Danny has been doing amazingly great this last week. Just a few bouts of discomfort but that's still to be expected as he still is only 2 months out from a MAJOR surgery (done twice). He's starting to tolerate his feeding better also :) I've decided to increase his pain meds on the bad days and wait it out alil longer for more information. I'm going to schedule a CT scan of his hip to see if there is anything we are missing. At least there is no added pain in that and it will give us a better picture of what's going on.
Here's me and my FAVORITE Lil Man chilln on the couch together last night. Dan took Avrianna up North again this weekend for some 4 wheeling daddy daughter bonding time. Which then Danny and I get some relaxing peaceful mommy and me time. We spent the evening cuddling and watching movies together. I LOVE IT!Avrianna went in on Monday after school to have her pallet expander with fence put on. I have to put a tool in the expander every night for 26 nights to crank it out "expanding: her upper jaw. She's a trooper with this, even though the last time I expanded it she's really is starting to feel the pressure from her mouth changing shape. It's really hitting her now how "not cool" this is as she's finding if VERY difficult to eat even the easiest of foods. As there is a Large gap between the top of the expander and the roof of her mouth so everything gets stuck up there. The fence isn't helping either with her to be able to swallow so even taking a drink can be very frustrating for her. I am very PROUD of how brave and how excepting she's been with this. It's a learn curve for her but will every day she is getting better n better with it.Here's the fence .... this is there to hold back her tongue from pushing up against the back of her teeth. She had a significant tongue thrust so we hope this helps out. Unfortunately it is set more in the middle of her mouth so she has to darn near curl her tongue to keep it behind the fence or the fence scraps her tongue. This for her the worst part for her as her tongue hurts her alot :( Yes it is as bad as it looks. So after her appt we took her for a surprise visit ~
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