After that Danny and I went to the new house......he just LOVES hearing all the BIG "toys" out there. I'm for certain that if he was able he would be climbing all over the machines out there! He would be so proud sitting in one and being "one of the guys". But we all KNOW that isn't going to happen. Just a HUGE reflection day.....things like this morning to SLAP you in the face and put you right into place....SOCIETY SUCKS and how I allowed myself to "go there". What a gorgeous day and I see the neighbor kids (younger then Danny) riding their bikes, running a screaming while playing tag, with their HUGE kool aid mustache. And my heart just aches :(
I sit here typing in tears as I have to reposition his head in his wheelchair as he "pauses" his breath while sleeping and his lips start to turn blue. REALITY SUCKS!! What I would give for him to have what was taken away....MY DREAMS. He is the sweetest thing EVER and what he's been through in his life so far, hell what's in store for him still in his life ..... it's just cruel !!
On a good note ~ Danny had a good PT session today. I got him in his stander and tilted him at more of an upright position to see how he would tolerate it and then PT Dan, when he was here, could look for any issues if Danny had any.
Danny listening to Elmo's story....in the stander :)Danny having a conversation with Elmo :)They were having a real in depth conversation there for awhile, heehee. He is my IncrediBoy today.
Last weekend we were able to see what the head busts look like of the kids. Dan & I were having a local artist, Tim Brunn, do full body statues of the kids for the new house, but I am running out of room, heehee. So we decided to have him just do the kids heads....OMG are they AWESOME and so life like. Now that they are just the heads I can showcase both of them in my living room so I can look at them everyday. Tim, thank you so much for capturing "the moment" in both the kids...I will treasure them ALWAYS! I can't wait to see them finished and be able to show them off.
I still have a weird tingling in my legs and lower back when I pull my head forward... at the end of the month I have a physical so if it doesn't go away I'll let the doc know. I'm sure I tweeked something carrying lil man, sigh. My baby isn't a baby any more.
Well Lil man and I are going to go sit on the deck, cuddle, and finish the day on a GOOD note(yeah I'm going to have a cocktail, too). I LOVE my lil man so much :)
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