Here's a picture of Danny's and his BFF Griffin when he was over visiting last week. Boy time flies...look how BIG they are
Danny continues to do well at home. What a difference! He went in to see the GI doctor yesterday. He was impressed that Danny was off the IV and TPN already, but not too impressed that Danny is still gaining weight....he weighed in at 66 lbs, OMG! Did you forget to tell Danny he is only 5!! So we decreased his food, again. He is getting the equivalent of less then 2 cans of soda a day, only 22 oz a day. He sodium and protein level also continue to drop so we have to limit the amount of "free" fluid he is getting as his body isn't absorbing them properly it is just getting rid of it, from what I understand. So this will be a work in progress and we will have to monitor it VERY CLOSELY. We will be doing labs and having to cath him regularly to get a more accurate test of how his body is doing. I had an IEP for Danny yesterday about his school therapies so now we are all on the same page of what is expected from all of us and they will be starting to come out regularly next week. I am also starting him with PT at the local hospital as I feel Danny needs to have more of medical based PT in addition to the academic part the school is doing. Especially now since this last illness he needs to regain most of the abilities he used to have as he has lost ALOT of what he could do. **SIGH**
I enrolled Avrianna in the Fox Valley Wave Swim Team this week. Here's my lil swimmer! Boy what a work out for her. They swim non stop for an hour.....her endurance is definitely being pushed in this program. This is what I was looking for. She is really enjoying it and making new friends in the process. They swim every Mon, Tues, Thurs, & Fri nights for an hour and then she can go to the meets on the weekends if we want. I'm sure we won't go to alot of them at first but as the years go on, we might.
Swimming her laps.....she is so tired by the end of the "training", but I think this is a good thing.
She has never dove off of anything and the first night she got right up there and attempted it. WOW ~ Way to Go Avrianna!
Well need to get going Papa Dan (Dan's Dad) and Claudia are coming down and we are going to go out to eat and then come back home to enjoy the stories and maybe a few cocktails, heehee. They are staying longer then usual so Claudia and I are going to get an opportunity to get some shopping in this time, tomorrow. And we all know how much I LOVE to shop ~ Woohoo! Can't wait!Please continue to keep our lil blog friend Moriah and her family in your thoughts in prayers, she is fighting for her life! Praying so VERY hard for you Moriah
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