Tuesday, March 29, 2011


We had a wonderful Spring Break down in Florida. There was some stressers here in there, but we didn't let that deter our vacation. Luckily we have great nurses that were down there with us.
Aleana drove down with us in the RV and flew home halfway through our vacation. Her trip home did NOT go very smoothly as she left Florida with clear skies and sun BUT when she got into Chicago all the flights home to Appleton were cancelled due to a Blizzard (this is spring break, right?) Luckily she got on a flight into Green Bay later in the evening....we still don't know how she made it home as the weather was awful from what I heard. The area had lightening n thunderstorms, rain, sleet and then 11" of wet heavy snow. Prayers were answered that night. Are we there yet?
Chill'n out in the RV with my Lil ManMade it to the Florida State Line with awesome time.....only 5.5 hrs till we got to the condo. Total was 29 hrs but really only 26 hrs of drive time. NOT BAD!
Happy St Patrick's Day ~ Happy 1st Birthday to Gunner :)
Hangin out!Ah Palm trees, sun and Summer clothes....LIFE IS GOOD :)Avrianna has mastered her Rip Stick....I swear she is going to break a body part one of these days on this.Danny, where is the rest of Aleana? Did you know that you are darn near as tall as her. Always LOVING "Aqua therapy"Boy am I going to be in trouble when she gets older.....
Had to experience it all? Where do they grow these massive Potatoes? They are SO Yummy!
They call me Stevie Wonder ~ LOLPlease click HERE to watch "The After Burn" ~ after each and every startle "episode" he smiles and laughs out loud. It's so cute....a positive (yes that is my warped way of thinking) of seeing him freaking out multiple times a day. And the SMILE, :)
Gail flew in to be with us for the second half of the trip and then she rodeback home with us in the RV ~
They may look innocent ..... BUT we know BETTER ~ Love you guys! There was a night that both nurses were down so we HAD to go out to dinner all together for what else other then .....SEAFOOD!Love that SMILE!
OH no Dear.....It's no fun here in Florida ..... I'm working SO HARD ~ LOL :)
The Shrimp Shack!
Our FAVORITE waitress ~ Jeanie She ALWAYS knows Danny and what we want to order. No matter how long the gap is between our visits.

Shrimply Delicious.........
Danny's Mobile ICU room :)
You missing someone Gail ???
Work it Girl.....LOL
My KIDS :)We got to watch them make Orange Juice. Boy was it GOOD :) YUM!
Let's go to the Pool ~Soaking up the rays on our last day at the pool
Can you believe it...... Dan reading a whole book and here I caught him NAPPING. Loving those Lazy days!It's all good :)
I did get some color in Florida ~ YAY!
Leave it to my kids having medical issues on vacation ......we think Avrianna got a staph infection, some HOW some WHERE. We had to run to the pharmacy an hour before we were to leave to back WI to get antibiotics.
Then her nail fell off .... So now we are going to take Avrianna to see Dr. Kasper tomorrow afternoon to see if we can get a culture off it. UGH ~ always exciting
On our way home.... bring out the sweatshirts and long pants. So SAD :(Oh Lord help us..... it's BeeGee Time :)
Which one is it?
Could it be both?
And this is what we drove home too? What's wrong with us!!!!
Back to reality! I can't believe it is Spring here in Wisconsin with all this snow, more to come, and the very cold temps already....Global Warming ~ I think NOT!
We had a wonderful time soaking up the sun. Plus the hardest decisions down in Florida were where are going out to eat and where we should shop ~LOL. I did my best at NOT having to make anything at home to eat when in Florida so we ate like Royalty. I now have to go on a HUGE diet n exercise program to get the extra pounds off. I am going through SEAFOOD withdrawal here. While we were out shopping on Wednesday Lil Man decided to have a full blown seizure in the store, freaking out some of the staff. It's all good.....I came with nurses :) Gail was very calm and handled it well, even better then I did, phew. The next morning Danny had started to bleed out of his ear, YIKES! I don't know what I would do without Danny's "girls", I've said it before and I'll say it again they are not only our nurses n friends we've now adopted them as our family . They are so important in our lives and it means so much to us to have them in our lives. WE LOVE YOU ALEANA N GAIL!! Thanks for coming with us and I hope you guys will want to join us to more of our trips.
Thursday the 31st Danny and I are going down to Milwaukee. First to pick up our new van....YAY! Then we are headed to CHOW to have a PICC line placed and to be admitted. First thing Friday morning Danny will be having surgery for ......
1. ENT will be scoping his trachea to make sure all looks good down there and to see if his trache size needs to be change. Plus with his ear issues lately I will have him look at his ears and deep clean them as long as Danny will be already under anesthetic
2. Ortho will be doing the first rod lengthening on his rods in his back and then I believe an injection (of steroids and a numbing med) into his right hip to see if there is any relief from the pain Danny has been having. There has been some discussions on what should be done with his hip, as I would like to have something different done then the injection. I feel that there is nothing to lose with doing the surgery to remove the head of his femur (called the Girdlestone procedure). As I feel confident that Danny is having significant pain coming from his hip, but the Ortho surgeon wants to know for sure this is the issue. I know Danny's hip is dislocated (xrays proven), I know Danny has calcium deposits (xrays n Ct scan proven) from inflammation which will cause arthritis. I know Danny's hip once repositioned relieves his discomfort so I feel that even if it's not the ONLY source of Danny's pain, it will remove one of the factors out. I feel this surgery is enevitable for Danny so the sooner the better plus to be able to add it to a surgery he is already having, then great. The longer we wait the longer, I feel, his recovery is going to be. As unfortunately we can see significant regression with Danny from surgery to surgery year after year. So needless to say I'm disappointed that my point isn't really being heard....but that of a surgeon that only sees Danny for 10 minutes twice a year. Yeap, he knows what is going on with Danny. So I guess we'll go through the motions to make them happy that what I'm saying is in fact true and then.....they'll do what I requested from the beginning. I'm just upset about it all but there's nothing I can do...I can't make a them do surgery they don't want to do. My thoughts are they are gun shy as the last three procedures they have done have failed Danny :( One positive is I won't have to stay long ...my hope is to be out Saturday afternoon. My next posts should be on the surgery progress.
Yesterday I got my MS magazine in the mail and happened upon an article about a MS clinic right here in WI at Memorial Hospital in Waukesha. So I got on the horn and had a referral called in from my primary to this MS clinic and much to my amazement I have an appt with the head of the department on the 12th .... OF THIS MONTH. I'm very excited to talk with her, and see if she has any words of wisdom for me. I'm hoping that she'll have some ideas for me to help control my MS. Unfortunately I just see my abilities spinning out of control at a very quick pace. I'm scared to realize that I may feel this way or worse the rest of my life. I'm too young to feel this way EVERY day and I don't have the lifestyle for this crap. I'm going to give this MS a run for it's money! I'm trying to stay positive and optimistic about it all. I can't wait to post about my visit with her.
Dan is suppose to start his drag racing season in April, but if the snow and cold doesn't let up, the racing will not begin :( No worries Dan continues to stay busy and he still finds new things to add to his plate. He is now a volunteer Fire Fighter for the Town of Neenah.....I know, I know but the way I see it....it keeps him out of the house and out of my hair, LOL.
Stay tuned and I'll keep you all posted with our journey's .... as always :) Thanks for stopping by to check in on us. We LOVE to hear from you too, so post a comment and tell us what's been going on with you guys!

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