Tonight we're watching Charlie and the Chocolate Factory ... well I am as Danny is out like a light, phew....I think he's somewhat more comfortable with his pain level:) BUT as I'm looking at the monitors his heart rate is dancing in the high 160's and his fever is over 102 despite being naked, having Tylenol, and cold packs. Poor thing! I think something might be brewing, even though I continue to hope it's just his dysautonomia kicking in. I was told earlier his labs looked ok, but after you look at the big picture......his white count more then doubled from yesterday and his crp level (inflammation marker) is high, so maybe they aren't that ok ~ especially with what going on right now. Is this just Danny over exaggerating OR is his body trying to tell us something is wrong? Well he has the night docs on their toes and alil alarmed so here comes the Calvary once again to draw every culture they can and then they are going to start him on antibiotics. As the common statement here is ~ "well you know, this is Danny" as Danny has burned a few docs here before with what "normally" should happen and how Danny is on the other end of the spectrum darn near EVERY TIME. Sigh! I was really hoping, seeing the newest trick of giving him more Valium on top of his pain meds seemed to help his comfort level better this afternoon, that I could think of busting out of here tomorrow or Thursday. Now I'm not too sure.....we'll have to see what the rest of the evening brings to rm #414. After receiving his second enema for the day we finally had a "Code Brown" that even required changing all the sheets, YUCK! But hey that alone, you would think, should make him feel alil better. So today had and still has alot of ups n downs not too mention some uncertainty for my Lil Man. Once again from a surgical stand point his incisions are GREAT now we sit and wait to let Danny recover, Danny's way as we all know if you push him too hard it'll bite you and we'll be back to square one. I hope that we will be able to go home soon. We miss his "girls" at home, even though he is getting great care here their not his home RN 's.... We miss our own beds, even though the ones here are........we'll lets face it, they're not so great. We MISS Dad, Avrianna, and Bailey VERY MUCH!
On a fun note....I chatted with my mother this evening. She's on a bike riding mission this weekend with some friends, on a pedal bike. She rode 37 miles today ~ mind you she hasn't been on a bike since she was a kid. She only fell off it once skinning her leg, but her bum I think is going to need a a break. I don't think she's going to make the 37 miles schedule for tomorrow as she might need to nurse her body back to working order, LOL. I'm very impressed though as I know I wouldn't have been able to do 37 miles. Way to GO MOM!
Special Needs Mom, You Can Say No
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