Saturday, May 30, 2009
The Big Foot Walk
Thursday, May 28, 2009
Tuesday, May 26, 2009
School Days
Monday, May 25, 2009
The Big Foot Walk ~ 2nd post today
If interested please pledge your dontations in box to the left or click HERE!
Friday, May 22, 2009
Productive Whirl Wind Day!
With 15 minutes to spare Danny and I hopped in the van drove across town and went to my physical, oh yay! She says I look GREAT! She is alil concerned about the headaches and the tingling/numbing in my legs also so I have an MRI for myself a week from today. And because I didn't have time to eat breakfast or lunch today I was able to do all my blood work instead of having to come back....BONUS! I'm not too worried about the MRI....it is what it is, my kids have shown me to NOT get uptight about the medical stuff. And we'll deal with whatever path life takes us/me......I look at my lil man and know there is NOTHING I CAN COMPLAIN ABOUT, if I have to go on with alil of what he is living so be it!
As I was pulling into the driveway home there was a man wearing scrubs in my driveway.....yeap they pump guy came to our house. HOLY CRAP! He was so very nice.....he even set off the alarms so I would know what each one sounded like...non emergency and emergency. The pump did in fact shut down when Danny was in the MRI.....but it reset itself about an hour after the MRI, whew that was good. Thanks for coming out for a house call!
Dan is off racing tomorrow so if you got nothing to due....stop on down to WIR in Kaukauna, and check it out. They have show with wheelstanders and possibly some JET cars (my personal fav).
Our walk is on May 30th so ~ Please pledge your donations by clicking on the box to the left in our blog for Firstgivings and sponsor us on our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for checking in on us!
Thursday, April 30, 2009
Oops!
Today I tore Avrianna's closet apart, removed all the clothes that she's outgrown (she needs to slow down, darn kids they just dont listen....I keep telling her not to grow up), and stocked it back up with summer clothes. Think positive :) summer PLEASE come soon. One room down and two more to go, this is a step in the right direction, YIPPEE!
Tomorrow Danny has his first therapy since we've been back from the school district with Mr Dan (PT). I'm so excited! Plus we are having our DME guy out tomorrow so we can get Danny to fit better in his chair, yeap this whole they don't listen and keep growing on me, sigh. His chair is less then 6 months old and we are already having to adjust, ugh. He is getting to be such a big boy. My mom came and watched the kids this afternoon and she was in awe with how well Danny held his head up high and was looking at her....really checking her out. Way to go buddy!
Thanks for praying for Matt today....he is out of surgery and off the tube, yay! They are going to have to redo this procedure on Saturday (to wash out the wound hoping to get rid of the infection) so please follow his story and send some prayers his way. His grandma was sent to the ER while visiting him so they really could use good vibes sent there way, sigh.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)
Sunday, April 26, 2009
Rain, Rain, GO Away!!
So I'm going to post some happy stuff....Our House :) I would like to thank, from bottom of my heart.....Custom Family Homes (Mike, our general contractor) and all the sub contractors involved in helping us finish this home. Mike has gone above and beyond the call of duty to help maintain functionality and the "Country Sheek" in our home (with Mike having a daughter with some disabilities he understands). I am so excited about the house and it's progress now. I know the road hasn't been the smoothest but we are now on the right path of making this house our "Dream Home" not a nightmare. Thanks Mike, you are now apart of our family (not sure if that's a good thing?).
Well here are some updated pics as of Friday. The whole roof is now shingled and the window are in! They are starting the dryvit and siding.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)
Saturday, April 25, 2009
Settled In
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)
Thursday, April 23, 2009
Sleeping
I'm getting concerned about Danny though....go figure, nothing goes smoothly. I haven't seen the whites of his eyes since yesterday. He slept through the night, ALL day today, and it looks as if he is going to continue tonight. He didn't pee on his own ALL day either. You would think cathing him would get him to open his eyes at least alil, sigh. His stats are doing well, but I still don't like that he isn't waking up. I will be watching closely and if he isn't more awake tomorrow I will be bringing him in. He just wants to see Dr. Kasper, Danny missed him, LOL. I will keep you up with all of this.
Avrianna settled back in well. She played most of the afternoon with the neighbor girl and tomorrow it's suppose to be in the 80's, YAY, so I'm sure she will be outside most of tomorrow too.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.
Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)
Saturday, April 18, 2009
Pictures
Friday, April 17, 2009
Sleepy & Congested ~2nd post
Yesterday was Danny's last therapy at KIDspirit, so sad. Avrianna bawled the whole way home...she's going to miss that place too. Now doesn't that show how awesome a place and how wonderful the people are there! Love you guys, we will miss you!!
Today Danny was suppose to have his last therapies at the house from the school district, but Danny wouldn't wake up. So the Teacher was pretty much out to just pick up the equipment and I called the Speech therapist to tell her to not come out, it would be a waste of her time. Sorry :( .....we'll see you guys next Fall and I hope Danny cooperates for you guys better.
Dan flies in late Sunday night and I know we are all VERY excited to see him. I'm sure after 2 months of being alone with me the kids are sick of ME. They can't wait to have their daddy around. We plan on starting our travels back to WI on Tuesday so if things go well we should be back by Wednesday/Thursday. It all depends on how many times we stop.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Our friend Matt is out of surgery and doing well...keep praying for an easy extubation so he can be back on his bipap soon.
Thanks for following us!!
Tuesday, April 14, 2009
Head's Up
![]() |
![]() |
Make a Smilebox slideshow |
Tomorrow Danny has his Assitive tech therapist here in the morning to show me some proximetry switches. I hope they will work for Danny! It's so exciting to see Danny ambitions of wanting to activate/play with things and if I can find a switch that will work with him instead of against him I think he will flourish even more.
Today was Avrianna's last day of Gymnastic Camp so tomorrow she will be able to get back into her routine again. She really had a blast playing there all day (6 hours) for the last 7 days. I'm sure we'll have issues with getting back into the swing of schoolwork, but if she wants me to take her to see The Hannah Montana movie she'll have to corporate with me, yeah I'm not beneath a good bribe, LOL.
This is our last week here in Florida and then back to the wonderful Wisconsin weather. So many mixed emotions there, we LOVE it here.....but we miss Daddy so very much. Dan will be flying in on Sunday (the count down has been going for the last month) and Avrianna is so excited that her Dad is going to be here. I also am very excited to see our new house and all the progress since we've been gone. I'm constantly hearing how beautiful it looks and how different it looks every day so needless to say I can't wait to see it ~ Sending out a HUGE Thank You to Custom Family Homes & all the sub contractors involved in helping make our dream home become a reality~ You guys ROCK
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for following us!!
Sunday, April 12, 2009
Easter w/Danny ~ part 2
We spent a few hours at the pool and now I'm going to make some dinner....I'm sure Avrianna is going to have us watch the movie's again. I think there is going to be a good Extreme Home Makeover tonight, so we'll have to break for that.
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN .
Easter
Yeap she has to come up to breathe once in a while!
Saturday, April 11, 2009
The Big Foot
No one has a longer bond or a more powerful, positive impact on people with special needs than their brothers and sisters. So it is important that they have the information and the support needed to address concerns and celebrate the joys. The Fox Valley Sibling Support Network provides programs for adults and children who have siblings with special needs or long-term illnesses.
Please click HERE to donate your pledge. Or Register you/your family and join us on May 30 @ Plamann Park Appleton, WI and walk for this wonderful Group.