This is a 3month old button after it is taken out.....GROSS! And the company says you could really keep it in for up to year., um NO I don't think so .Here is what his tube looks like without the extension for feeding him. The big scar that runs up and down his tummy is a surgery he had when he was 6 months old called a Nissen. He had such bad acid reflux he could throw up clear across a room and the acid was eating at his esophagus already. The Nissen prevents anything from coming out of his stomach any longer. So he can no longer throw up, burp, or have reflux.Here is the extension I have to connect to the button and from there we either connect a syringe full of food, syringes of his meds (all liquid), and his feeding pump which he uses through the night to be fed. All which goes directly into his stomach to bypass his airway. I vent him (relieve gas and any extra food) by pulling it out from here too. So when he is sick or bloated I can relieve him instantly :)
Despite his size Danny only get 32oz of liquid a day...he gets half (16oz) of formula and the other half (16oz) of water in a 24 hour day. THAT'S IT! Due to where his brain damage is and the lack of movement he gains weight at a very fast pace. Plus he MUST have his mom's metabolism so the lil guy is doomed to be "Big a Boy". I hope that made sense :) Thanks for being intersted in my family. Don't be afraid to ask I love to talk about my kids and educate so people feel more comfortable.
Not too much else to report....I'm still trying to get things back in order here. The bruise on my leg is still growing is size and wow the colors, LOL! Well not getting much done sitting on the computer so .... better get moving before my pissy attitude get worse as my projects keep staring me in the face and I just can't seem to have time to do them.