Showing posts with label The Big Foot Walk. Show all posts
Showing posts with label The Big Foot Walk. Show all posts

Saturday, May 30, 2009

The Big Foot Walk

When we got to the park the clouds were out and it was VERY windy.  So we were freezing, within a half an hour or so it warmed up but boy the wind didn't let up one bit. Danny had some issues with the wind, but alil more venting and he was a trooper for his sisters program.  I know Danny is so proud of his sister....she is go good with him.  I'm one PROUD mom of BOTH my kids!  The Osero kids ~ our Team name Touched By An Angel ~ won a door prize because we were the highest pledged walkers today!  THANK YOU to everyone that pledged ..... what a wonderful program.  Avrianna was just tickled pink to not only show off her brother but to go up and accept the prize.  Thanks again ~ if you didn't pledge but still wanted to... they stated they are going to keep the fundraising page open for a few more weeks.  To pledge click HERE
Walking hand in hand ~ both VERY Proud to be each other! (lil tricky getting this picture by ourselves, they were going down hill, LOL)

Harriett Redman and her son, Phillip....Founder & President of the wonderful program Fox Valley Sibling Support Network.  Thank you Harriett for giving the siblings a place go and feel "normal".  What a great program!!They had games!

Better in the front seat then the back, right? heeheeThey has some therapy dogs....this one is Poppet what a GREAT dog.  I got some information from Poppets mom about the Therapy Dog program here in the Valley =)Avrianna found a new friend.....And Poppet found Danny ~ SMILES!!!!  Danny was so into Poppet...he kept turning his head to look at him (which by the way meant he has to turn his head to the left, Way to GO Danny!)  I hope to get a companion/therapy dog for Danny.  A small one that can be with Danny on his lap or/and in his bed.. a buddy that Danny can rely on :0)
Avrianna got her face painted
The TWO BEST KIDS I could ever wish for ~  I LOVE YOU GUYS!Just a quick update on the MRI status.  I did get Danny's images burned on a disk that also had the radiologists report on it.  I don't have a clue what the images mean to me yet, but the 2 paragraph report states that he has SEVERE BRAIN DAMAGE due to an earlier injury.  No doubt!  I'm glad there hasn't been any change or any new findings with Danny, but now I'm very interested to sit down and go over the images with the doctor so they can tell me what's what.
I got my MRI done yesterday and they also gave me a disk with my images on it.....again Greek to me.  The report wasn't on there, but I did get the radiologist report last night via online.  They found multiple abnormalities in my brain and neck area so I am going to have another MRI this time with a contrast and they are going to do more area.  I have all the terminology of what they found, but again GREEK to me with most of it.  So much for the "pinched nerve" looks like this is REALLY involved.  I kind of knew it wasn't good when my report was longer then Danny's, LOL.   I really don't have too many answers yet so I can't really say much.  I haven't even spoken to a doctor about the report ... just talked to the nurse stating they are going to call me on Monday to schedule ANOTHER MRI soon.  I will keep you all posted with this.  NEVER A DULL MOMENT....just when I think life is going well.  Oh well ~ It is what it is, I won't be able to change it, I'll get through this too =)  I just pray and hope I can still care for my kids .... that's what scares me the most.

Thursday, May 28, 2009

Here's a picture of Danny and his therapist during his Physical therapy yesterday.   SO BIG!  He did great.  Today he had PT and OT tag team him and he did awesome again.  Of course he was showing off today as this was his last therapy session of the school year, LOL
A Preview of just some of the paint colors in the house....and they started the stone on the fireplace today too
 
Nanny Checking out Avrianna's room ~ I know check out that color, WOW
Looking into the dining room ~ the stain is starting to go on the windows and the doors too :)
Guest bedroom on Main floor ~ Calily Room
Front of House
Backyard and Pool

Tomorrow I go in for my MRI.....glad that we'll be able to get a better feel of what's going on with this "pinched nerve".  I hope I will get some answers soon.
This weekend on Saturday the kids and I are going to do the fundrasing walk for Fox Valley Sibling Support Network and we are excited.  Dan is throwing a bachelor party for his best bud Tim with a few of their close friends.  I hope they have a blast!!!  We're so happy Tim and Amanda found eachother =)

Tuesday, May 26, 2009

School Days

Today Danny had his last day of Speech for the school year.....I can't believe that next year my lil man is going to be in Kindergarten.  He got to show off the new proximity switch that he is going to use over the summer.  I am SO EXCITED with the results already!  Danny is showing off his stuff with this new switch, I believe this is FINALLY the one, YIPPEE.  Now it's up to me to find the most consistent spot to put it, but in just one afternoon I've found two VERY CONSISTENT areas where Danny activated his toy.  I even have Ms Maria and Mr Scott as witnesses so I have proof, heehee, I'm not just a nut job mom who thinks her son is doing it, LOL.  Danny sat up in his floor sitter chair for over on hour, engaged in play time (aka therapy time) the whole time and didn't shut down once.  This is good news....watch out you therapists, next year he is going to be a whole new boy with this new switch, more positioning tools, new computer software for him and a new house to spread his wings :)
We also discussed the IEP that we had last Thursday.  I think it went VERY well!  Everyone is playing together to make a team effort in what it best for Danny, I believe we had 15 people at the meeting.  I'm so blessed to have a wonderful team that wants to help me maintain a qualify of life for my lil man.   Next year as I said he will be a Kindergartner, but he still will be home bound with his therapies.  I just don't feel it's worth the risk of him getting sick.  Danny gets sick so easy and then it's so hard for him to recover with hopes that he hasn't lost any of what he has gained.  Plus the one on one he gets at home with us I believe is better for him then being in a class full of kids which most have alot more abilities then Danny.  I don't see it being fair, healthy, or functional to Danny being in the classroom all the time.  I did say that I would love to bring him into the classroom (when the chances of him getting sick aren't so high) when they are having something special going on or during music class and we would love to tag along on some of the field trips.  That way both Danny and the other kids can interact together.  Unfortunately the school district we will be in at the new house won't be able to accommodate Danny's needs so he will be registered within a different district.  I know for sure he will have a new teacher for the school year (a kindergarten teacher that will be doing home bound education), but the therapist ie: Speech, OT, and PT I'm not sure if they will stay the same.  I hope so ~ but will be prepared for new ones if they need to change.  I can't wait for next year....I have all these great things to use and try over the summer, plus being in the new house next year.......well SKY is the limit for Danny and Avrianna for that matter.  
Avrianna was feeling much better around 5pm yesterday.  Thanks goodness!  I was really getting worried, as she wasn't keeping anything down ~ not even ice chips.  I called nurse direct and they said if she continued to not keep anything down for over 8 hours to bring her into ER and have her checked out.  Good thing she started to turn around by 5 cuz that was her deadline.  Today she is back to herself again :)  We are wrapping up her 1st grade school year also.  Then onto 2nd grade in a couple weeks....WOOHOO!!
I scheduled Danny's cystoscope (scoped surgery for his mass that they found in his left kidney) for July 6th.  He will be admitted for 23 hours afterwards for the minimum.  Of course I made a date with just my husband and I to go see Sugarland in concert on July 8th so something tells me, Danny might put a wrench in my plans it ALWAYS happens like this.  Oh well!!   I hope to hear back from Danny's MRI next week sometime from his Neurologist.  Dr Kasper is going to order a copy of the images on disk so we can see them too :)
This week we are finally going to get started with PT at the hospital for summer therapy (someone was sick every time he was scheduled the last few weeks) and then Danny has one last OT session this week for the school and she will be done for summer too.
Please don't forget to pledge your donations and sponsor us in The Big Foot walk it's this Saturday May 30th.  Click on the box to the left. 
Thanks for checking in on us ~  Please leave a comment or sign our guestbook, we'd love to hear from you too :)

Monday, May 25, 2009

The Big Foot Walk ~ 2nd post today

Just reminder....the kids and I are in doing a fundraiser walk this Saturday May 30th. The funds will go towards the Fox Valley Sibling Support Network. A wonderful program designed for the siblings of special needs children. To learn more about the program please click HERE.

If interested please pledge your dontations in box to the left or click HERE!

Friday, May 22, 2009

Productive Whirl Wind Day!

HOLY COW was today busy, but it went smoothly. This morning Danny and I went on our way to the hospital for his Renal ultra sound and afterwards to see his urologist to talk about how he has been and go over the results of the u/s. Of course they like to see the bladder full for this test..........and he peed right when she squirted the jelly on his belly, Oh well :) Once I got up to the doc appt they stated they needed a urine sample........well that would have been good info to know a few minutes AGO, sorry :) The doc came in and stated the "bubble" in his left kidney last year isn't a "bubble" anymore.....so he sent me down to x-ray. Danny had his MRI scheduled for today too so I needed to put the x-ray on hold to do the MRI (which he did AWESOME). I had given him his sleeping medicine (instead of sedating him) so I wanted to take advantage of the "heavy eyes". Unfortunately after the MRI was already in process I find out that no one made sure the Medtronic (ITB pump) rep was there to monitor it. UGH!!!!!!!! They did get ahold of him..........IN GREEN BAY 40minutes away and IN SURGERY! But he reassured me he would see Danny before the end of the day (which I was told wasn't a bad time frame, sigh). I should hear from Danny's Neurologist in 7-10 days with the report. I am very excited but very anxious about the results of really HOW MUCH BRAIN DAMAGE MY SON HAS. It'll be all good, I'm sure of it :) After the MRI they wheeled him across the hall and did his x-ray of his kidney. Then we went back upstairs to go over those and to hopefully be able to obtain a urine specimen, LOL. Well the X-ray didn't show any signs of this "mass" in his kidney......so why don't I go down AGAIN to have a CT done. We were able to get a urine specimen to be tested and cultured, YAY, but not without peeing around the catheter, heehee. I guess he told her where she should stick it, LOL. So down to get the CT scan ~ Yes I couldn't believe it either all were able to get Danny in right away, like that EVER happens. The CT does in fact so the mass, but not in the solid form that he had thought....the doctor was thinking a BIG stone, but this is "mooshie" (like my terminology) and in a "pocket"plus his kidney has significant calcium deposits. Now we have to schedule a scope surgery so the doctor can go in and find out what this mass is. YIKES! "On a good note", the doctor says I get to see more of him......we have a comedian here, LOL. He's a great doctor but really don't want to be seeing more of him :( But will do what we have to do. Then the urine tests came back...his PH levels are WAY TOO HIGH. He believes the PH level and possibly the mass is all due Topamax (which is one of Danny's seizure meds) so here we go again....waying which one is more important? I have a call into Dr Kasper to go over today's knowledge and get his opinions. Plus the Urologist is sending a complete report to Dr Kasper and Danny's Neurologist.
With 15 minutes to spare Danny and I hopped in the van drove across town and went to my physical, oh yay! She says I look GREAT! She is alil concerned about the headaches and the tingling/numbing in my legs also so I have an MRI for myself a week from today. And because I didn't have time to eat breakfast or lunch today I was able to do all my blood work instead of having to come back....BONUS! I'm not too worried about the MRI....it is what it is, my kids have shown me to NOT get uptight about the medical stuff. And we'll deal with whatever path life takes us/me......I look at my lil man and know there is NOTHING I CAN COMPLAIN ABOUT, if I have to go on with alil of what he is living so be it!
As I was pulling into the driveway home there was a man wearing scrubs in my driveway.....yeap they pump guy came to our house. HOLY CRAP! He was so very nice.....he even set off the alarms so I would know what each one sounded like...non emergency and emergency. The pump did in fact shut down when Danny was in the MRI.....but it reset itself about an hour after the MRI, whew that was good. Thanks for coming out for a house call!
Dan is off racing tomorrow so if you got nothing to due....stop on down to WIR in Kaukauna, and check it out. They have show with wheelstanders and possibly some JET cars (my personal fav).
Our walk is on May 30th so ~ Please pledge your donations by clicking on the box to the left in our blog for Firstgivings and sponsor us on our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for checking in on us!

Thursday, April 30, 2009

Oops!

Ok ~ this is what happens when you don't pay attention and OPEN your eyes. Yesterday after my family and I went out to lunch... I was loading Danny up in the full size van and I tripped over his lift backwards. UGH! This was just a nickel in size last night and when I got up this morning it was bigger, swollen, and it hurts like hell. I'm sure I bruised the muscle too, eek. So needless to say I hope I don't do that again. Don't worry Danny wasn't on the ramp yet so no harm no foul there, it's was just my plain stupidity :) This picture doesn't do the color justice, LOLThe newest hair do! Without glasses And with :) Avrianna was playing with the camera and wanted to take some pictures. She's pretty good!

Today I tore Avrianna's closet apart, removed all the clothes that she's outgrown (she needs to slow down, darn kids they just dont listen....I keep telling her not to grow up), and stocked it back up with summer clothes. Think positive :) summer PLEASE come soon. One room down and two more to go, this is a step in the right direction, YIPPEE!

Tomorrow Danny has his first therapy since we've been back from the school district with Mr Dan (PT). I'm so excited! Plus we are having our DME guy out tomorrow so we can get Danny to fit better in his chair, yeap this whole they don't listen and keep growing on me, sigh. His chair is less then 6 months old and we are already having to adjust, ugh. He is getting to be such a big boy. My mom came and watched the kids this afternoon and she was in awe with how well Danny held his head up high and was looking at her....really checking her out. Way to go buddy!

Thanks for praying for Matt today....he is out of surgery and off the tube, yay! They are going to have to redo this procedure on Saturday (to wash out the wound hoping to get rid of the infection) so please follow his story and send some prayers his way. His grandma was sent to the ER while visiting him so they really could use good vibes sent there way, sigh.

Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Sunday, April 26, 2009

Rain, Rain, GO Away!!

It's raining, it's pouring the old man is snoring.....LOL. This is the second day in a row of rain, ugh. NO MORE RAIN!! How cold and depressing? It is pouring right now and the farmers field is starting to look like a pond not a field, sigh. I would like to be back in the fun and sun of Florida where it only rains for at most an hour not DAYS. We do have a fire in the fireplace and there's no other way to spend a day like this...with my family, drinking coffee, and sitting by the fire....Ahhhhhhh
So I'm going to post some happy stuff....Our House :) I would like to thank, from bottom of my heart.....Custom Family Homes (Mike, our general contractor) and all the sub contractors involved in helping us finish this home. Mike has gone above and beyond the call of duty to help maintain functionality and the "Country Sheek" in our home (with Mike having a daughter with some disabilities he understands). I am so excited about the house and it's progress now. I know the road hasn't been the smoothest but we are now on the right path of making this house our "Dream Home" not a nightmare. Thanks Mike, you are now apart of our family (not sure if that's a good thing?).
Well here are some updated pics as of Friday. The whole roof is now shingled and the window are in! They are starting the dryvit and siding.Our front entry way... cedar beamed peak...the wood was cleared and cut by Dan at The Newood in Spirit Falls, WI (Dan's home away from home in God's country). Thanks Dan it's Gorgeous!
The brick and stone starting to go on the garageDanny checking the place outAvrianna playing in the rocks/mud in the retaining walls by the walk out in the basement. Why is there always a drive.....MUD = KID
I am so hoping this rain stops as the pool is suppose to start being dug tomorrow and with all the mud this rain is producing, ugh......I'll have to bring extra clothes for Avrianna to change into, heehee.
Danny is doing better. He was just catching up on his sleep, I guess. Yesterday he finally pee'd on his own all by himself, Yay! I gave him/us one more week off of therapies, so I can get myself in check before people start coming over. Friday is our first therapy back in Wisconsin with PT here at the house. Danny has done some pretty amazing things in Florida so I hope we can show him off to Mr Dan (PT) here in Wisconsin.
With that said, I suppose I should get the rest of my trip stuff put away....yeap totally procratinating on this one, heehee.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Saturday, April 25, 2009

Settled In

Well I should be more settled in then I am, but Oh well. I am going shopping instead of cleaning and putting stuff away. I just wanted to post and let you know that Danny is doing much better. Yesterday he was awake and alert all day but no peeing......then today he has started to pee on his own, not great yet, but better. Today is very COLD and rainy so Dan's first day of racing was cancelled, ugh! So that means he got roped to go shopping with us, heehee. I will post more later. Hope you all are having a good day!
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Thursday, April 23, 2009

Sleeping

Well we got in last night at midnight. The trip wasn't too bad, well as good as 30 hours inside an RV can go, heehee. This morning I got to sleep in some, then the cleaning began, LOL. We were able to clean out the RV, clean it and get it put away. YIPPEE! Then inside I got the laundry done, and most of the things organized. I still have to put some of the clothing away, but we did pretty good in a days time. I even got a chance to go out to the new house and check it out. I did forget the camera, but I will be going back tomorrow for a meeting and I will remember to bring out the camera to up date you all with the progress. It's amazing!!!
I'm getting concerned about Danny though....go figure, nothing goes smoothly. I haven't seen the whites of his eyes since yesterday. He slept through the night, ALL day today, and it looks as if he is going to continue tonight. He didn't pee on his own ALL day either. You would think cathing him would get him to open his eyes at least alil, sigh. His stats are doing well, but I still don't like that he isn't waking up. I will be watching closely and if he isn't more awake tomorrow I will be bringing him in. He just wants to see Dr. Kasper, Danny missed him, LOL. I will keep you up with all of this.
Avrianna settled back in well. She played most of the afternoon with the neighbor girl and tomorrow it's suppose to be in the 80's, YAY, so I'm sure she will be outside most of tomorrow too.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.
Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Saturday, April 18, 2009

Pictures

Today we went on a walk around our community...so I thought what a great photo op time. You all know I love taking pictures....maybe I was a photographer in a past life. Seeing I love to take them, now if I could only be as good as a pro. Well here are my babes!Avrianna says I'm suppose to say they are in a JUNGLE....that's what she thinks this looks like.Ok ~ this is one of my personal favs cuz look......what for it......they are BOTH smiling :o). Did I get that, heehee.

I took this one after Danny's bath on his tummy time.....OMG isn't he an angel. Those eyes! I'm no professional photographer but I have to say .... not too bad :)
Mattman was successfully extubated this afternoon.....thank you prayer warriors! Danny and I can't wait till we can meet him personally. Those two boys are and do some much of the same things ~ BOYZ! I am so glad his spine surgery is over with and the recovery has began for Matt.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.
Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Friday, April 17, 2009

Sleepy & Congested ~2nd post

Well Danny is being in TRUE Danny form. This last few days he has been more lethargic then normal and now today is congested, ugh! I have started doing Mr Jiggles more, in hopes to knock the "crap" out, heehee. Leave it to Danny to be "off" right before we have to leave. The only bonus with this is I got to tear the condo apart, clean it, and put it back together again. Plus I have pretty much everything packed to go home, now I just have to get it in the RV. I am hoping we can spend the weekend enjoying the Florida weather, but something tells me Danny's got something up his sleeve.
Yesterday was Danny's last therapy at KIDspirit, so sad. Avrianna bawled the whole way home...she's going to miss that place too. Now doesn't that show how awesome a place and how wonderful the people are there! Love you guys, we will miss you!!
Today Danny was suppose to have his last therapies at the house from the school district, but Danny wouldn't wake up. So the Teacher was pretty much out to just pick up the equipment and I called the Speech therapist to tell her to not come out, it would be a waste of her time. Sorry :( .....we'll see you guys next Fall and I hope Danny cooperates for you guys better.
Dan flies in late Sunday night and I know we are all VERY excited to see him. I'm sure after 2 months of being alone with me the kids are sick of ME. They can't wait to have their daddy around. We plan on starting our travels back to WI on Tuesday so if things go well we should be back by Wednesday/Thursday. It all depends on how many times we stop.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Our friend Matt is out of surgery and doing well...keep praying for an easy extubation so he can be back on his bipap soon.
Thanks for following us!!

Tuesday, April 14, 2009

Head's Up

Today Danny had two hours of therapy...first hour was PT and the second was an assessment from Speech. Did I tell you all how much I LOVE KIDspirit and their staff?! Well they are AWESOME. Danny did well both hours of therapy and even managed to vocalize during Speech...I know that's a change for him. But the therapist's are all beautiful ladies so Danny likes to throw his charm on, LOL! I did manage to get this video of him after his long day and bath tonight. He is so Cute!! Hope you enjoy.
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Tomorrow Danny has his Assitive tech therapist here in the morning to show me some proximetry switches. I hope they will work for Danny! It's so exciting to see Danny ambitions of wanting to activate/play with things and if I can find a switch that will work with him instead of against him I think he will flourish even more.
Today was Avrianna's last day of Gymnastic Camp so tomorrow she will be able to get back into her routine again. She really had a blast playing there all day (6 hours) for the last 7 days. I'm sure we'll have issues with getting back into the swing of schoolwork, but if she wants me to take her to see The Hannah Montana movie she'll have to corporate with me, yeah I'm not beneath a good bribe, LOL.
This is our last week here in Florida and then back to the wonderful Wisconsin weather. So many mixed emotions there, we LOVE it here.....but we miss Daddy so very much. Dan will be flying in on Sunday (the count down has been going for the last month) and Avrianna is so excited that her Dad is going to be here. I also am very excited to see our new house and all the progress since we've been gone. I'm constantly hearing how beautiful it looks and how different it looks every day so needless to say I can't wait to see it ~ Sending out a HUGE Thank You to Custom Family Homes & all the sub contractors involved in helping make our dream home become a reality~ You guys ROCK
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for following us!!

Sunday, April 12, 2009

Easter w/Danny ~ part 2

He's UP, Yahoo!!! He got up at 1 this afternoon. Avrianna excited to "help" Danny open his things. He is in such a good mood, must have been the sleep, heehee. He was talk'n up a storm for awhile.(love this movie, but so needed the whole box of kleenex! Doesn't help Bailey is getting up there in age and health, sigh)Danny's new buddy ... Goofy who talks and sings when you touch his belly (Goofy's not Danny's, LOL)YAY!! Danny is sporting one of his new silly T shirts.....This is My Happy Shirt (Thanks Linda & Collin). He also got a This is My Lucky shirt.She is loving her new swimsuit from Linda & Collin. What a poser? She must get that from her dad, LOL.
We spent a few hours at the pool and now I'm going to make some dinner....I'm sure Avrianna is going to have us watch the movie's again. I think there is going to be a good Extreme Home Makeover tonight, so we'll have to break for that.
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN .

Easter

Happy Easter from The Osero's !!

The Easter basket hiding places.....I believe next year the bunny is going to have to get alil more creative .... 10 minutes and they were ALL found, heeheeI need to see if they make these bigger....she LOVES playing in here, but she's getting to BIG, darn kids they just don't listen. I tell them both to stop growing ALL the time, LOL
Ok ~ this is Easter right? All this is before my neighbors and good friends stopped by with a second hall. Boy the kids are LOVED!! They deserve it ~ but I'm going to need a bigger place to fit all their stuff, LOL. My Easter Lily that my Grandparents & Aunt/Uncle bought me finally bloomed and it smells awesome in the condo. SNIFFFFFFFFF! Danny once again has decided to sleep the Easter Holiday away....he's out! I'm kinda sad about that, but more sad that he can't participate in the day anyway, sigh! Always mixed emotions with the Holiday's. Once he wakes up we will open his things....it's driving Avrianna nuts as he got a movie she really wants to watch. Here he is with all he's "GEAR".
Making her phones calls back to WI wishing everyone a Happy Easter!Now this is the way to spend a Holiday.... He loves the pool...look how good he looks and how BIG he is. He's so damn handsome!!! If he wakes up this is what we plan on doing the rest of the day...and watching movies ~ Avrianna got High School Musical 3 and Danny got Marley and Me
Yes....she spends most of her time under water, she has gills I swear.
Yeap she has to come up to breathe once in a while!Thanks for checking in on us!! Wishing you All A VERY Happy Easter! If lil man wakes up I plan on getting some more pictures...stay tuned!
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN .

Saturday, April 11, 2009

The Big Foot

Please help support the kids and I in The Big Foot fundraising walk for The Fox Valley Sibling Support Network.

No one has a longer bond or a more powerful, positive impact on people with special needs than their brothers and sisters. So it is important that they have the information and the support needed to address concerns and celebrate the joys. The Fox Valley Sibling Support Network provides programs for adults and children who have siblings with special needs or long-term illnesses.

Please click HERE to donate your pledge. Or Register you/your family and join us on May 30 @ Plamann Park Appleton, WI and walk for this wonderful Group.