Productivity

This was my Saturday's project....whew, glad that was done!! GW is stocked let me tell you. I did some serious house cleaning out. No more baby clothes or toys found here, I'm done holding onto that fantasy. The van was packed front to back and the bags were falling out when I opened the back, yeap I held onto alot of stuff. Not anymore :)We have siding going up on the house.....LOVE IT!And the pool was poured....things are happening over there! Avrianna is practicing her front stroke,heeheeMonkey see Monkey do.......Hey where's the water? I'm ready :)In the inside the insulation was blown and the drywall is going up. It's just amazing to see the house "come to life". I'm so excited to go out to the house now because we are at the stage where everyday something is different.

I am having a hard time with the outbreak of the swine flu. I guess it is the fear of the unknown! With Danny's crappy immune system and both Avrianna & Dan not having spleens I'm ON GUARD. I've decided to cancel all of Danny's out patient therapies and I have the home bound school therapist on alert, if anyone is feeling the least bit off to cancel. Right now it's just not worth the risk....again the fear of the unknown. Until there is a better feel of what this "flu" is all about we will continue to be hermits, sigh.

I'm really excited to go to Biolife for my first donation of plasma/blood, tomorrow. Both my kids needed blood and plasma so I know all too well the need. I had donated 11" of my hair on two different occasions to Locks of Love...well with me keeping the short hair look I won't be doing that anymore....so donating plasma/blood is my next venture of paying it forward. I can't wait to start !!

I'm hoping this is the worst and this bruise starts to go away....augh. I can finally walk with out it hurting....geeze OPEN your EYES Lori!!Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Overwhelmed!

So the tension was building around me the last few days.....until yesterday and then I unloaded. I'm pretty good at holding in my frustrations and going with the flow, but watch out when I let it loose. As most of you know my family has usually something going on ALWAYS and I try very hard to run a CLEAN and ORGANIZED ship, but lately things are just not going my way, sigh. YES I have a serious issue.....OCD, heehee. I feel like I'm being pulled in every direction and getting NOWHERE, the ball was running down hill fast! With that being said I really shouldn't be sitting on here and doing nothing, but I'm in this rut and it's driving me NUTS. We have alot of fires in the pot lately and just not enough water to put them all out....it's like I hit each one with water and they start to smolder and then they start to rage again. I don't like that and I don't like my attitude lately so for that I am sorry to all that I've shown the ugly side of me lately. Poor Dan gets the brunt of it, but I think after yesterdays outburst from me he understands that I'm NOT superwoman. I try very hard to DO IT ALL, and I hate the fact that I can't. Then when I ask for help and it seems to go unheard frustrations flare even more. But today is better .... and tomorrow is another day :) Thanks for listening!
Our friend Matt is having his 2nd wash out surgery so please keep him in your thoughts today.

G-Tube

I've been asked a few times "How" Danny is able to get fed...so here is goes. Danny has what you call a floppy airway there are three medical terms that go with floppy airway, but I'll spare you. That's why he sounds like he is snoring even when awake, pauses his breathing when sleeping (sleep apnea), and can NOT swallow well (not even his own secretions). At birth we fed him with a NG tube which is a tube we inserted into his nose and it ran down into his stomach until he was 3 months and then he had a Gastrostomy feeding tube (G-tube) placed in his belly that goes directly into his stomach. There are many different kinds but Danny's uses a Mic-key button.

It comes like this for his home medical supply company and they deliver it right to our door. I replace his every 3 months at home, but I know some mom's have the doctor replace it.

This is what comes in the kit to replace it.

This is the actual "button" that is inserted into DannyYou can see a white port where I'm holding onto the tube....there I insert a syringe with water and that blows up the balloon, holding the button in place in his stomach. This is the hole without the button in....this hole will close up pretty quickly without having the tube in to hold it open (if not in after 30 minutes I heard you are looking at a possible surgery to have put back in, knock on wood, we've never had that issue.....but I've accidentally pulled it out 2 times). It really is like an earring hole.

This is a 3month old button after it is taken out.....GROSS! And the company says you could really keep it in for up to year., um NO I don't think so .Here is what his tube looks like without the extension for feeding him. The big scar that runs up and down his tummy is a surgery he had when he was 6 months old called a Nissen. He had such bad acid reflux he could throw up clear across a room and the acid was eating at his esophagus already. The Nissen prevents anything from coming out of his stomach any longer. So he can no longer throw up, burp, or have reflux.Here is the extension I have to connect to the button and from there we either connect a syringe full of food, syringes of his meds (all liquid), and his feeding pump which he uses through the night to be fed. All which goes directly into his stomach to bypass his airway. I vent him (relieve gas and any extra food) by pulling it out from here too. So when he is sick or bloated I can relieve him instantly :)

Despite his size Danny only get 32oz of liquid a day...he gets half (16oz) of formula and the other half (16oz) of water in a 24 hour day. THAT'S IT! Due to where his brain damage is and the lack of movement he gains weight at a very fast pace. Plus he MUST have his mom's metabolism so the lil guy is doomed to be "Big a Boy". I hope that made sense :) Thanks for being intersted in my family. Don't be afraid to ask I love to talk about my kids and educate so people feel more comfortable.

Not too much else to report....I'm still trying to get things back in order here. The bruise on my leg is still growing is size and wow the colors, LOL! Well not getting much done sitting on the computer so .... better get moving before my pissy attitude get worse as my projects keep staring me in the face and I just can't seem to have time to do them.

Oops!

Ok ~ this is what happens when you don't pay attention and OPEN your eyes. Yesterday after my family and I went out to lunch... I was loading Danny up in the full size van and I tripped over his lift backwards. UGH! This was just a nickel in size last night and when I got up this morning it was bigger, swollen, and it hurts like hell. I'm sure I bruised the muscle too, eek. So needless to say I hope I don't do that again. Don't worry Danny wasn't on the ramp yet so no harm no foul there, it's was just my plain stupidity :) This picture doesn't do the color justice, LOLThe newest hair do! Without glasses And with :) Avrianna was playing with the camera and wanted to take some pictures. She's pretty good!

Today I tore Avrianna's closet apart, removed all the clothes that she's outgrown (she needs to slow down, darn kids they just dont listen....I keep telling her not to grow up), and stocked it back up with summer clothes. Think positive :) summer PLEASE come soon. One room down and two more to go, this is a step in the right direction, YIPPEE!

Tomorrow Danny has his first therapy since we've been back from the school district with Mr Dan (PT). I'm so excited! Plus we are having our DME guy out tomorrow so we can get Danny to fit better in his chair, yeap this whole they don't listen and keep growing on me, sigh. His chair is less then 6 months old and we are already having to adjust, ugh. He is getting to be such a big boy. My mom came and watched the kids this afternoon and she was in awe with how well Danny held his head up high and was looking at her....really checking her out. Way to go buddy!

Thanks for praying for Matt today....he is out of surgery and off the tube, yay! They are going to have to redo this procedure on Saturday (to wash out the wound hoping to get rid of the infection) so please follow his story and send some prayers his way. His grandma was sent to the ER while visiting him so they really could use good vibes sent there way, sigh.

Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Pray for Matt

Sorry for the lack of updates lately but I've just been going in ALL directions. Not too much to report anyway so that is a good thing. Avrianna is well, Danny is doing great, and the house is coming along.
Danny had a PT eval today and he did wonderful, we are getting him ready for therapy during the summer as he will not be doing summer school through the school district. He still isn't totally peeing by himself everyday so I still have to cath him once or twice a day, but it's getting better.
I just signed Avrianna up for her summer camps and piano lessons. Let me tell you I have to run her somewhere once and even twice EVERY day to somewhere. Then add Danny's PT 2 times a week ..... we are going to be on the move ALL summer long.
The house is going great! I've been out there for a couple hours every day to get things in order and to help answer any questions. What a project!!! I can't wait to see it finished, WOW. Now on the important news...I just was updated that Danny's lil friend Matt was readmitted to the hospital this afternoon with a full blown staph infection. So if they can't get it under control they are going to have to reopen him back up and remove all the back rods he just had placed until he heals. Please pray for him....this is WAY too much for a lil (almost 3yr old) to go through. To read his updates and journals click HERE . Hang in there Matt we are praying very hard for you!!!

Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Rain, Rain, GO Away!!

It's raining, it's pouring the old man is snoring.....LOL. This is the second day in a row of rain, ugh. NO MORE RAIN!! How cold and depressing? It is pouring right now and the farmers field is starting to look like a pond not a field, sigh. I would like to be back in the fun and sun of Florida where it only rains for at most an hour not DAYS. We do have a fire in the fireplace and there's no other way to spend a day like this...with my family, drinking coffee, and sitting by the fire....Ahhhhhhh
So I'm going to post some happy stuff....Our House :) I would like to thank, from bottom of my heart.....Custom Family Homes (Mike, our general contractor) and all the sub contractors involved in helping us finish this home. Mike has gone above and beyond the call of duty to help maintain functionality and the "Country Sheek" in our home (with Mike having a daughter with some disabilities he understands). I am so excited about the house and it's progress now. I know the road hasn't been the smoothest but we are now on the right path of making this house our "Dream Home" not a nightmare. Thanks Mike, you are now apart of our family (not sure if that's a good thing?).
Well here are some updated pics as of Friday. The whole roof is now shingled and the window are in! They are starting the dryvit and siding.Our front entry way... cedar beamed peak...the wood was cleared and cut by Dan at The Newood in Spirit Falls, WI (Dan's home away from home in God's country). Thanks Dan it's Gorgeous!
The brick and stone starting to go on the garageDanny checking the place outAvrianna playing in the rocks/mud in the retaining walls by the walk out in the basement. Why is there always a drive.....MUD = KID

I am so hoping this rain stops as the pool is suppose to start being dug tomorrow and with all the mud this rain is producing, ugh......I'll have to bring extra clothes for Avrianna to change into, heehee.

Danny is doing better. He was just catching up on his sleep, I guess. Yesterday he finally pee'd on his own all by himself, Yay! I gave him/us one more week off of therapies, so I can get myself in check before people start coming over. Friday is our first therapy back in Wisconsin with PT here at the house. Danny has done some pretty amazing things in Florida so I hope we can show him off to Mr Dan (PT) here in Wisconsin.

With that said, I suppose I should get the rest of my trip stuff put away....yeap totally procratinating on this one, heehee.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Settled In

Well I should be more settled in then I am, but Oh well. I am going shopping instead of cleaning and putting stuff away. I just wanted to post and let you know that Danny is doing much better. Yesterday he was awake and alert all day but no peeing......then today he has started to pee on his own, not great yet, but better. Today is very COLD and rainy so Dan's first day of racing was cancelled, ugh! So that means he got roped to go shopping with us, heehee. I will post more later. Hope you all are having a good day!
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Sleeping

Well we got in last night at midnight. The trip wasn't too bad, well as good as 30 hours inside an RV can go, heehee. This morning I got to sleep in some, then the cleaning began, LOL. We were able to clean out the RV, clean it and get it put away. YIPPEE! Then inside I got the laundry done, and most of the things organized. I still have to put some of the clothing away, but we did pretty good in a days time. I even got a chance to go out to the new house and check it out. I did forget the camera, but I will be going back tomorrow for a meeting and I will remember to bring out the camera to up date you all with the progress. It's amazing!!!
I'm getting concerned about Danny though....go figure, nothing goes smoothly. I haven't seen the whites of his eyes since yesterday. He slept through the night, ALL day today, and it looks as if he is going to continue tonight. He didn't pee on his own ALL day either. You would think cathing him would get him to open his eyes at least alil, sigh. His stats are doing well, but I still don't like that he isn't waking up. I will be watching closely and if he isn't more awake tomorrow I will be bringing him in. He just wants to see Dr. Kasper, Danny missed him, LOL. I will keep you up with all of this.
Avrianna settled back in well. She played most of the afternoon with the neighbor girl and tomorrow it's suppose to be in the 80's, YAY, so I'm sure she will be outside most of tomorrow too.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.
Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

Wisconsin

We are about 5hrs from being back in the comforts of my own home, ahhhh. We left FL yesterday around 4:30 in the afternoon so we are doing well on time. The warm weather is following us back I think, yippee. Our trip has been a good one, really can't complain, but after being in the RV for over 24 hours I'm getting alil pissy, LOL. One minor mishap that could have been major but no worries it's all good :). I will post more when we get home.
Oh yeah, Matt went home today, woohoo! You rock Matt. Sorry we weren't able to connect. It will plan on seeing you this summer :0)
Well off to watch Marley N Me,

Sad day in Florida

We are leaving Florida ..... (sad face). So I will keep you up to date with our travels. Snow snow go away The Osero's are on their way :)

Pictures

Today we went on a walk around our community...so I thought what a great photo op time. You all know I love taking pictures....maybe I was a photographer in a past life. Seeing I love to take them, now if I could only be as good as a pro. Well here are my babes!Avrianna says I'm suppose to say they are in a JUNGLE....that's what she thinks this looks like.Ok ~ this is one of my personal favs cuz look......what for it......they are BOTH smiling :o). Did I get that, heehee.

I took this one after Danny's bath on his tummy time.....OMG isn't he an angel. Those eyes! I'm no professional photographer but I have to say .... not too bad :)

Mattman was successfully extubated this afternoon.....thank you prayer warriors! Danny and I can't wait till we can meet him personally. Those two boys are and do some much of the same things ~ BOYZ! I am so glad his spine surgery is over with and the recovery has began for Matt.

Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN.

Thanks for stopping by...please comment after the post or sign our guestbook to let us know you stopped in. We love reading your posts too :)

For Sale

Spring has sprung!! If looking to buy or you know someone looking to buy click for more info.

Click HERE for info on our 2006 Four Winds RV

Click HERE on our Ranch home 2213 E Shady Ln Neenah WIAny questions please contact me at osero@sbcglobal.net

Sleepy & Congested ~2nd post

Well Danny is being in TRUE Danny form. This last few days he has been more lethargic then normal and now today is congested, ugh! I have started doing Mr Jiggles more, in hopes to knock the "crap" out, heehee. Leave it to Danny to be "off" right before we have to leave. The only bonus with this is I got to tear the condo apart, clean it, and put it back together again. Plus I have pretty much everything packed to go home, now I just have to get it in the RV. I am hoping we can spend the weekend enjoying the Florida weather, but something tells me Danny's got something up his sleeve.
Yesterday was Danny's last therapy at KIDspirit, so sad. Avrianna bawled the whole way home...she's going to miss that place too. Now doesn't that show how awesome a place and how wonderful the people are there! Love you guys, we will miss you!!
Today Danny was suppose to have his last therapies at the house from the school district, but Danny wouldn't wake up. So the Teacher was pretty much out to just pick up the equipment and I called the Speech therapist to tell her to not come out, it would be a waste of her time. Sorry :( .....we'll see you guys next Fall and I hope Danny cooperates for you guys better.
Dan flies in late Sunday night and I know we are all VERY excited to see him. I'm sure after 2 months of being alone with me the kids are sick of ME. They can't wait to have their daddy around. We plan on starting our travels back to WI on Tuesday so if things go well we should be back by Wednesday/Thursday. It all depends on how many times we stop.
Our walk is on May 30th so ~ Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Our friend Matt is out of surgery and doing well...keep praying for an easy extubation so he can be back on his bipap soon.
Thanks for following us!!

Matt Eakins

Please keep our good Caring Bridge friend Mattman is your thoughts and prayers today. He underwent back/spine surgery this morning to correct his scoliosis. Please click on his name to follow his journey and send them kind, comforting, words of wisdom in his guestbook. We're thinking and praying for you very hard Matt!!!

Head's Up

Today Danny had two hours of therapy...first hour was PT and the second was an assessment from Speech. Did I tell you all how much I LOVE KIDspirit and their staff?! Well they are AWESOME. Danny did well both hours of therapy and even managed to vocalize during Speech...I know that's a change for him. But the therapist's are all beautiful ladies so Danny likes to throw his charm on, LOL! I did manage to get this video of him after his long day and bath tonight. He is so Cute!! Hope you enjoy.

Make a Smilebox slideshow

Tomorrow Danny has his Assitive tech therapist here in the morning to show me some proximetry switches. I hope they will work for Danny! It's so exciting to see Danny ambitions of wanting to activate/play with things and if I can find a switch that will work with him instead of against him I think he will flourish even more.
Today was Avrianna's last day of Gymnastic Camp so tomorrow she will be able to get back into her routine again. She really had a blast playing there all day (6 hours) for the last 7 days. I'm sure we'll have issues with getting back into the swing of schoolwork, but if she wants me to take her to see The Hannah Montana movie she'll have to corporate with me, yeah I'm not beneath a good bribe, LOL.
This is our last week here in Florida and then back to the wonderful Wisconsin weather. So many mixed emotions there, we LOVE it here.....but we miss Daddy so very much. Dan will be flying in on Sunday (the count down has been going for the last month) and Avrianna is so excited that her Dad is going to be here. I also am very excited to see our new house and all the progress since we've been gone. I'm constantly hearing how beautiful it looks and how different it looks every day so needless to say I can't wait to see it ~ Sending out a HUGE Thank You to Custom Family Homes & all the sub contractors involved in helping make our dream home become a reality~ You guys ROCK
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for following us!!

Easter w/Danny ~ part 2

He's UP, Yahoo!!! He got up at 1 this afternoon. Avrianna excited to "help" Danny open his things. He is in such a good mood, must have been the sleep, heehee. He was talk'n up a storm for awhile.(love this movie, but so needed the whole box of kleenex! Doesn't help Bailey is getting up there in age and health, sigh)Danny's new buddy ... Goofy who talks and sings when you touch his belly (Goofy's not Danny's, LOL)YAY!! Danny is sporting one of his new silly T shirts.....This is My Happy Shirt (Thanks Linda & Collin). He also got a This is My Lucky shirt.She is loving her new swimsuit from Linda & Collin. What a poser? She must get that from her dad, LOL.
We spent a few hours at the pool and now I'm going to make some dinner....I'm sure Avrianna is going to have us watch the movie's again. I think there is going to be a good Extreme Home Makeover tonight, so we'll have to break for that.
Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN .

Easter

Happy Easter from The Osero's !!

The Easter basket hiding places.....I believe next year the bunny is going to have to get alil more creative .... 10 minutes and they were ALL found, heeheeI need to see if they make these bigger....she LOVES playing in here, but she's getting to BIG, darn kids they just don't listen. I tell them both to stop growing ALL the time, LOL

Ok ~ this is Easter right? All this is before my neighbors and good friends stopped by with a second hall. Boy the kids are LOVED!! They deserve it ~ but I'm going to need a bigger place to fit all their stuff, LOL. My Easter Lily that my Grandparents & Aunt/Uncle bought me finally bloomed and it smells awesome in the condo. SNIFFFFFFFFF! Danny once again has decided to sleep the Easter Holiday away....he's out! I'm kinda sad about that, but more sad that he can't participate in the day anyway, sigh! Always mixed emotions with the Holiday's. Once he wakes up we will open his things....it's driving Avrianna nuts as he got a movie she really wants to watch. Here he is with all he's "GEAR".
Making her phones calls back to WI wishing everyone a Happy Easter!Now this is the way to spend a Holiday.... He loves the pool...look how good he looks and how BIG he is. He's so damn handsome!!! If he wakes up this is what we plan on doing the rest of the day...and watching movies ~ Avrianna got High School Musical 3 and Danny got Marley and Me
Yes....she spends most of her time under water, she has gills I swear.
Yeap she has to come up to breathe once in a while!Thanks for checking in on us!! Wishing you All A VERY Happy Easter! If lil man wakes up I plan on getting some more pictures...stay tuned!

Please pledge your donations HERE and sponsor us in our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN .