PT days ~ Happy Days!

Today was Danny's first appt with Ms Becky at Kid Spirit for PT and it went GREAT! YAY! I am so happy :) Danny enjoyed Ms Becky and the therapy time. She even put him on his belly first and he stayed awake the whole time....NO shutting down. He even vocalized for her, WOW!! Ms Becky is young and very excited to work with Dannyso has some good ideas to do with him. She is wonderful for Danny, amazing how you know within the first visit if it's going to work or not. Well she's great! Ms Becky came right over to Danny immediately and talked TO him and complimented HIM...not talking to him thru me. No hesitations or reservations with Danny for her and that just warms my heart. Danny is going to see her every Tuesday and Wednesday for an hour in the afternoon both days. WOW!! I can't say enough good things, so far, with Ms Becky and Kid Spirit. They are really on the ball! Everything I asked for they did right away, they asked the right questions, Ms Becky has exciting ambitions for Danny, and they are NOT scared of Danny. I can only hope that the good work continues on both Ms Becky and on Danny's part as I think this is the start of what I hope to be a wonderful therapy relationship, LOL, and I am going to continue it when we come back. I am so glad I looked into other means of PT for him out of the school system. THANKS Ms Becky and Ms Shauna for making my lil man & myself feel so welcome. What a GREAT first impression!

Other then PT for Danny things were pretty low key around here. It was soooo humid and sticky today I had to turn on the air conditioner for the first time since we've been here, wow! Avrianna went to the pool while Danny had PT but that was pretty much about it (other then school work) for her as she was tired and pale today. We turned on the air, she watched movies after school, and I scrubbed the floors (oh yay, but now they are clean once again for a lil while).

This Saturday I am taking the kids to a Fall Fest at a local YMCA so we should all have some fun together doing that. I signed the whole family up for a Jingle Bell Express (which is a passenger train ride that last about 2 hours with the Polar Express reading, Christmas crafts, and snacks) for when Dan comes back. Unfortunately we are going to miss the annual Christmas workshop (we will still be in FL) that we go to every year so I am hoping this will be just as fun to do. I am looking into getting tickets to Disney on Ice as the Arena they are going to be at in 2 weeks is about 5 minutes from us in FL. I think Avrianna will Love seeing a show on Ice. A Carnival has come to town and is about 1 mile away from our place so we might just have to check it out this weekend too.

Well going to turn in. Thanks for following our journey! Less then a month to go for the kids surgeries, boy does time cruise by fast (Dec 12). Take care!

Griffin is still in the hospital so please keep him and his family in your thoughts! Thanks

Veterans Day!!!

THANK YOU!! To all the men and women who gave us our freedom. I know that you gave up SO much for us.... good and bad.....you never are the same as I find some people find themselves in the military and some lost themselves not only physically but mentally in the military and for that I THANK YOU! Going out into the unknown and not really knowing what you'll find is a step that not all too many can move towards. You truely are HERO'S, ALL OF YOU! This day is for you!

Tomorrow afternoon is Danny's first meeting with PT and then Friday at 9am is our next meeting for therapies, that will be with the school system. Not too impressed with the time of the appt as we live about 45 minutes away from the place so I need to definately be on my game with all the treatments, cathing, feeding, meds, dressing, etc to get all of us out the door by 8am. We'll see how that goes, I just don't have the warm fuzzy for them....they have let my son down in SOOOO many ways. I can only hope that I can wipe the slate clean on Friday and they can get their crap together. Put the past behind me, LOL

Friday morning my Aunt is leaving to go back to Wisconsin so the house will be back to "normal" for us. At least after all the hustle and bustle of Friday mornings appt,LOL I am looking into some fun stuff to do around the local area here so we'll get out and do something once in awhile. As Bonnie LOVES to shop so we've been out almost everyday and I know once she leaves things will calm down ALOT! Love her being here but still nice to get back to our routines!

Just got an update from Connie as she is packing up Danny's BFF Griffin to go to the ER, please keep them in your thoughts. Get better Grif!!!!!!

Sad eyes

Well Dan left this evening back home for Wisconsin and Ms Avrianna is VERY sad. Those two are two peas in a pod let me tell you! He has work to do with new prospective properties (Dan is in real estate development), get ready for hunting, and over see the new house project. He can never sit still for too long and he doesn't enjoy pool and sun time. LOL! The fair skin and red hair tends to make him NOT like being outdoors around here. But as he was getting ready to head back home to the rain, snow and cold weather he was as happy as a lil kid in a candy store. He just LOVES this time of year in Wisconsin (as you can tell we are completely opposite with climates, heehee). He is coming back in the beginning of December to help us drive back up to Wisconsin so it will be a good 3 weeks before he blesses us with his presence. Here is some pictures taken this afternoon just before we had to drop him off at the airport!




Danny is now back to his old self and has now peed for two day straight all on his own, YAY! He woke up alittle congested today, but as the day went on he cleared up (plus an extra Mr. Jiggles helped there too).

Jayden's Equipment

Thanks for your interest.....

The Gait trainer is a Rifton Pacer small with ALL the attachments and
tray. Brand new NEVER used. Purple in color

The Special Tomatoe Wheelchair is a small with the tray, floor base,
and umbrella stroller. It can be also used a car seat and approved
for airlines. This will grow will child till about 7.

They live in Louisville Kentucky and would prefer pick up but can do
shipping (costs onto you). I live part time in Florida and part time
in Wisconsin I would be willing to pick up and deliver if you are
located on my routed to and from. You can contact me or Vicki
directly her cell # is 502-836-7752 and Angel Jayden's website is
www.caringbridge.org/visit/jayden

She paid $6000.00 for both less then a year ago so......she's not
sure what to ask for so make an offer, this is very hard on her.
Thanks again for your interest!

Comforts of Home!

Dan just installed Danny's swing in the ceiling of our condo so now Danny can swing all day if he wants too. Doesn't he look comfy?


Still not too much to report here. I was on the phone all morning trying to get something scheduled for Danny's therapies. I think I found a GOOD lead but won't know till later today or tomorrow.
Please keep Danny's BFF in your thoughts as he was in ER last night....he had pnuemonia in BOTH lungs, WOW!~ Praying for a speedy recovery Grif!!!!!

For Sale

I am trying to help out a friend, Vicki (Angel Jayden's mom), she looking to sell her son's BRAND NEW Special Tomato sitting system and BRAND NEW gait trainer. If anyone is interested in getting information on it let me know and I can get it for you or click on Jayden's link to the left and go to Jayden's site.
Not too much to report around here. Today we did some shopping and then to the pool. It was too cool to get Danny in the water but the sunshine felt GREAT! I am still looking into getting therapies for him out of the school system. I will post later Avrianna is patiently waiting to kick my butt in UNO. Take care

Working Plumbing!

I think I figured out the issues with Danny and his peepee problems. I also realized yesterday that he hadn't had a bowel movement in four days either. So after the babylax enema, some much needed assistance, and three (yes three) diapers later I think he is cleaned out, YAY! Danny even peed twice today all by himself. So I guess constipation and lack of peepee go hand in hand. Poor thing! He even gave me a few smiles today.
Today after her school work was done, Avrianna hung out by the pool with Aunt Bonnie and Grandma/pa Kohl. While Dan, Danny and myself ran some errands. Tomorrow is going to be Danny and my day to sit and relax by the pool too as we haven't been able to get to the pool yet.
Unfortunately once AGAIN the Lee County School system has failed my son! I really had high hopes for them but nope.......they knew I was coming here over a month ago and they just now scheduled an IEP update for Nov 14th. WTF!! So by the time they get to the meeting and start scheduling something for him Thanksgiving break will be here and then we leave. ARGH! I am going to start calling around for at least a PT tomorrow. I'm sure the Children's Hospital that I took Avrianna to this spring would have therapist there or at least a lead to someone. I wanted to really work out and stretch lil man before surgery so I am going to have to step up to the plate even more if I can't find anyone....or he'll have to bring his WI therapist with us when we come down here, heehee.
Tomorrow night we will have to watch the election to see how it turns out. I'm not big on politics but like to see how it ends. My opinion is they all lie and cheat just to get the votes they want then they don't follow through. It is what it is and we'll have to deal with the outcome....which ever one is elected they alot of work to do and alot eyes on them.

Hello - I didn't get lost!

Well we made it to the Sunny State (FLORIDA)! I had phone issues when we first got here so I couldn't get the computer to work either. Today I had a service guy come over and walla we have Internet again. YIPPEE!

First if you haven't seen yet. Little Reesie earned her wings and of all days on her 1st birthday! I can't even imagine how difficult it is to go through the lose of your own child. Lil Reesie is no longer suffering or hooked up to tubes but I bet enjoying a BIG piece of chocolate cake for her BIG birthday. You will be missed princess Reesie!!



The trip down went well, but very LONG! The kids were wonderful once again. I think they do better then I on this ride, LOL. We got on the road about 3pm on Tuesday and stopped around Indy for the night to catch a few zzzz's in a Travel Plaza. Then in the morning we got up and drove into Louisville where the family got to meet Angel Jayden's mom. We sat and chatted it up for about 2 hours and the time just flew by. I am so GLAD we got to meet you Vicki!! We will definitely have to make it a regular stop on our way through. I know it wasn't going to be an easy visit for you so I just want to let you know how much I appreciated seeing you. I am even more in awe of you and you truly inspire me. THANK YOU!! :) I hope we can have a great friendship.
After our visit with Vicki we packed up again into the RV and we made it to just south of Atlanta, GA before stopping for a few more of those zzz's. Thursday we made it here and I went into go mode to get everything put away and back in order. By Friday afternoon everything was done and put away. YAY! Then Dan and I took the kids to a local mall here and we all went trick r treating there. At first I though it was just something to do...to take them out but how much fun at a mall? Well we had a BLAST! It was so nice the kids loved it so I think we will do that kind of trick r treating every year. The mall is a HUGE outdoor mall that is paved with bricks so Danny was laughing up a storm as his wheelchair was going bumpity bump bump. He is SUCH a boy, rougher the better. He just cracks me up! Avrianna said she wants to do that again as just about every store had someone sitting out by their doors giving out candy.....it was great, still outside, still walking, and safe. With me not knowing the area VERY well and most of the area being gated communities I wasn't sure where we were going to go so I am happy to see the mall put it on. Here are my lil Trick R Treaters!! Aren't they the cutest, LOL.



Since being down here I have had only one REALLY BIG issue. Lil Man has decided he shouldn't have to pee AT ALL by himself for the last two days now and the 3 days before this it was at least once a day. So going from maybe 2X a week to 2-4x a day is getting concerning. I'm not sure why the sudden change but if it doesn't clear by Monday I am going to call Dr Kasper and see if he has any ideas. Today I had cath'd him and got (this is just one cathing) 17oz. HOLY CRAP! His poor lil belly was HUGE! When he woke up this morning his diaper was wet and I was so excited, but he must have peed very early in the am so by lunch time when I checked him again and he was dry I didn't think much of it (as I had thought it was about 4-5hrs) till I laid him down to cath him and his lil tummy stuck out so far. I couldn't believe it! So now ALL day I cath'd him. I hope tomorrow is a better day for the pee pee thing.

I will post more often now that the phone/computer line is up and running. Take care!

Ready to Go

Sorry the late post. Boy does time get away from me! Well I tore the house apart and put it back together. It is ALL clean! The kids are all packed and ready to be in the sunny state once again. It was SNOWING outside today, yeap you heard me snowing! YUCK, we are leaving just in time. I don't like snow and cold, at all! Today I busted my butt and got pretty much everything done. I just have a few odds and ends to get together tomorrow. Danny slept today till 3 in the afternoon and went to bed with no problems at about 10:45, I am keeping my fingers crossed that he isn't brewing anything and that is was just a growth spurt (like he needs any more of those, LOL). In the morning Danny and I are heading up to Green Bay to get his pump filled with new meds and then back home to pack up in the RV then we're off. I will post once we get there and get settled in. We are planning on taking the kids trick r treating so we need to be there by Friday. Plus all of Danny's supplies, food, ect. are being shipped from WI on Wednesday so I need to beat them there as I don't want the stuff sitting outside. I hope to meet one of the Caring Bridge mom's along the way down this time in Kentucky I am excited to meet her as I know she has had a rough go of things as she lost her son this summer. I can't wait to meet her in person and let her know how much she and her son's story had inspired me and touched my heart.

Here my lil man in his new wheels. This is a Solara by Invacare. He loves blue so we had it blue this time. The additional head piece you see that wraps around the base of his head over his shoulders is called the "Hawk" head rest. I am only going to be using this one primarly when he is in therapy and they are trying to get him to use better head control. For the most part his LOVES it and so do I. Dan had to make some adjustments so that we could transport him in the van with the EZ lock system and now all is well. Avrianna keeps saying he is "handsome in his new chair". What an awesome big sister she is!!





Here's my lil birthday girl at her party. I decorated the cake for her...she loved it! The party was a fun time there ended up being 12 kids over for the "kids" party and I had them make spider bracelets out of pipe cleaners and then we had them put there hands in bags and they had to figure out what was in there ie: peeled grapes were eye balls, wet cold carrots were fingers, cooked spaghetti noodles in oil were guts, and mushed up finger jello was brains. After the games she opened her presents they all had cake and ice cream and then went downstairs to burn off some energy. It was a great time. After the kiddos left we had a second swing of party goers....a family party which we ended up having about 25 people, WOW! Dan and I made smoked turkey and roasted a ham with ALL the fixings. Just like a Thanksgiving dinner! (I said because I will be gone for turkey day that it was my thanksgiving then, LOL.)It was alot of work but it turned out to be wonderful. She's getting so big so fast, sigh!

Isn't she the best witch....we'll I'm pretty partial though.

Happy Birthday Avrianna !!

Well 6 years ago life as I knew it was going to change. At about 7:30am on October 24th my water broke 8weeks prematurely and my family life was going to start. With many unknowns of what family life was going to be like I was filled with anxiety. Knowing the "baby" (as I didn't know what the baby was) was early the picture I had in my head of the delivery wasn't to be true. There was about 8 people in the room so the whole private intimate thing went out the window. There was a team of nurses and doctors for myself and then also one for the bundle of joy as we knew she was going to need help once out in the world. The delivery went pretty well as I was smiling and joking around with family and friends (without any drugs, LOL) up until about 1 hour before the birth. I pushed for about 15 minutes and out SHE came. I at that moment 4:46pm became MOM to Avrianna Lee. It was so exciting and scary all in the same moment as we had no idea what the future had in store for our premature little GIRL. All of my dreams had come true....I had a little girl! Avrianna has been through alot in her life, but has overcome most of the obstacles set in her way. I am so proud to be her mom! HAPPY BIRTHDAY AVRIANNA!! I will post with pictures of her birthday party that is on Saturday! Dan and I are taking her to see High School Musical 3 on her birthday. Then I am off for awhile to go decorate her cake at my grama's. I hope I can get the look she is going for as Avrianna is having a Halloween theme birthday party with costumes and all so she wants her cake to have spiders, witches, ghosts, ect on it so I will do my best! :)

Fall Time!

We are back from The Shack and it was wonderful! The weather was great. Great to cut fire wood (thanks Chris for watching the kids for awhile so I didn't have to worry about them), have camp fires, and to just hang out. It rained one evening for maybe an hour, but other then that it was perfect fall weather. Unfortunately we missed the fall colors and pretty much everything had fallen off the trees already, but still it was beautiful. Danny did great, except for his machines during the night, but that I'll take it. For whatever reason his machines decided to routinely start going off at different times EVERY night, so I didn't sleep very well but he stayed healthy, YAY! Avrianna was not totally on her game but did very well. She seemed to be more tired and "off" but we still had a nice time. Here are some pictures of our weekend!
We gave Avrianna an early birthday present....a pink helmet so she's safe riding around on the 4 wheeler with her dad!



Thanks Uncle Tim and Amanda for Avrianna's birthday present...she already has worn the Hannah Montana PJ's, read one book to her brother, and is singing away in the microphone (she'll have to come over and sing you a concert, LOL) You will be missed at the party!
Probably should have her wear the helmet when hanging out on the CAT too, heehee. These two are two pees in a pod!



Here are some pictures of my deer hunter at heart!! :)




I know my Aunt took some great pictures too so once I get them I will post them on here too.

This morning our Adoption social worker was out for about 3 hours for our individual interviews. We need to get finger printed yet, complete a 16 hour training, and then we have 2 more home visits to have. I believe we if everything goes smoothly we are looking at getting completed with the home study process of the adoption around February. Then the waiting game to find the right match for our family. WOW how exciting!
Today during Avrianna's recess the neighbor behind us was harvesting his crops that were across the street from the house. So off she went to see if she could get a ride with him for awhile. THANKS, Allen! Avrianna just loves riding around with you!




Today Danny had Speech, Ms Maria and Mr Scott over for therapy and boy was Danny in a good mood. I think it was because Mr Scott was wearing a spider hat, heehee...I will try and get the picture that was taken, LOL. This is the last week of therapies before we leave for the sunny state. I was in contact with the teacher down in Florida today to make sure things should be in place for us when Danny gets down there. We'll see!
Well going to turn in for the evening. Hope all is well with you! Take care

Glue and more Glue

Well we made it to Milwaukee for Danny's sleep study on time......but then sat and waited for an hour before someone came into the room to start hooking Danny up. We actually hit no traffic on the way there, now that is something to write about, Yay! Danny and I sat and cuddled in the bed watching Aladdin while we waited. I was starting to put my guard on when there as they didn't seem to have their stuff together ie: running around, no one came into the room for over an hour to even acknowledge, then the orders were wrong in their system for his settings, and the glue squirted all over the pillow right next to his face (this is like super glue). But they redeemed their selves by not putting on alot of tape on him as the last time not only did he get 2 Huge pressure soars on his face from the mask but he had an allergic reaction to all the tape they have to put on his face, ugh. But not this time, Yay! Well after he was all set up he actually fell asleep sooner then normal so the testing could begin. I sat in the dark, with the hall light illuminating just enough light for me to address the Christmas card envelopes (yeap there is that OCD kicking in, heehee)so there's another project off my to due list. Yeah!! I slept like crap on those chairs, but didn't go in thinking I was going to get a good nights sleep, but at least lil man did. There were two other children that were being tested last night too, but they were not as cooperative as my angel. They were up Very Very Very early (like 1 am and didn't fall back asleep, so they left around 2-3 as they were making alot of noise.) But lil man didn't hear it so he slept through it all, Yay! They woke us up at 5:30 and by 6 we were on the road. Boy I can't believe the traffic at that hour of the morning in Milwaukee, good thing we don't drive that every day, YUCK! I should get the results in about a week. He seemed to do ok, but I don't see or hear any of the monitors so really won't know till I talk with the doctor. The tech did mention he "paused" just a few times, but recovered quickly so maybe he is starting to have central apnea, we'll see what the doc has to say. We got home and I had to wash his hair three times and there is STILL glue in there, ugh. It should be all out by tomorrow. No red marks or pressure soars either so I'm one happy momma!
Physical therapy was already at the house at 10 this morning and we are waiting for OT around 2. So in the mean time I am making all the dips and some of the meals ahead of time for our trip up North. I'm hoping the weather corporates with us.
Oh yeah the wheelchair. ...... it's here but not all the right pieces came in so Danny still can't use it yet. I had this misconception that a wheelchair is a wheelchair, until the new one came in my door. It was like seeing his first one all over again and all those emotions. This one is so much bigger and we needed to get alot of special pieces for Danny as he is becoming more complicated, sigh! So it's been another adjustment on my part, but I'll get over it as long as he is comfortable and I can get him around comfortably. I will post pictures when it is all set up and right for him.
Please take a few and stop by Angel Lilie's site.....today would have been her 2nd birthday! What an awesome family! Happy Birthday Lilie!!!!

Sleep Study

Tomorrow Danny has a sleep study done down in Milwaukee. We need to be there at 6:30pm, then they hook him up to wires and monitors, put his bipap on, lights off and no noise after 8pm. I get to sleep on a chair that converts into the most comfy bed, NOT! But I won't be sleeping on it long as they wake Danny up between 4:30-5am, poke his finger, rip off all the tape that they put on him, take off the wires in his hair and then send us off on our way which will be about 5:30-6, YIKES! So needless to say the closest Golden Arches we see we will be stopping at for lots and lots of coffee. To come home and try and strip the glue out of his hair, YUCK! I can only hope this study shows ALOT better results now that he is using the Bipap then before. Cross your fingers!!! LOL So tomorrow Danny has PT at Theda in the morning, I have a meeting at 1pm, take Avrianna to Pioneers once her schooling gets done, and then off to Milwaukee (1.5 hours away). To come home on Thursday for a long soak in the tub to try and get the glue out of Danny's hair, PT here at the house at 10am, OT at the house at 2:15 and then Avrianna to swim after schooling. Friday I will be making all the food in the morning that I need to prepare for our weekend away up North. Then this weekend I'm going to sit and relax....I hope, LOL.
Avrianna had a great time spending time over night at her Nanny's. She can't wait till she can go again.

Night Out!

I got to get out of the house tonight for 5 hours with NO kids. WOW! It was great and now refreshed to take it all on again. I went out to the monthly support group in my local area called Parent 4 Parent hosted thru the Easter Seals program. I have been going there for the last 3yrs. It was great! Alot of moms had shown up this time and even a new mom. It is great getting together with them.......some of us even got together alittle earlier and met for a taco bar and happy hour before the meeting. It was so nice to get out and not have all the worries and attention when the kids are with... to just sit back and RELAX for awhile. Avrianna went with my mom (Nanny's)for the night. They are going to hang out tomorrow for a girls day! Dan and Danny were chilln out listening to music and watching tv tonight. Danny even managed to give his Daddy a present while I was gone......a stinky one, heehee! I didn't even have to plan it, LOL!
Avrianna's labs and ultrasound came out ok. So she must be fighting something off and so far her body is doing what it's suppose to. I don't have one of the test results back yet, to see how well her body is reproducing new blood cells, but I should have it by tomorrow.
Tomorrow I am going to get started on Christmas wrapping, yes this too goes with me "OCD", LOL, and I have most of the shopping done I just have to wrap it and sort them out. I should get a good start to it with Avrianna gone for the day tomorrow. Then I can get a good feel of what I need to get yet. One Question for all of you Wii players out there. I am thinking about getting this for our BIG family gift and I have no clue what's what with video games...any advise?
This weekend we plan on going up North with my Aunt and Uncle to show them "the Shack" that Dan talks so highly about. He really loves it up there....God's country!
Hope you are going well. Take care!

Color is off ?!?

All day today Ms Avrianna's color has gotten more pale. I took her to the fall fest this morning at a local park where she was able to play with some friends, paint a pumpkin, and draw some pictures. After that we went to the store to pick out a birthday present for one of her friends. I noticed her pale skin and a blister starting on her lip when we got out of the van to go shopping. We came home after shopping to eat some lunch and she ate really well and had energy still so I let her go next door to the birthday party for alittle while. She had fun but I did notice she was still getting pale and now she was an emotional thing so I knew she was getting tired. We took a ride down to the new house site to see how that was going and take some more pictures....the basement is being poured. Yay! Dan and I decided to take the kids to go see the movie Wall E as Avrianna has been asking forever. This was Danny second show at the theaters and he enjoyed it... smiling and even was chatting it up a lil bit (I had to have a talk with him and let him know he can't talk in there as others were trying to watch the movie too, LOL). Avrianna liked the movie too but about half way through she said her tummy was starting to hurt, ugh. She fell asleep on the way home from the movies....about 8pm which is totally NOT her, sigh. So I've emailed Dr K to get his opinion and we'll see how she is in the morning. I will try to post in the morning to let you guys know how she is. Probably bought herself at the very least a blood count tomorrow at the hospital.

Amazing

What an AWESOME company! They really truely care about the well being of our kiddos.
Just wanted to share...please click on My New Normal to the left on the sites I follow. What a wonderful story to share!!! Lil Makily is getting her safe bed, finally. People just are not that nice these days especially when dealing with $'s and handicap equipment, so wanted to share! Please read it. I am so happy for them, her mom has fought so hard for this bed and has been denied many many times.
Not too much to report here. But just wanted to share a good act of kindness for once.
Ohhhhhhhhhhhhh yeah - Danny gets his new wheels today! I will post pictures after they bring it over.
Take care! Don't count the days......Make the days COUNT!

Shots, shots, and more shots

Yesterday's ultra sound went well. Avrianna was excited to be able to see her insides on the screen. I haven't heard as of yet how everything (liver, gall bladder, and spleen) looked but I'm pretty sure they are all alittle "off".
We came home after wards and ate a big breakfast with bacon and eggs that Dan had made for us and then completed her school work. After that Danny had speech here at the house and he did very well with them. Then off to the hospital to have PT. He did pretty well with that too. Ms Tina is trying to get him to sit straighter/more upright in his chair and he doesn't due so hot with that. I'm sure it is very discomforting with his puck getting caught up in his ribs and sitting on his hip but he will tolerate it for alittle while. His poor little face just says it all, he goes from flushed and warm to VERY pale white and cold. You have to really be watching him when he is sitting up wards as his blood pressure jumps all over the board. I see her point in getting him to sit up but really don't think it is going to be a real option as least for a LONG while.
This morning the kids and I went to see Dr Kasper for Ms Avrianna's annual physical. She is squared....45lbs and 45" high. Everything is good with her. She is very excited that she won't have to do many blood draws after the surgery. That is a BIG plus in her book. But due to having the surgery soon she needed some vaccinations today and that wasn't very high on her list today. I still think my ears are ringing, LOL. It took myself, Dr K, and the nurse to hold her down. What a strong lil thing when the anxiety kicks in. She is now vaccinated for the pnuemovax, meningitis, and the flu. She's NOT a happy camper at all. It did make her feel alittle better when she knew her brother was getting the flu and pnuemovax and I was getting the flu too but not enough for her to crack a smile. Tonight she has Pioneer's so that should get her mind off the shots.
Well off to finish her schooling. Take care!

Busy, Busy

I guess I am going to make up for tomorrow, LOL. Avrianna and I have to be at the hospital by 7:30am for her ultrasound on her gall bladder and spleen. The doctors want one done before they remove them, not sure why, but whatever. Avrianna is anxious as she knows she can't eat or drink ANYTHING now till after the ultrasound. So Dan told her he was going to have a big breakfast spread waiting for her when we get home. So the boys are going to get ready for the day by themselves...oh no watch out for the flannels, heehee.
After that Danny has speech at the house from 2:15-3:15 and then Physical therapy at the hospital from 4-5. Danny will be wiped by dinner that's for sure. Don't forget getting Avrianna's schooling done in there. She is doing SOOOO well with the 1st grade curriculum. I'm so proud of her, I think at the rate she is going she'll be starting some 2nd grade "fun" stuff before the spring starts. Then we are meeting a good family friend out for dinner at Hu Hot....MMMMMMMMMMMMMM.
Well probably won't get a chance to post tomorrow, but you never know!
Found this on another kiddos site and just LOVE it.... Don't count the days, make the days COUNT!
Take care

Adoption

Me AGAIN! Wow three posts in one day, wooooh. We met with the adoption social worker and she was very nice. I think it's going to be a great match! She is very accommodating with our families life style and she's very easy to talk to. I hope and pray this process goes alot smoother then the last attempt. She seems VERY sincere in helping us match up with a child for our family. I'm SOOOOOOOOOOOO excited to be on this journey again. Avrianna was so happy to see her too as Avrianna knows that this lady is going to help her get a (sister she hopes) sibling. Thanks for all of your support with making our dream of a bigger family come true. Well off to make dinner just wanted to fill you in. It's a GREAT day!

Unfortunatly Danny was sick last Monday and Mr. Dan (PT) was sick today so yet another Monday Danny didn't make it to water therapy. Cross you fingers it works for next Monday! Danny's new wheelchair and floor sitter are going to be delivered here at the house on Friday, during PT so Mr Dan can see his new wheels and talk with Becky about it.
Take care!

Surgery Change

Ok another spare of the moment thing, I'm know for that! Both surgeries are now scheduled for December 12th at 7:30am. It actually works out better this way for everyone, except lil man is going to be in his brace/cast for his 5th Birthday and Christmas. I'm hoping I don't have to change schedules again but for now the official word it the 12th. I will keep you posted with that!
Sorry another short post but the adoption social worker will be here shortly so need to get going.