Amazing Strides!

This is our newest project here at The Osero household. We picked up the kit last weekend, yesterday Dan and our neighbor started to put it together.

Here are the completed sections. Now once the weather corporates, we can get it outside in the backyard and put the pieces together. I'm hoping to get it up and in playing order by next weekend as I'm expecting 4 extra kids over on Saturday. It would be nice for them to be able to be outside.

Once it's completed outside I will post more pictures :) Avrianna is gnawing at the bit to get on it and "PLAY".


This morning, despite the 40 mph winds and pouring rain the MS walk still went on. It was very impressive to see the amount of people that still came out to participate. Thanks to all that "Joined the Movement" in awareness for a cure in MS. My team, My New DreaMS, was able to raise $365.00 towards a cure, WAY TO GO!

Friday I received confirmation on Danny's spinal fusion n roding surgery. His surgery is on May 14th at 7:30am so we will need to have him to the hospital by 6am. Dan and I are going to take Danny to Milwaukee the night before so we don't have to get up at zero dark thirty in the morning to get there by 6. So Danny and I are going to twist Daddy's arm to take us out to The Cheesecake Factory for dinner, yummmmm. I'm hoping we will be able to stay at the Ronald McDonald house the night before as it is right across the street from the Children's Hospital. That way we can get up and just go next door. Once we get a room there we have it till we don't need it anymore, so if for whatever reason we need it for a few more days at least there is a room to stay in. Once we know how the surgery is going then we can either go and clean out the room for another family or we can let them know we will need it longer. Danny's surgery is scheduled to be 7-9hrs long with a recovery stay of about 5-7 days. Reality is setting in and my nerves have kicked into high gear. This is going to be the BIGGEST and LONGEST surgery that Danny has ever had. I can only hope that after the surgery he is going to have an AWESOME outcome and better quality of life. He should be able to sit better, have trunk control, and internally his organs will not be pushed off to one side as they are being scrunched right now. Not to mention the catheter for his ITB pump is going to be replaced back up into the base of his neck and properly anchored. Our hope is that we can turn down the amount of medicine that he is getting now to get the same results, if not better.

This last week we had another break through in Danny's therapy. Here's part of his team....Nicole (OT), Kasey (ST), and Rand (teacher). They all came to visit on Wednesday and boy was Danny on his game. We tried a new position for a switch and ........

Danny rocked the house!!!!!

He was so proud of himself :) Way to go Lil Man......you amaze me!

I am very excited that Danny has shown interest and control with his switch located in his finger. I am hoping he will still want to "play" after surgery. With the switch being in his hand it won't be as difficult as the head position would have been so I'm going try and continue "playing" with it.

This next week is Spirit Week at Avrianna's school and she is TOTALLY syked about mismatch day, wild hair day, Twin day, and Dress your best day. I will post pictures of her weeks doings.

Welcome Home Madness

We made it home safely Saturday at 2am, so we ended up sleeping in the RV in our driveway so I didn't have to wake up the kids. Once we got up we intended to let the unpacking begin. BUT as I walked out of the RV in my scrubby clothes, wild hair, and the oh not so fresh smell up drove 4 cars in my driveway. WHAT!!! Well the builder had some people that wanted to look at our house and we had a miscommunication thing going so unfortunately they got to see me at my "finest". It wasn't too bad, they were wonderful people and I got a beautiful bouquet of flowers out of it :) You're forgiven Mike, LOL.
I started my IV treatment for my most recent MS relapse on Monday and today was my last day, thank goodness. The nurse was able to get an IV in my left arm, of course right in the bend (I'm left handed) which they wanted to keep in for the three days as I, once again, was a hard stick. Now I know where Danny got his veins from, sorry Lil Man! Unfortunately the IV blew this morning and they had to start a new one up for today, the last day. After 3 attempts the nurse was able to get on in my right knuckle in between my pinky n ring finger, OMG did that one hurt. But it's done and I'm hoping I don't have to do that again for awhile.
Avrianna is back to the grind in school and she can't wait to get back in her swim suit and go in the pool. I have started to look into signing her up for some summer programs, so she can't say she's "bored" over the summer. But I'm sure once school is out and the pool is up n running we'll be a very busy house.
Yesterday Danny had his follow up for GI and ****GOLD STARS**** across the board. He is finally in a "good" place as GI is concerned, but I did make the doc aware of the up coming surgery to fuse n rod his spine next month which might throw a few bumps in road with GI. As Danny tends to go over board and throw things out of proportion which tends to start with GI shut down when his body goes isn't a dysautomonia fit. I'm crossing my fingers that isn't the case this time. I don't want to spend 70 days of this summer in the hospital like we did last summer. Danny goes in for his Trache/vent clinic and a new patient dental clinic next Tuesday in Milwaukee and then the next week we have pre op with the ortho surgeon and anesthesiologist. Surgery is scheduled for May 14th with a 5-7 day stay, cross you fingers it's not too much longer then that.
Since we've been home the weather has been wonderful so I've been trying to get all my outside weeding and pruning done. It's a month early around here, but I'll take it! Warm sunshine can stay, keep the snow away! It's suppose to rain tomorrow so I'm hoping to get the last two bags unpacked from our vacation and then I can be all caught up. We are having family coming over for the weekend and I have a WildTree Party here at the house on Friday night with family n friends so I'd like to have everything put away.
The MS Walk is on April 25th, boy did that come up fast. If you are still interested in pledging a dontation to support the walk and me please click on the link at the top left of the blog and that will get you to my personal page. Thanks for your support!

Let the Cleaning Begin

We had a great Easter down here. We had "the TALK" on Easter about the celebration of Easter n Christmas and how if you believe then the spirit still rings on. I kind of new that it was coming as she is way to smart for her own good, but it went well and she was ok with it. :) Phew~ that part is over with......now onto PMS, LOL

Avrianna Painting eggs with Danny's Supervision


And Danny Sporting his new sassy T-shirt. Appropriate .... don't you think?


Some pics of the kids .....

Yesterday I started to tear apart the condo. I started in the master bedroom not only cleaning but tearing everything out and reorganizing it. Yeah I can't do anything simple :) I really like the way the bedroom is now and I wish I would have put it this way along time ago. But of course I didn't stop there.......I put Danny's bed back by the master bedroom so now I can be closer to him as I didn't like him being on the other side of the condo because I couldn't hear him well enough. So then I put the two beds in (now) Avrianna's room and she has a huge bed and alot more space. I'm exhausted already and I only have the Lanai, and both bedrooms clean. Now off to the the rest of the place. Once all the bags n boxes are out of here it will look like a condo again. I'm so glad we decided NOT to sell this place, I just love it here, and now I have BIGGER ideas for the next trip down for some more sprucing up :) Everything is packed and Dan is putting it in the RV so once I have everything cleaned up tomorrow we'll be back on the road to WI .... all good things must come to an end. BUT we'll be back you can count on it!

This week has been amazing weather wise. I couldn't have planned better weather ,we are all getting a nice tan. We've been hitting the pool just about every day and going out to eat at least once a day, yeah I know real rough life style. It's been so nice being able to sleep in and not to have any plans or obligations to tend to. Again all good thing must come to an end as Monday is going to be complete and utter chaos at my house. Not only to clean out the RV and put stuff away, school starts, piano starts, I have to go into start a 3 day round of steroids (more on that), and I'm suppose to go to a parent support group in the evening. Then doctor appts on Tuesday for Danny, Wednesday for me, and on and on and on.

I got Danny in the pool.....he LOVED it as always!

Danny chilling out with "His Girls". We met the therapist's that used to work with him when we were down here for dinner. We are now good friends! Thanks for coming out to see us Shauna n Becky :)

Right before we left to come down here my left foot/leg and up to mid mid side went numb. That lasted alil over a week but starting on Friday my right arm and hand are numb and very weak, as I can't even pick up a coffee cup and let me tell you typing is pretty challenging. Unfortunately I couldn't start the treatment while down in Florida as the local hospitals won't take a script from an out of state doctor and the local Neurologist couldn't see me till after we were to leave (thanks to WI doc for going to extra step and trying to get me seen down here). So I'll be starting right away on Monday morning, yea more steroids, better go get the next size up for clothing. Grrrrrrrr! It's very annoying not to be able to feel or use your hand n arm and starting yesterday it's getting painful. This absolutly sucks but I won't let it ruin our vacation!

I am planning an having a WildTree Party on Friday at my home. I'm really excited to see what they have to offer for healthy foods. If anyone is interested in coming email me and I can get you the info and directions to my home.

Please don't forget to pledge a dontation to support the MS walk and ME! Click on the link to the left of the blog page and that will get you to my personal page. Thanks for you support!

The Osero's Christmas

Our Christmas tree in the morning....PHEW, Santa cameLooks like we were Good this year

Where's Danny?

Avrianna's stash

My two favorite Dan's!Ah ~ so sweet

She looks sweet and innocent in these pictures.......Boy does she have you fooled! LOL My mom got her this formal dress for her dress-up box. She and her friends wear it all the time.

Here are the socks I cross stitched for each of us

Avrianna helping Danny by reading him the Title of the movie he got

Avrianna got the Digial Piano and the Wii Disney Sing It so she has been singing and playing her lil heart out. Dan got the Wii hunting game and he's been shooting things left n right. I got a coffee/cappicinno (all in one) machine so I've been drinking alot of caffine, heehee. I also got a digital picture frame so I'm really excited to get all my favorite pics together and showcase them off in there.

We had a very low key Christmas once again this year. It was just us four and we hung around in our jammies, played with our toys, cooked together and ate like royality. IT WAS AWESOME! We had no where we had to be and I just loved not running around like crazy people for the holidays. This will DEFINITELY be our tradition for many years to come.

Avrianna has off of school this whole week and she is counting down the days she has "left to play". She is having a great time playing with the neighbors :)

Danny managed to stay well over Christmas and I can only hope this continues into the New Year. He will be going back into see Dr Kasper later this week for labs plus I want him to take a look at Danny's right hand/wrist. It looks to me like he has a contractor there, UGH! Never a dull moment with this BOY, that's ok it keeps me out of trouble. LOL

I am going to participate in a MS walk April 2010 as many of you know I was diagnosed with MS in June of 2009. If you'd like to pledge a donation in my honor please click on the link in the left column or click HERE. You can help walk the journey with me and join my team, My New DreaMS also by clicking HERE. Thanks for your support!