Still Home!

Today Danny had a follow up appt with his Ped down here. She said he looks GREAT, but still doesn't sound too hot. We are going to stay home and continue cares here, she agrees that I can take care of him at home seeing we have all the equipment. YEA!! If he can't hold his stats well with the bipap and oxygen or if more seizures pop up then I have agreed to bring him back to the hospital. In the office Danny held his stats at 96 with room air...way to GO buddy, but I know all to well how fast that can change so I'm on guard. I am to bring him in to see the doctor once a week just for a check up so she can see how he is doing. Boy are we so lucky to have awesome doctors down here too!! The doctor looked in Danny's ears and his tube is still in his right ear...that means his drum didn't blow, it was just doing it's job and draining, but you knew that already Dr K, heehee. YIPPEE!! The doctor gave me another cream to try for lil man's butt...it is NOT GOOD! Not at all, it is so red it's almost purple and is now starting to blister and break open. That has GOT to hurt. I just want to put on ice pack on his bum in hopes it will make it feel better. I got ahold of the Pulm doc in Wisconsin so now they are up to speed with Danny. The nurse was going to let his doctor know what has been going on and possibly call his Ped down here with some words of wisdom. How awesome.... states away and they still take care of Danny.....plus work with the doctors down here, again what an AWESOME team of doctors Danny has. It makes my work alot easier when everyone plays together nicely, LOL

Happy St. Patrick's Day

Me and my lil Man!The gang of leprechauns!Miss You Dad!Trouble #1

Trouble #2May your day be filled with GOOD LUCK!

Here is a link to a new video I did of Danny today off all his machines. It definitely shows how much struggle he has to breathe. http://www.youtube.com/watch?v=3Fgx4DRB4WE

This afternoon wasn't too bad. I have most everything done and whatever isn't I have hidden in closets, lol. Danny slept most of the day so in between breathing treatments I was able to get my stuff pretty much completed. We had to increase his seizure meds do to the Grand Mall so I'm sure he will be sleepier the next few days. He is off and on with needed Oxygen throughout the day but is totally dependent on the Bipap or he really started to pull and get bubbly....watch the video....that is being of everything for 30 minutes. Ok got to go lil mans monitors are going off!

Glad to be home?

How wonderful to sleep in my own bed!! But it's alil bitter sweet being home, as most of all know. This morning I think everything really is swarming with emotions. I went to bed last night on E, totally EXHAUSTED so I left dishes in the sink and lil piles of things to put away all over. For those of you that know me that NEVER happens, so now I'm alil overwhelmed with everything that needs to get done (cuz it is all staring me in the face!) on top of Danny's cares and Avrianna's schooling/entertaining. I left some windows open while I was gone and now there is black gritty film over everything, wonderful. So looks like I am washing floors, dusting, and doing just an over all good cleaning (again, sigh). I need to get the laundry done too.

Here's lil man this morning after meds, breathing treatments and Mr Jiggles. He held his own being off EVERYTHING for about an hour but I needed to put him back on the bipap...then I needed to add O2. I don't get it, he did GREAT for 2 days in the hospital and then the night we are to leave, WHAM! I don't know, but this is going on 3 weeks, 2 ER visits, and 6 days in ICU and he still hasn't turned the corner yet to the point I know it's over with.....I"m frustrated cuz I know we could be right back to the hospital at any moment! He's better but again teetering on going south. I am going to soak him in the tub this morning, dress him in his St Patricks outfit (I'll post pics later), and hope for the best.

Here's Avrianna sleeping in and in my bed. I know she is frustrated too, cuz she wants life to be normal, but......Be Careful for what you Wish for. Even though we are home we can't leave the house...not even to sit by the pool. Avrianna asked this morning if she could walk over and visit Grandma/pa today, looks like she did have a nice time there. So sorry Ms Becky NO therapy yet! Danny needs his machines still and they are not portable so we are stuck inside. I do believe I will be returning to WI with NO tan, sigh. Avrianna on the other hand she looks like a beach baby. Ok need to get going too much to do and I'm already overwhelmed. I just need to get into that "Just out of the hospital routine". It's.......... 9:11 am, what's up with that!! I'm so sick of looking at a clock and seeing 9:11 all the time....telling me something?

Discharge

Our walking papers are in the works. The doctor came in and he spoke with Dr Edgar.....I LOVE Danny's Neuro Dr Edgar and his Ped Dr Kasper we are states apart and they still pull through for my lil man!!! I don't know what I would do with out them being my son's doctors. They worked out a plan together and we are OUT of HERE. I just need the prescriptions and a couple extra machines and we will be leaving. What a load off of my shoulders, as I was more worried about Avrianan then Danny...really that's how silly the last 24 hours have been, with them making all this a big deal. I miss Avrianna so much! Danny and I can't wait to hang out with her tonight. Movies, Ice Cream, my own bed, with BOTH my kids.....Now that makes me one Happy Momma. Thank You Dr Edgar& Dr Kasper for the PUSH they needed. I owe you guys cookies!! I need to increase his seizure meds and give Dr Edgar a call in a couple days. Danny already has an appt with his pediatrician down here on Wednesday morning so he will be assessed again in a couple days.
Ok I hope I am done posting for the day.....well maybe I might tonight yet to let you all know how he is doing, we'll see...tomorrow for sure. I just wanted to THANK YOU all for you support. Danny got another dozen Web Well Wishes this morning....I am going to save them a hang them up at home. Another bridge in our journey as been crossed I am hoping we are on a smooth straight country road for near future. Again Thanks blog family I got through it once again.....with a lil help from you!

Seriously!!!!!!!!!!!!

Ok I knew I should have gone back to bed and started this day over again or just stayed in bed till it was over with. The last post from this morning was a good one that we were cleared from the Pulm doctor and the awaiting to hear from the ICU doctor. Well he popped his head in at the most WORST time ever. We had just given Danny a bath and got him in his chair. We must have jarred some goo out and he wasn't holding his stats well (again destating around here is 92, sigh) so when the doctor was chatting with me the whole time lil man was at 88-90 and monitors where going off, OMG this is NOT happening to us. So he ordered oxygen stat...mind you Danny just got a bath, moved to his chair, and has been fighting sleep since 3am, so the doctor thought it a good thing if we stayed so they can "monitor" him. Plus they want to get a Neuro on board down here and possibly have an EEG done.....If Danny wasn't so damn cute and smelling good I'd paddle his butt right now,lol. So I've been calling his ped Dr. Kasper and his neuro Dr Edgar up in Wisconsin for them to free me from here. I have given them both the ICU doctors # so they can talk to him and let him know it's ok we can go home. I am capable and VERY WILLING to get out of here. I know that Dr Kasper has already talked with the doctor down here and helped plead my case but he is hell bent on talking to Dr Edgar. They are concerned with the seizure because it isn't Danny's normal one.....ok again he is sick, he is in precocious puberty, and I'm not afraid of them. Yes they suck to watch and you wish you could take it away, but this is our life, BE PREPARED! Which I am. I have all the equipment and all the meds that he needs at home...I can monitor him there, plus I do know how to dial 911 if things should get bad. Avrianna's friend went to Disney today so the phone has been ringing!! Tears and all she is pulling out all the guilt trips so I WILL be going home TODAY....... OK Dan these are SO YOUR KIDS!!! LOL. Of course the ICU doctor started rounds after he popped his head in ... at the other end of the floor so I won't see him for awhile yet. I hope we get out of here before dinner!

One to go!

It is 8:30 and the Pulm doc just came in and said Danny sounded good and he is signing off of Danny's case. He is clearing us to leave....so I am just waiting for the ICU doc to clear us too then we are out of here. I am already showered, bags are packed, and I've had a pot of coffee so I'm ready. I hope the ICU doc clears us and the seizure last night doesn't set us back. Cross your fingers....I will post once I see him, I hope he doesn't wait till this afternoon to round!!!!

Alarms

So I could never understand why they set the the monitors to alarm as they do nothing about it anyway. It is 5am and we've been up for about 2 hours already. Danny's monitors have been going off for the weirdest thing tonight, with no reaction from the nurses, so they let them just go off in the room. And they can't understand why we are awake already? Let see .... an ungodly beeping going off over and over again, hmmm? Really you can't figure it out? Don't put the damn things on if you are going to let the just go off!!!! Then they have the oxygen stats to alarm at 92, are you serious? Ours at home are set to go off at 88 and that goes off once or twice a night, so take a guess how many times it has tonight/this morning. I am tired and emotionally exhausted! Can you tell..... I am going to hop in the shower now in hopes that the doctors will round in the am and we can break out of here. Wishful thinking, yes I know. No more seizures from lil man last night but the congestion is still there and strong, so I am praying they still let us go. I woke up this morning at 3am with a splitting headache and that is NOT helping my attitude....hoping the shower can make things all better and wipe my slate clean this morning. It isn't starting on a good note, AWE NUTS! If you haven't read last nights post of excitement, please enjoy.

Jinxed myself

Ok I said it and now I'm paying the price!!!!!! UGH!!!! I am going to pull my hair out I swear. Well at 9:15pm this evening Danny had a Grand Mall seizure that last about 30 minutes. We needed to give him the rescue med diastat so he would come out of it and start to come around. He got as stiff as a board, filled his pants, his heart rate raced to 210, respiratory rate jumped to 60 rpm, and his face was as red as a Fire Truck. So another trick he's pulled out of his bag .......unfortunately or fortunately it happen here at the hospital......All on how you look at. Not sure what that means for tomorrow's discharge. Avrianna is going to be pissed if we have to stay! As long as that seizure was it tonight and we have no more "excitement" here I can't see them keeping us for a seizure though. I will keep you posted on what's up!

Tomorrow!

The doctors were just in.....it's 3 in the afternoon (it's so a weekend) and they told me that we are going home tomorrow. They want 2 more doses of steroids in him as he still sounds very congested in his lungs. Then we can continue the rest of the treatments at home. His lungs really took a hit with this virus so we have to stay aggressive when home. I will still need to do breathing treatments every 4 hours around the clock and they are going to change his antibiotics over to G-tube instead of IV. At least we will be home and with Avrianna.
I wish we were out of here today...I really miss Avrianna. She has been such a good girl with all of this. I owe her BIG time!
Oh yeah the C Diff test came back negative so the diarrhea was just from the Zithromax, that is good to hear.
I NEED to get out of here! This place is driving me NUTS the walls are closing in. Tomorrow..there is light at the end of the tunnel.

Good NEWS!

Look ~ nothing in my nose!!!Danny is off the oxygen and on room air. His stats are about 95 so he is doing well. The xrays from this morning are "MUCH BETTER", from the mouth of the doctors. They are decreasing his breathing treatments to every 4 hours instead of every 3. They are taking him off Zithromax (one of the antibiotics) and decreasing his steroids amount. We have had to change 4 exceptionally watery dirty diapers already this morning so they are going to culture it for C Diff. "Told you so!" This also the reason taking him off the Zithromax...this can cause diarrhea. They are going to do some more labs because of him loosing ALOT of fluid, with the watery diarrhea, they want to make sure his electrolytes are in check....if not he has more intense seizures. So with that being said:
"The Plan" is....
1. See how his stool cultures come back
2. See how his electrolytes are
3. See how he does with the decrease of breathing treatments
4. See how he does with being off Oxygen.
If he is stays stable the next 24 hours we can talk about going .........I'm not at liberty to say or type the word, as we all know when I do Danny will take the wind out of my sails, LOL. So keep your fingers crossed. We gave Danny a bath this morning, changed his bedding, and got him up in his wheelchair for awhile, until he started filling his pants, yuck! We are chill'n out watching Cars right now and he is a happy boy....see, this picture is for you Nanny, now stop worrying! He looks great and even a SMILE. Doesn't that just make your day

Danny and I got a visit this morning from Shauna...another friend from Kidspirit. Not only are they AWESOME therapist...they've become GREAT friends....THANKS GUYS ~ You are the best! Friends like you guys are hard to find! When Shauna was here I was able to take a shower, it's amazing what some water and soap will do to your attitude, lol. Then I ran downstairs for a Chai Tea Latte and a brownie.....it's the simple things in life, right? Thanks again you guys! Danny loved having both Becky and Shauna here too, he's alil FLIRT. I will post tonight on how today went. Thanks for following our journey!

Red in the face

Here is his wall of WEB WELL WISHES ~ Thanks to all of you for your kind words and support. Danny loves listening to me read them before they go on the wall infront of his bed, so he can look at them!Finally resting peacefully! Then they came in and put Mr Jiggles on him and to do his breathing treatments....he's NOT sleeping now. I think he is going t sleep for a week once we get home to catch up. They come in and do their thing every 3 hours sleeping or not. Thanks for the balloons Griff, Danny misses you.Close ~up of my lil manAn even closer up ~ notice his poor red cheeks...ok red face!This afternoon Danny had a visit from two clowns, Chucky and Karen. Danny wasn't too sure about them....they were talking silly and asking him things. One question was if Danny ever saw a circus...I replied no, but we tried to see The Sarasota Circus last year when they were in town but they couldn't accommodate us. If you remember last year I tried to go but in the handicap section they only allow the wheelchair and another person, so they said I had to have Avrianna sit by herself in the next section, NOT! So I told the clowns that and let them know that we didn't go because of it. Then Chucky became very apologetic and said no that's not right....I'll make it right. Well come to find out these clowns weren't your everyday clowns...they were the clowns in the Sarasota Circus. So he gave me his card and wrote on the back of it....told me to show up at the tent, have them call him, and he'll take care of us. WOW ~ Thank You Chucky....there are still good "clowns" around. Now I just hope I can get lil man out of here in time so we can go! As they were leaving and saying their good byes Danny turned his head looked at them and gave them both the BIGGEST SMILE :) I know Danny knows what going on around him ... HE KNOWS!

Danny also had a visit from Ms Becky too....she was so nice to come and stay with Danny while I went home to get some more clothes and visit with Avrianna. Unfortunately I got stuck in some traffic so I was gone longer then I had anticiapted, but it was still nice to get out. Thanks Becky you are a good friend. Once I unpacked my to go bag and then repacked it again I stopped by my grandparents. Avrianna was gone visiting with her friend so I went down to see them. I chatted briefly with her family.....we met them last year and they touched my heart. Avrianna's friend has two brothers and one of them having Downs. The mom and I contacted immediately and the oldest son just wow'd me with his comfort level and interest into Danny. This family ROCKS! I hope we get out of here so I can get together with them myself ....have a few glasses of wine and chit chat before they leave to go back home. Ok back to where I was going with this, sorry. Avrianna and I went mini golfing and had a blast together. She is such a good girl while Danny is sick, but who wouldn't when you are getting spoiled rotten all day. Well right now I'm not too worried with her as the next couple days she is going to be busy hanging out and playing with her friend.
Here's my student....doing her homework in bed, LOL, this is Wednesday morning right before I took Danny into ER. Had to post a picture of her too.

Thanks again for taking time out of your day to follow our journey, and what an adventure it has been lately. Take care! There has been no word of discharge as of yet...I am hoping Danny gets better and the word comes about tomorrow sometime. At least a time frame of when.

Update

Danny is about the same...no real changes, at least for the better. He is tugging alil more with breathing, and the xrays are about the same, so we are going to be here for awhile. They are going to start putting him on his bipap during the day to help him breath alil easier.
Danny got another visit from a dog today...this one was dressed up as a leprechaun. Danny really loves their visits. He even smiled at the dog today. Yesterday Danny even got into one of his laughing fits again. It scares the hell out of me at first as it sounds like he is crying..then you see the smile and the laughter. It's awesome, seizure or not!
Ms Becky (Danny's PT) is coming to the hosptial again today to relieve me. THANKS Ms. Becky! I am going to run home to get some things and hang out with Avrianna for awhile. If she isn't too busy, heehee. She is having a good time with her great grandparents (I think they are going to need a week long nap after keeping up with her for awhile) as they are keeping her busy with games, swimming, and they let her have ice cream alot. She is going to want to stay with them, LOL. Avrianna does have issues at night, but that is to be expected. I know some kiddos are going to be around our community this week, visiting their grandparents, so she should have a blast playing with them. I hope!
I will post more when the doctors come in and tell me what's what.
The Web Well Wishes are great, thanks guys! In one day we got a dozen and they keep on coming. I read them to him and then post them on his wall. Everyone is commenting on his cards, you guys rock!Here is the link to the Web Well Wishes: http://www.leememorial.org/cards/wellwishform.htm you can fill out this form with (Danny Osero room#2907 and at the Children's Hospital of SW Florida) and alil note or well wish from yourself and they print it out downstairs and deliver it to his room. So if interested in sending Danny something send him a well wish. They are pretty cool.

Another Update

Another appropriate day for this picture! Well the Pulm doctor was in and he was very nice. He had the time to sit down and talk about ALL Danny's issues. He did comment that the xrays definitely show signs of infection, sigh. His cheeks are fire red now...they say that is from the strong steroids. He looks like he's been out on the beach too long, LOL. The doctor assessed Danny and said his lungs are crackling and wheezing, that doesn't sound too good.
Danny also got a visit from two therapy dogs today...he was SO into that. The Pomeranian they put in bed with him, it was too cute, and they had another dog that was bigger (I can't remember the breed, but about Bailey size) and it looked like a long haired Dalmatian. How appropriate, Danny LOVES dalmatians. Her name was Dottie and boy is she a mild mannered dog. She put her paws up on the bed and laid her head down right on Danny's chest. How sweet!

Ms Becky (Danny's PT) stopped by to say HI and see Danny. We have had to cancel ALL of our appointments with her since we've been here because of illness. So instead of us going to her she came to us....and Danny thought he was free, NOT. Thanks for stopping by Ms Becky it was nice to see you and chat. You start to go stir crazy in these lil rooms. Danny even enjoyed visiting with her...she even got a smile....what a flirt, lol. He is just trying to sweeten her up for when he does FINALLY get to have her stretch him out.

We MISS YOU TOO sweetie....thanks for being such a good girl!

Two disappointments today...first when Avrianna came to visit I was immediately told that other children are not allowed in ICU, not even the siblings. So she was pretty upset she couldn't stay....and so was I. I hope we are out of here soon. Avrianna has been such a trooper through all this. I promised her when Danny and I broke out of here....I would take her mini golfing and to go get an ice cream treat. I felt terrible that I couldn't have her stay!

Then second they started another antibiotic on Danny so that will make three that he is on today....one IV and two orals, not to mention a total different one he was on last week. That is the best cocktail for C Diff which Danny is prone to get. If he should get this nasty bug then he goes into isolation and an extended stay for about 10 more days to kill the bug he got from them putting him on antibiotics. I will be one unhappy Momma if that happens! I told the nurse to inform the docs and staff if he does get it, Avrianna WILL be here with us. This SUCKS!!

Update!

Danny is still VERY WET in his lungs! I have not heard from the Pulm doctor yet. Danny is holding his own though. He is having issues still with holding his temps up so once again he has a warming blanket on. I cranked the heat in the room too :) He was at 99 and went back down to 94 pretty fast. I'm not sure why this is happening...he has been having cold temps since his surgery and this is all new to me. I love this warming blanket it is so cool, well HOT, heehee.
I will keep you updated. Avrianna is on her way to come and visit so we are excited to see her.
Danny received this Web Well Wish card from his BFF Griffin, it is so neat. I thought I would share the site.... http://www.leememorial.org/cards/wellwishform.htm you can fill out this form with (Danny Osero room#2907 and at the Children's Hospital of SW Florida) and alil note or well wish from yourself and they print it out downstairs and deliver it to his room. So if interested in sending Danny something send him a well wish. They are pretty cool.
Thanks again for following us and your kind words. Your support is wonderful!

Pnuemonia

The doctors just came in and this mornings xrays do show both lower lobes having significant white matter. So they are now treating him having pneumonia and they think possibly his lower lobes have collapsed alil. Now the needing of higher levels of Oxygen make more sense. Danny has increased his temp now ...he is about 99 which is a great improvement from the 93 when we got here. His face is very flushed and he is still struggling to take a breath, but he isn't as wet/junky today. I haven't had to suction him as much. They are doing breathing treatments, Mr Jiggles, steroids, antibiotics, and lasix (to help get rid of the excess fluid) all day long in hopes to help him out. About 2 this afternoon they are going to repeat labs. They called in a Pulm doctor to look at Danny while we are in house...so now he will have one down here that will follow Danny, That's GREAT! So the plan is to continue with the treatments, get the Pulm docs opinion, take a look at tomorrows xrays and then get the real "PLAN." Looks like we will be here till at least tomorrow night, sigh! I'm glad I have my computer to have touch to the outside world. I can not update or get to my facebook page so for those of you that follow that....it won't have any activity till we get home. I talked with Avrianna this morning and she is having alot of fun with grandma and grandpa so she decided to stay with them and go swimming 'n stuff, other then coming here to watch some tv, figures. I am glad she isn't having a rough time with this .... at least it makes the stay more bearable. Plus the staff here is WONDERFUL with him. THANKS !!

Bag full of Tricks

Well it's almost 1am here and lil man is resting. What a long day .... but the night seems to be even longer. Even though he is sleeping, he is sleeping too sound. He is being a stinker, I'm starting to wonder if it is just me. I had to leave briefly (yeah I know I left him, something I try VERY hard not to do, but they are AWESOME here.....highly recommend coming if you're in the Fort Myers FL area) to go get his bipap machine and mask because he wasn't doing well with the hospital one at all. While I was gone the nurse sat with him, he was on 5 lt of oxygen and holding his stats about 95 he was such a good boy. Then I get back, and here we go again.....he has his bipap on and now he is up too 6 lt of oxygen with only stats of 92. What a lil twerp!!
Well this morning Danny wasn't his best so I decided to bring him in for xrays. Of course we had to go to the ER to have them done, but I figured in and out no problem............NOT!! Danny got so bad, and of course it was in the van on the way to ER, his stats dropped to 75 for about 5 minutes. Let me tell you his color at 75.....not pretty at ALL! Even though blue is his favorite color it really doesn't work well for his skin tone. He is just so JUNKY, again it sounds like he is drowning in his own spit. Once we walked into ER Danny got a DO NOT PASS GO ticket right into a room, so that was nice. The xrays still show nothing too significant, WAY TO GO! So we are ALL stumped at why he is so wet and not holding his stats anymore. I am constantly suctioning him! Danny had an episode in the ER room (destated) and let me tell you do nurses and docs FLY in the room. That bought Danny a ticket upstairs....and none the less to ICU. So after spending 10 hours in ER we are now in a room. His blood work looks good too so no infection as of yet either. They did say his right ear no longer has a tube in and the drum has burst...NOT GOOD! Danny is VERY cold and has a VERY low heart rate, yeah I know SO NOT Danny. Again we are stumped with what he has or what is happening. They have this awesome air blanket on him right now to warm him up...I would like to crawl right in with him....but would rather spend my time laying on this wonderful couch they call a bed, LOL.
Well the is it in a nut shell. Thanks for following us. Keep Danny in your thoughts! He needs it right now. Oh yeah ~ don't worry my grandparents are still down here so Avrianna is hanging out with them getting spoiled ROTTEN, Yahoo. That is awesome ~ Thanks guys!

Admitted

Just a quick note......Danny was admitted to the ICU dept at Health Park Children's Hospital today. Another Respiratory distress, his stats got as low as 75, YIKES!

Hair Cut

So here's my lil princess with her new hair cut. She likes it!She wanted it shorter in the back and longer in the front...she must have seen one of the girls at the pool with the style. I did my best!! Not sure if I like it, but we'll see. Like I say it's only hair it'll grow back.Danny is still congested and today he was breathing so fast you would swear he was running a marathon. I tried to download another video of him breathing but the computer dropped off line losing the download, but you get the picture. I think I'm going to give him a hair cut tomorrow. I WILL remember to put the guard on this time....PROMISE! LOL

Today Danny had Speech therapy and he did pretty good for being ill. We discussed the possibility of using a Tech/Talk 8 device with Danny in aiding him with his communication. This device will scan over 4 to 8 items....telling him what they are and when it gets to what he wants, Danny has to activate his switch so it stops scanning and that will tell us what he decided. I'm super excited about it. We'll see if they have one we can try.

Tomorrow we go out for PT at Kidspirit. I can't wait he NEEDS to be stretched out something fierce, sorry Ms. Becky you will have your work cut out for you. Then Wednesday the Assistive tech lady is coming to show me how to do some fun thing with Danny on the computer and discuss the possibility of some new switches to try with him. I will let you know what comes of that.

Today Danny's lil butt started getting so sore. So now not only is he having respiratory crap his butt is red. I loaded it with cream....I hope it works. I'm not sure if his skin has had enough of the wiping cuz of the antibiotic runs or if it's that acidic now. Where ever the mess hits his skin it's now red, instantly. Poor thing! I just want him to feel better and SOON! My mom is going to be flying down the end of the month so if he's not 100% you can bet she'll try to whip him into shape, heehee. NOT ~ she'll just cuddle with him and tell ME WHAT to do, LOL. Boy I GOT to get this boy better before she gets here.

Thanks for following our story. Take a few and drop us a line to let us know you stopped by. The kids love it when I read them your posts too!

Tiny Bubbles ~ NOT

Alot of Bubbles!!

Well congestion set back in this morning, yuck. So back to suctioning and Mr Jiggles all day long. Danny doesn't mind it, so that's a good thing.

Here's my lil helper....she likes to vacuum, she's NUTS! Avrianna has her room full of blankets and towels cuz she made a fort today. We might venture out to the store later, but other then that It's going to be a low key day.

Yesterday we had a lazy day and went to the pool. Danny fell asleep so he chilled out under the shade. I'm so not going to get him in the water till I see a a BM with some significant substance. I don't need to be causing any more grief then I already do around here, heehee. He is just love chill'n out in shorts so no worries there.

Broken Hearted

Miss YOU!!!! After my sister's family left this afternoon I found her in the corner of her room.....poor thing. She is just devastated. Everything is coming to a head this afternoon. Now that she can sit back and relax it all poured out. "First I lost my dad and now my cousins." I had to reassure her she didn't "lose" anyone, they are just going home. And that the time will fly by before she knows it her dad will be back then we will be heading back too. She is crushed!! This week I believe one of her seasonal friends will be here visiting her grandparents so Avrianna should be smiling again soon.

I got the beds stripped, the laundry done, washed the rugs, washed the floors, and both bathrooms are scrubbed. Whoooo, now I'm exhausted. The kids and I watched the movie Camp Rock and ate ice cream with extra Carmel on top this evening. We all were tired so our heads won't have a problem hitting the pillow tonight.

We are going to lay low this weekend, but on Monday the routine starts back up. Danny has Speech on Monday, Wednesday the AT therapist will be here, and Friday is the teacher with I believe PT. Avrianna has to get cracking on the school books (she had a 2 week vacation) so I know there is going to be some resistance till we get back to normal. Then on Thursday she has gymnastics. Yeap we are always busy doing something.....but I like it like that!

Today was a nice day here.....almost back to normal temps...it was in the high 70's. The last week it was cooler for temps around here, about low 60's and even has gotten to the low 40's at night. I LOVE it! I've slept with the bedroom window open since I've been here, but you can so tell who the true Floridians are....they are out with winter coats on (do they really sell them here) or multiple layers. Then you have me walking around in shorts and t-shirts.....they don't know what cold is.

Danny did AWESOME today! You wouldn't have even known he was SO sick the last week, if you saw him today. I am so happy, but scared it's the calm before the storm.....yea you know what I mean, Danny likes to throw curve balls and surprise attacks! The thought is he possibly had RSV, again, really....if so then he will have gotten it EVERY year of his life. The first two years it almost took his life, but the last 3 have just set him back alil. I think he does better with it every year.....or maybe I just do, whatever the case may be at least this year we can chalk it up.....DONE! I thought I came here to get away from that crap!!