New Travels

Our family was able to see so much more of the US, then I ever could have thought we would have, having this RV. It allowed the whole family to travel together along with ALL the equipment that Danny requires. There are so many memories that were made in this RV. I am for ever grateful to have had this so Danny could be apart of our family travels, and go comfortably. With that being said ..... Danny has outgrown the bathroom/shower so....................We welcome our new RIDE ~ to more n more adventures. It's 3 ft longer then our old RV so we'll have more space for Danny's equipment. But it's a BUS so it will take awhile for me to get used to driving it. I should catch on pretty quickly.... I can adapt ~ LOL
It's the same floor plan as our old RV which is GREAT...we LOVED the other one. If it wasn't for not being able to bath the boy we'd still have it.except this one has bunk beds for the kids to sleep in.....who do you think is getting the top? Avrianna is so excited to go on vacation.Now we just have to get it here and I can start the transition of making it OUR home on wheels. Thankfully I have some time to get everything in order before we roll out in it for the 4th of July. That will be a nice dry run of 3 days in it before we leave for our week long trip to St. Louis M.O. Once the RV gets here then we have to make sure the car dolly we have with Danny's Van on it will ride nicely behind this bus. I hope so or we'll have to have use some creative thinking.

Last month a spent a very long, cold, rainy weekend and went searching for a car, to tool around in. When I don't have Danny with me I want to leave the Van so if Danny needed to go anywhere the nurses have the availability to take him out. So I wanted to find a nice but sporty looking vehicle for myself. I can't remember the last time a I had a car to drive. Well after three days of test driving cars and then playing the seesaw game on price. ..... Momma got herself a new ride :)

Avrianna is just ITCHING for school to be done. I can't say I blame her with the "spotty" days of warm weather we've been having. BUT with every really nice day we've had here it has ended in tornado's. UNACCEPTABLE ~ Mother Nature!! I really wonder who pissed her off this year. Things NEED to calm down not just here but all over. My thoughts n prayers are with the families that have been effected by the destruction, injuries, and even deaths with the tornado's the last few weeks. It's just devastating !

Danny is continuing to hold his own but now, once again, has some significant ear drainage. It's nothing really new with him as he gets ear infections ALL the time....even WITH tubes in. Sigh! Danny still requires oxygen at night but during the day he has been stable. We still haven't heard back from CHOW about the Cpap over nite......but that is NOT surprising. Gotta LOVE those pediatric specialists....NOT ~ Their communication skills SUCK!

I am doing VERY well. I do believe the new MS med I am on is doing the trick (knocking on wood). I go back down to Milwaukee for another treatment on Wednesday in coordination with some of Danny's appts to CHOW. It will be nice to have Aleana and Danny along with me :) I went to the dermatologist yesterday for my annual check over and of course he found something "suspicious" on my side. so it was biopsied and I will have the results in 7-10 days. Now I have a dime size hole on my side, sigh. Then I had gotten a wart frozen off my foot. I've been dealing with this thing for years with the same old...."It'll go away on it's own" speech. Well it never did after 10 years so I've had to frozen now 3 times and cauterized off once in the last 1.5 years.....it keeps coming back, grrrrr. I guess I will just have to continue to deal with it as, now with me being on Immune suppressant meds for my MS and warts being a virus, it's going to be VERY difficult to get rid of. I don't know what was so different yesterday BUT this last freeze fest was AWFUL and very PAINFUL so now I'm hobbling around because my foot is so swollen and painful I can't put pressure on it. It's always something I tell ya.

I hope everyone has as wonderful Memorial Day....be safe. Please remember our fallen and current veterans who put their lives on the line to give us the freedom we have today. GOD BLESS AMERICA!!