STILL bothering him so they added addl xrays to take a look again. Unfortunately there still is no definite for why Danny's knee is bothering him. I got a "Keep doing what you're doing, as long as it helps" speech. It's alil frustrating, but at least we were able to get it looked at. Theory is that in the OR room, with his gall bladder removal, they moved him, forgetting that there is no hip on the right side and traumatized it in some way. BUT as I (and alot of you reading) know....what happens in the OR ~ Stays in the OR, so it's just speculation.

I know I've shown you this before, but I'm just in amazement at the correction.

Here's the before the VEPTR xray next to the NOW xrays ~ not only is the correction impressive but look at ALL that hardware (Trache, med port n cath, 2 VEPTR rods, G-tube, ITB pump n cath)
I thought this angle was neat.....they normally don't get his head in there. I know I'm weird ~lol
Danny is scheduled to get grown out again on April 24th. That will work nice as we are planning on going to Florida for spring break, so alil nice R&R in the sun and then we'll be all refreshed for surgery.

After Danny's appt we made our trip to The Cheesecake Factory........YUMMY, that makes it SO WORTH driving down! Unfortunately Danny's dysautonomia "episodes" are back and in full force....even in a restaurant they pop up. At least it looks as if he is having a great time. Again I know I'm warped, but how can you not smile seeing him smile like that. Even if it's coming off an episode :) We are going to see his Neurologist in 2 weeks to go over more options to see if we can help control this NASTY CRUEL disorder.Danny got his new Cascade AFO's last week ~ Avrianna picked out the patterns....she's so proud :) I think they turned out pretty cool. I have to admit I was alil concerned with what all the colors were going to look like, but she did good!
I think we have the start of a Halloween costume here.....my cane and Danny's old AFO's , I can work with that :) Now maybe a house coat and a wig of grey hair, LOLI laid Danny on the floor the other day and Gunner made himself very comfortable with his BFF. I have to say Gunner is WONDERFUL with Danny.....Danny is HIS person.He is Danny's protector ...... It just makes me SMILE :)

Ms Keren and Avrianna are busy getting ready for St Patricks' Day and the art projects are in full swing. I can't wait to see what they are going to do. All I know is they looked like Ogers with all the green paint on their hands.

My Angry Bird ~ All bundled up to visit Dr Kasper for an ear check up.

Last night was pictures for the Wave swim team. I can't wait to see how they turned out. There was about a 45 minute gap between her individual pics and the Group Team photo ~ I couldn't keep her out of the water. Her dive team was practicing at the pool during pictures and next thing I knew she was in the water. Oh well, why not have wet hair for a swim team picture, right? At least her individual picture her head was dry.
This girl has got me running crazy to get her to her after school activities. Well I guess most of it is my fault for signing her up, but she is enjoying it and it keeps her occupied it's better other then sitting around home being a bump on the log. I'm really glad she is so active :) She has Dive every nite after school from 4-5:30, then Piano on Mondays, Art on Thursdays, and then throw in a school function of skate nite or Girl Scouts on top of it which makes us busy bees in the evenings. Next fall she I believe she wants to do BOTH dive and swim so I think she's going to have to chose what days she wants to do what as it will be too much to do both in one evening. I'm just tired thinking about it.

I am getting geared up for a Wildtree Freezer Workshop here at the house on Saturday. I was alil disappointed in the turn out, but non the less we WILL have FUN! We are getting together and prepping 10 freezer meals with Wildtree products. I LOVE Wildtree and what better to cook with them, with some of your girlfriends, and I'm almost POSITIVE there will be some cocktails too. I will DEFINITELY be having another one of these later this year. I think it's going to be a great time, PLUS I will have 10+ meals already done and in my freezer. I can use that will all the running around we do. I am also planning a Game nite on St Patrick's Day with a few of our friends. Just alil friendly competition and again cocktails, but I'm sure these will be green. Do you see a common denominator here?? And Yes I do like to plan get togethers. I'm really looking forward to the surprise party at the end of the month.....I hope I can pull it off (you never know....it could be you) LOL.

Thanks for stopping by to check on us!

I Matter

WOW ~ who needs to go to therapy when I have YOU guys! I'm truly blessed to have a great support system. I can't express how appreciative I am to have my blog family. You guys are amazing! Even if you haven't "reached out" I can SEE that you care, by all the visits my blog has gotten. I don't know why I strayed away from here as I know blogging is MY thing...to get it ALL out there ~ the good, the bad AND the Ugly. It's MY outlet and a place where people can go to see what we're up too, feeling, and going through. A place I can write down everything that is spinning in my head. Not only to just capture it (so I can stop thinking about it), but a place I can also hold myself accountable.

To show someone else that may be out there that they are not ALONE. I'm NOT perfect ....

I'm just ME!

Funny how I don't look at or treat myself the same way I would others. The drive I have to take care of my kids and give them the best quality of life is my STRONG point, don't mess with this MOMMA BEAR, but when it comes to me.....well the spark is not there.

I SETTLE

I understand that there are things that I just have to settle with with my life, but then there are others things that I just NEED to do. I need to push myself to BE out there. I need to be honest with myself.....I guess I've been in denial and suppressed many of my "feelings", I've coasted along, numb of my emotions. I put a smile on my face and went on as if life is rosy. So was I crazier to make things looks ok, or am I nuts now? I'm struggling with what's the right way to "feel". I look back at what I wanted for my life and I just wanted to be "simple", a wife and mother. My life should be GREAT, right? I'm married, I have two wonderful kids, a beautiful house, I don't have to worry about finances BUT here I am..........struggling with myself.

Filled with WORRY and ANXIETY!

There are SO MANY things that are out of my control. What in the hell makes me so damn special.....to not only "endure" all of this, but to be the one to be in "control" of it all too. Am I really good enough? Am I strong enough? Why ME? "Life" hasn't been the easiest and yet I've pushed through....... so why do I KEEP getting MORE? What a cruel joke....lets see how much Lori can take before she snaps!

Will she?

When?

So after my last post I really didn't know what I was to do or where I needed to go, but I knew I needed something......ANYTHING! I am floating out of reach with myself and I just need to get grounded. Even though it was hard to admit and "expose" my feelings last post I felt this awkward sense of "help" after hitting PUBLISH POST. That was my first acceptance to change ..that I needed to come back to ME. I NEED to not only treat MS, and take care of the kids but I need to treat and take care of MYSELF too. Why do I always sell MYSELF short? I know it's going to be a long, tiring, and forever going trip but I NEED to do this. I realize it's NOT going to be easy and some days I will feel utterly defenseless and defeated, but I will continue to push through.

Lately I've come across some weird "encounters" with the "media" (aka tv, book,s and radio) as they seem to know what I need. Let me explain (I'm not TOTALLY NUTS, I swear)....right after I posted my last post I sat down to watch some TV. What was on? Dr Oz, who had Montel on the show, talking about his MS treatment that has helped with his energy levels. Well wasn't that Cool ... I need that !! I was excited - For the first time in a while, I was excited! I went straight to my computer and started to print off all of his advice. I think it's a START - it's right in front of my face, how much more clearer did I need the message to get moving. It was a wake up call. One of Montel's statements was, "it was time to get busy living instead of getting busy dieing". In not so many words I say this all the time towards Danny's quality of life so why didn't I connect it to mine? Guess I just needed to hear the words.

Here are the linkes to the show:

http://www.doctoroz.com/videos/montels-energy-plan-pt-1

http://www.doctoroz.com/videos/montels-energy-plan-pt-2
http://www.doctoroz.com/videos/montels-energy-plan-pt-3

The next morning while I was getting ready these two songs play back to back and I had this ah ha light bulb moment

"Who Says" by Selena Gomez -

I SAY!! It's up to me! No one is going to do this for me, so I Say it time to get out of this funk!

"There She Stands" by Michael Smith

I know this song is about the Statue of Liberty and how she stands after all the diversity, but I can relate. I WILL stand!

I bought some books to read on MS and the first one I started is "Awkward Bitch" ~ it's wonderful. This woman is heart felt, raw and TRUE! She calls it how it is....MS SUCKS!! Not only is this a painful physical disease, but the emotional craze is also very very REAL! Not knowing what the next day, hell the next minute, will bring, is very SCARY. Not to mention enduring daily pain and vision issues is enough to send anyone to the NUT house. Depending on the day I even feel as if I've already entered the funny farm, when I look at things and it looks like I'm looking at them in warped blurry mirrors.... I can only imagine the effects it takes on my "abilities" of which I either don't notice or will tend to ignore. I've acknowledge that I have MS but I haven't excepted it yet....does that make any sense?

There's been a lot going on with me & Danny, many would say this....whatever I am going through, is justifiable. BUT in my eyes it's not me, it's not ok, and I'm just trying to figure it all out.

The kids are doing well. Avrianna is LOVING dive and continues to do wonderful in school. Tonight she is on a date with her dad they went Bowling for a Girl Scout event. I hope they have a blast. Danny is (on the Danny scale) doing good. He's been teetering with a respiratory funk not a full blown illness but just not his "normal". He's been having A LOT of neurological "episodes" again and we are waiting to hear back from his neurologist on what we should do. The pain in his leg has been doing much better and for that I am thankful. Seeing him cry EVERY day was a killer, I'm NOT going to lie. Dan has been a busy man, I know BIG surprise. The newest Clothes Hamper Coin Laundry is due to open the end of the month. It's located in Oshkosh on Jackson St. Things are progressing nicely and the store is looking GREAT!

Thanks for checking on us!!

Just keep Swimming, swimming, swimming!

I'm afloat in large, deep waters lately ... some days wondering if I have the strength to stay afloat or am going to sink. I'm stuck in a rut and it SUCKS! I can't understand where or why this has reared it's ugly head, as it's not me.... I'm distant, tired, agitated, anxious, it's hard to concentrate, I'm just

* HERE *

with no drive or care to do anything. Honestly it's difficult to even blog these days...I know right? Right there is a RED flag. It's really hard to swallow personally, I'm always "in control"....or has it just been a front and I'm really spinning OUT of control? I'm questioning a lot lately.....everything . Why can't I just swim to shore and get back on my two feet. It shouldn't be this difficult? But right now it is......

I know right from wrong and the way I'm feeling and thinking lately is just

*WRONG*

Yesterday I had an appt with my neurologist to follow up with my MS and then to have my monthly infusion. I knew I had to say something to her, despite the fact she might throw me in the nut house if I do talk, but I'm

*TIRED*

and right now the shoreline is nowhere in my sight....so I needed her to know I'm NOT me! I know if I can't be honest with her then I'm not being fully honest with myself. I'm scared to all hell that this is something that I won't or can't get a handle on. Am I

*CRAZY*

What's wrong with me? Why can't I get a handle on this? All the symptoms I'm having could be progressive MS or anxiety n depression but from where I'm sitting I'm not sure which one I'd rather be. I don't want to "feel" like this for the rest of my life.

*BLAH*

I'm a work in progress and ................... I WILL keep swimming!

This isn't suppose to happen.................

This a "normal" comment I get, directed towards Danny's medical status. So when the ENT stated this yesterday about Danny's ears I just had to chuckle as I've heard this more times I care to comment on. Gail n I both looked at each other and shook our heads. Does it surprise me .....NO. It does make our journey more complicated....YES, like we need more complications. Our journey is FULL of bends, twists, and pot holes. It's kinda funny when the Dr's get that ah ha light bulb moment.....Danny IS an enigma. I know Dr Martin is working very diligently to help me get Danny's ears healthy, but I also know how frustrating it is for him to keep running in to road blocks continually. Here is what I know...his ears are bad :(. The right ear looks awful full of white n yellow cheesy/pussy goo, bleeding, and the tube is out. The ENT cleaned out as much of the goo in the right side as he could, and it will be sent down to be cultured. Hearing the suction machine suck all that out of his ears is just WRONG, YUCK. While the ENT was cleaning out the right side he was able to go in a retrieve the tube that has fallen out. This got Dr Martin on the not so nice list really quick. The left ear, even though it doesn't "look" as bad as the right has got it's own alarming issues. For whatever reason the left side had bled at one time and left a bloody film over the opening which is clogging the tube now. The tube isn't positioned correctly either so the drainage doesn't have a chance to come out which leaves it all sitting behind the ear drum. I'm almost positive we'll be heading back down to CHOW to have the left tube removed, but we are sitting tight till we get the culture results from the right ear. What is determined to help the right ear will also aid in what we will do with the left. SIGH!! I HOPE we can get a "fix" for Danny's chronic ear problems. That HAS to be painful.....it breaks my heart. It doesn't help he has had issues with his ears before the trache and vent as they only aid in ear problems. I'm hoping we get at least a preliminary report before the weekend so I can treat whatever it is that's having a party in his ears.

While we were in CHOW I was able to sneak Danny into see the dentist and get his teeth cleaned. I've been pretty lucky at getting Danny in on same day appts, yay! Danny has been lacking on the dentist visits, I think he has the same anxiety as I do with the dentist, because every appt we had this last year I've had to cancel due to illness or surgeries. His normal dentist has left since the last time we were there so he was seen by a different one. I LOVED her!! She was fantastic with Danny (and Mom). Of course when the appt was over she informed us that she too will be possibly leaving to a different establishment. Grrrrr ~ why do all the good ones leave. I think CHOW needs to invest in more of the ones that are leaving in hopes they stay. So it looks as he'll be getting a new dentist yet again. I'm always on guard when it comes to coming into an appt with a Dr I don't know. I can only hope that the rest of the dental staff is as great as the last two even had.

After we he was done in CHOW we just HAD to go to The Cheesecake Factory for some great food. I left there Fat n Sassy, lol. It's always a wonderful treat to be able to go there. It's even better to be able to go with great friends :)

Once we were home there was no rest for the weary because PT was already there waiting for Danny to come home. Danny was casted for new AFO's. He's been long over due..his last pair were made 7-08. Funny thing is, other then his big toe sticking out the front the rest of the AFO is too BIG for him. I guess in '08 he had beefier legs, feet, n ankles then he has now...he's more slim in trim these days. I can't wait to see what they turn out to look like as Avrianna picked out all of the patterns :) His sister will make sure he is "IN" with the style now.

Ms. Bailey is having a rough time lately. She's been throwing up more n more. I had her to the vet to run a bunch of tests n xrays. Everything panned out ok, but the vet is thinking a possible tummy ulcer. We started treating her for that but since then she's gotten worse....so tomorrow we are going back to vet .... maybe he'll "find" something else. I feel bad as I know she's already lost 4 lbs, she's loosing her beautiful coat, and she's getting sick all the time. She's 11.5 yrs old so I know she's getting up there in age which doesn't help either.

I've been busy planning a few parties/get togethers for the next few months. I thoroughly enjoy planning events. We'll just see how they all turn out. Wish me luck!! This next month I have an appt with my Neurologist for my year follow up. I can't wait to see her and talk to her about my MS treatment. I know I will be needing a MRI to catch up on how things have "progressed". I'm alil nervous about talking about my treatment plan as I will have been on the Tysabri for a year now. A wonderful year at that, BUT the chances of me getting the brain infection after being on Tysabri over a year is greater, sigh! What to do, what to do.

I will keep you posted!