Lang Wedding

I was able to make the wedding after all. WHEW!! I was worried....I didn't want to miss Tim and Amanda's BIG day. Tim is Dan's best friend, hell more like a brother to Dan. He's been through alot with us and I was becoming very concerned that I wasn't going to make it. Lil man was up to his games this morning. Dropping his stats and becoming congested....I pulled out ALL my bag of tricks ~ hooked him up to every machine we have here in the house, gave him multiple Mr Jiggles treatment, called Dr Kasper and even did some breathing treatments. He stabled out within a couple of hours, where being on the Bipap and 3 liters of Oxygen at least was getting him to 92. My mom was brave enough to stay and watch him so off I went, 1.5 hours away. I DIDN'T want to miss this wedding, but my son was pulling on some SERIOUS heart strings. The last of the "group" to get married, Dan's best friend, and someone who is near and dear to my heart. I MADE it, YAHOO!!! I called home MANY times and lil man was behaving himself (for the most part) with Nanny. There wasn't too much he could do with all his machines hooked up to him as he stayed on them all day.

This is what he looked like when I left... do you see him "chewing" me out, LOLNanny VERY nervous, but watched him like a HAWKHere are some of the pictures that I took! It was such a beautiful day for a wedding. Best wishes Tim and Amanda! I am so excited that Tim found a wonderful woman to share his life with. She is AWESOME and they compliment each other wonderfully. Avrianna was disappointed that she couldn't come, but I told her I would tell Uncle Tim that he now has a date with her in a rematch of Wii bowling, heehee

Make a Smilebox slideshow

Today ~ this weekend ~ has shown me that I can't do it on my own. I NEED someone around to help me out with Danny and learn all of Danny's lil things. Someone I can rely & count on and someone that isn't afraid of all that Danny entails. So we are going to start looking at getting help at least once a week to start the next step in the cares for Danny. I'm not all sure how this all works, but next week I'm going to REALLY be looking into this more. Any tips are greatly appreciated. Even though it was nice to get out.....that wasn't fun, not knowing how things were going, wondering if things were really going ok. I NEED to know that when he is like this someone KNOWS him and cancare for him. I'm sure there are going to be instances like this again in our life times and I don't want to have this helpless feeling again. Danny was good for Nanny todayand Avrianna was a great helper, THANK GOODNESS.I got a phone call about 45 minutes away from the house that he was having another seizure, UGH! I swear this boy KNOWS more then given credit of sometimes. It's like he knew I was coming home so ..... let's stir the pot alil bit. BOYZ ~ Got to love them! This seizure was smaller and only lasted about 10 minutes, no rescue meds were needed for this one.
I was doubley exited today....I OT TICKETS! Avrianna and I are going to go see Hannah Montana in October for her tour in Milwaukee WI. Now I'm just debating on if we should get a hotel and spend the night there. The concert doesn't start till 7 so not sure if I want to drive 1.5 hours home after a Hannah concert.

We're doing WHAT?

Rain, Rain Go AWAY!!!!! I know Wisconsin is known to be cooler, but this weather is CRAZY! The kids and I are ready to pack our bags and head down to Florida till August, maybe it will be at least 60 here in Wisconsin by then, LOL! What a weird season Spring 2009 is ~ Bring out the winter coats n mittens *sigh*
Danny is a NEW boy ~ and all it took was a bath last night. I soaked him in a Vix bubble bath and he turned around, just like that! YIPPEE, if he didn't want to go to the Make-A-Wish Birthday party I can think of a few other alternatives then the game he played yesterday, YIKES! Just shows how fast things change around here.
I'm so excited I got ALL of Avrianna's 2nd grade books ordered yesterday. I can't wait for them to come in. I spent a good part of the day yesterday putzing on the computer (as Avrianna would say) finding new "used" books and I SAVED a bundle ~ YAHOO! I think Avrianna and I are going to start doing a family tree for a project. Avrianna seems to be interested in who's who and I think she'll enjoy learning more about who and where we came from.
A BIG milestone for ME is going to happen this weekend........I am going away without the kids for 2 full days and 2 nights. Dan's best friend, Tim is getting married to Amanda, up North in Wausau. I'm very apprehensive about this step, but willing to give it a try. I'm not worried about Avrianna as I know she will have fun with her Nanny, and I think my niece & nephew are coming along to help Nanny, LOL. I'm sure Avrianna will be right by Nanny's side to make sure she does everything right with her brother, but I've NEVER left lil man over night with someone else in his whole 5.5yrs..........well I don't know how to think. I know I have to get over it, it will be OK, and have fun. Things change so fast with him and he tends to be on the extreme side so I'm just afraid he's going to freak his Nanny out....she's alil over reactive too, LOL. I LOVE my MOM dearly, but NO ONE is trained in watching him for at length periods of time especially over night. It's not that I don't trust her.......I don't trust Danny. Then the more I think about it the more I'm kind of disappointed that NO ONE is prepared to help me out with lil man, he is 5.5yrs old and NO ONE has shown interest in getting to REALLY KNOW my lil man. Sure I get the if I can help out all the time, but no one has ever followed through to learn so I can use them. It's not like I can say here he is.....I'll be back later. I will only be about 1.5 hours away so if things should start to go hay wire I can be home relatively soon. We are bringing the RV to camp out & towing the mini van to cruise around town with while we are up there so if I have to bug out early Dan isn't stranded up there. He's in the wedding so he wouldn't be able to leave. I'm looking forward to having a nice weekend, so I'm thinking positive =)
Today was my first experience with Sam's Club. Mental note......Never go there again on Sunday! Wow ~ what a NUT house! From what I saw I think I can do some serious shopping there, but NOT today. We just got a few things we were looking at getting for the Laundry. Yeap, we not ONLY are building a new home, but we started a new Business too a Coin Operated Laundry in Neenah (The Clothes Hamper). I keep joking Dan.....not like getting all the high divorce factors out there at once (special needs children, Homeschooling, building a new home, starting a new business, and now health issues with me), LOL. I believe the ET of the laundry mat opening is in a couple weeks....I'll keep you posted.