Sunday, October 9, 2016

Dodged that ~

Nothing short of interesting here at the Osero's household lately.
Danny has had some significant highs n lows.  Finding out his system was in withdrawal do to decreasing one of his meds was just the beginning.  The new med regimen of adding Charolettes Web CBD oil and GABA gave us a curve ball.  Danny has been having an increase in Neuro's and seizures so off to see the doctor to get some labs done in hopes there was a red flag waving to show us the trigger to all this new activity.  Most everything came back normal, but we did find out Danny's cortisol levels were low. I started to do some more research and I found that the GABA is used to decrease cortisol levels so I quickly stopped the GABA in hopes Danny's level would improve.  The likelihood that the oral GABA crosses the blood brain barrier is very unlikely but we are talking about Danny's super capabilities here....I"ll just keep the GABA out just to be safe.  We had repeat levels done on Danny and found it is more likely that his levels are screwed up with his screwed up sleep patterns.  Normally a persons levels are high in the morning and/or under stress and lower in the evening, seeing Danny likes to start his mornings around 2-3 in the morning that could very well be the reason why his levels were not where they need to be during the appropriate times.  Unfortunately and thankfully during the first low findings Danny had a grand mal seizure what made it a good time to draw new labs (as his body was under stress) to make sure the cortisol level would increase, like it was suppose to do.  Thankfully it did indeed go up so that was reassuring.  So we still were on guard to find out the neuro/seizure trigger as 99.9% of the time there is a trigger to any new episodes.... bring on the intense game of Clue.  Anyone else want to play??  Friday there was an unusual finding on Danny's bottom .... a grape/marble size lump in the post perirectal cheek area.  Hmmmmmm ~ never seen or felt anything like that as of yet ~ so we monitored it and by the next morning it GREW into more of a walnut size.  We loaded up and headed over to the ER to have it checked out.  The ER doctor felt it was an abscess, UGH!!  Thankfully the on call surgeon took a look at it and he was able to take care of draining the abscess right at the bedside.  We had an option of taking him into the OR if we felt it was going to be too much for him to due it with just a local, but Danny did great and I'm so glad we didn't have to put him under anesthesia.  After 5.5 draining hours in the ER we headed to the pharmacy to get 2 different antibiotics (taking bets on how long we see C Diff again) and then to the comforts of our own beds.  Danny has been doing amazing the first 24 hours seeing he has a large open wound on his bottom that needs to stay clean, dry and repacked twice a day.  I'm so glad I don't have to be the one repacking his wound...I can hold his hand, be the comfort, and let the nurses be the "mean" ones.   We are to see the surgeon again on Tuesday for a follow up. I'm hoping the wound is healing enough that we will not need to repack it anymore....keep your fingers crossed.  My hope is this large uncomfortable abscess was the trigger to Danny's new episodes and once things turn the corner for healing that the episodes will stay away.  Even with Danny not being in the best of moods/health I was able to get a nice "school" photo of him for this year.
He's SO HANDSOME.....the shirt says it all!!
Danny got his new wheelchair as he was alil too wide for his last chair.  I was hoping he'd fit in it for awhile longer, but no such luck.  Here he is sporting his new KI mobility Focus CR 16" copper in color.

Av's also been on the mend from a nasty Sinus infection.  She is on her 2nd round of antibiotics and I'm hoping this will finally take care of this for her.  Despite her sinus infection she is rocking it at dive.  She currently is holding 1st place in the state of Wisconsin!  She's only a freshmen, OH MY ~  I'm over the top excited and proud of her.  She is even mentioned in a WISCA (Wisconsin Interscholastic Swim coaches Association) article, which is titled "Another Freshman state title winner?" and her part states ~
"And don't forget about Neenah's Av Osero. The latest phenom out of the Neenah diving factory, she currently leads all D1 divers with the highest score posted on the WISCA website (471.30). The state dive meet usually rewards experience -- only two divers have won state as freshmen in the past decade -- and this year's diving field is unusually deep, led by defending state champ Tatum Thompkins of Racine Case. But Neenah divers have a history of bringing home state titles, so Osero bears watching come November." 
How awesome is that!!  Boy is she making a name for herself.  So far she has placed 1st in most of the meets and has 2 2nd places under her dive cap for her freshmen year.  At the last Neenah home meet they had the divers swim a relay race, each diver swam a 50 Free.....that shit did her 50 in 27.34 seconds which is better then most of the swimmers on the team ~ WOW!
It's homecoming week !!  This week she will not only have the homecoming festivities during the week but also 3 dive meets to compete at too.  On Tuesday and Friday she will be competing at Oshkosh West and Saturday will be at West Bend.  After the meet on Saturday it's get home ASAP to get ready for her first Homecoming dance.  She will be having pictures and dinner here at the house with her friends before they go off to the dance.  It's going to be a party place around here for the rest of this month for Av with Homecoming next weekend, the following weekend is Av's bday party, and then we will be having a confirmation party for her on the 30th.  
She really NEEDS to slow down on this growing up business....can I hit pause for a bit?
Look at her!  My has she grown ~
Freshman school and diving photos
2016 Youth hunt was this weekend and it was Av's 4 year of hunting.  Every year she's harvested a deer.  This one is the biggest one yet ~ Way to go Av!!  Sporting the new DNR approved camo pink

 Not too much new with me.... other then some new ink!  Another great piece done by Jake at Wicked Ink.  He's currently working on a sketch to do my last cover up. I can't wait to see what he comes up with.
 The last few weeks of medical drama has started to take a toll as I've been more fatigued, I'm having more neuropathy pain in my legs n feet, and a headache has been popping up here n there.  I'm hoping that since Av n Danny are on the mend that I'll be able to relax and my system will calm down also.  I DO NOT need to have a relapse any time soon....too busy for MS right now.

Thanks for stopping by to check on us!  There is a chill in the air and the colors are changing ~ fall is here

1 comment:

Anonymous said...

When we added CBD oil ro one daughters meds we very slowly tapered her off of

onfi. She is 92 pounds and gets 0.75ml of CBDoil with 100% reduction in seizures going on three months.