Saturday, June 30, 2012

Where did June GO??

We just ran through June and are stepping into July.  Lets see what July has to bring us.

Danny pretty much hung out and tried to stay healthy for his much needed surgery.  
It was a rough day for Ms Gail :)  Glad they are able to "enjoy" some of the day as Lil Man has really kept her busy lately.

June 25th marked the 3 yr anniversary of the crash of '09 when Danny coded after 11 days of being hospitalized for a respiratory illness.  He was ambulanced down to CHOW for the duration of our 79 day stay.  What a lil fighter he is !

Yesterday Danny had his VEPTR rod lengthening done along with having his ear drums permanently perforated.  He has had a LONG battle with ear infection and ear tube issues (he's a tube pusher) so he now has holes in his ear drums allowing all the fluid and goo to drain out all the time and "Naturally".
Here he is all ready to go into the OR...sporting the hospital gown I made him and the matching cap n booties that Ms Keren made him.  He was the "coolest" kid in the OR, let me tell you!
 Surgery was late so we had ALOT of waiting .... like 3 extra hours :(  But they got him in and he did FANTASTIC!  Dr Tassone once again grew Lil Man about another 1".  YIKES!!  This HAS to STOP.  Look at where his head is on this bed and this was taken BEFORE he grew.  OMG
 Ortho did have comment that I could indeed STOP Danny from growing.  Of course I knew his back could be fused so his torso stays at that length, but the Dr also stated he could go in and sucher Danny's growth plates then in turn totally stopping the growth process and keeping him this size.  Not sure we'll need to go there, as Danny is pretty far into puberty already so he might stop all on his own.  Dr Kasper said to NOT rule that option out, but we'll look further into his "growing" before making any drastic decision like that.  I was told hat even though to sucher the growth plates is a very quick and easy is a pretty painful one.  I will feel as if he had broken bones all over :(  I need more research.

4hrs after surgery Danny and I were on our way home :)  What a super trooper!!  Today he is doing pretty well all things considered.  He is riding the vent and having some GI issues, but we are able to keep things under control for the most part.  It will be awhile before he is back to his baseline.....I'm just glad he's well enough to be in the comforts of our home with "his girls" taking care of him.

I ordered some Tubie Whoobies to for his G-tube.  I couldn't decide so ........................aren't they adorable?!

LOVE my new sassy bumper sticker ~ saw this and I just HAD TO HAVE IT

Avrianna has kept me pretty busy with all her summer camps ontop of her Diving/Trampoline, playing with friends and sleepovers.
She had a week of Volleyball camp....and she Rocked at it!!
 The next 2 months for 2 days a week she is doing archery.......of course Rocking at that too!
 Next month she is going to try Karate.  I wonder if this kid can NOT excel at something, LOL.  I'm so proud of her :)
Last week Avrianna become a "Mommy" of 2 guinea pigs.  The brown one is "Teddy" and the tri color is "Bugsy".
  She spend ALOT of time with them and can be found in her room chilling out watching TV with them.

Well that was June in a Nut Shell.  I hope I can be alil more organized and update more in July.  Usually we are off Up North for the Fourth, but this year we are going to be hanging out at home.  We'll give Danny more time to recover and check out the festivities around here.
I hope you ALL have a SAFE and Happy 4th of July.  Please remember it's not about the BBQ's and the fireworks, thank the ones that serve our country.  Our freedom isn't FREE!!

All Seaons Photography

Last week we had our family pictures done and now I have to decide which ones to have printed.... You will see what I mean ~  

They ALL are fantastic!  

How is one to choose ??  LOL

Thanks to All Seasons Photography for coming out to the house and capturing some AMAZING moments for us to cherish FOREVER.......even though we were dealing with the thunder, lightening, hail and rain :)

 Going to plow this one up
I think this one is going to be big portrait ~ I LOVE our expressions 

 Proud Dad
 Sibling LOVE is like No Other
 He had such a good time :)
My Favorite :)
  In Our daughters Eyes ~

I couldn't have asked for anything more.  The photographer was fantastic :)  And you can tell Danny liked her as he hasn't smiled/flirted like that in a LONG time. 

Thank you again All Seasons Photography

All Seasons Photography
New London, WI
She does photos In or Outdoors ~ At her studio or she travels
Go to, follow her on FB, or  call (920) 982-0799

I promise you ~ You will not be disappointed!!

Wednesday, June 6, 2012


Today I will have a 5th and 3rd grader......what's up with that?  Where has the time gone?  I remember hearing all the time, when I was younger, how fast time goes by and I never understood what that meant....until I had kids.  WOW~ the time is slipping away.  I'm extremely proud of their accomplishments thus far in life.....but I want to be selfish and keep them here always :)  I feel just ill thinking about my lil girl all grown up and moving away ~ I know it will be here before I know it :(
Last day of school and he got a Dr's Excuse ~ lol

This week we closed on the sale of our condo in Florida.  I'm glad that process is over with, but I'm sure going to miss that place.  Lots of memories and wonderful people there.  The kids and I spent a lot of time together there in the winter (months at a time), when I home schooled Avrianna, before the "Crashed of '09" (I was dx with MS and Danny was hospitalized for 79 days straight ~ he coded, then trached, and had a hell of a time recovering).  What a great place it is, and it was great for our family, but once again our lives have changed and we need to keep moving forward .

We have our house on Shady Ln just about ready to be put on the market.  What a haul that was to get it Turn Key Ready, but it was all worth as it looks SO NICE now.  I hope trying to sell it is less painful then it was getting it ready.  With that being said, I will be sad to see it go....lots of memories in that place too.

I know I'm a mooshy sap.

Once again plans in The Osero household have changed.  I "postponed" our DC trip that we were going to take this week as Lil Man is still full of unexpected surprises ie: Not peeing regularly, seizures, GI bleeds, pain, more ventilator time.  Just this morning due a routine trache change I noticed inside his trachea to have a not so nice look OR smell (YUCK) to it.   I don't feel comfortable taking him out of state when he is so unstable.  The choice to not go now was not an easy one to make, and having to tell "A" we were postponing it ..... well that just broke my heart.  As I know she really wanted to go and I hate having to disappoint her.  This is the 3rd trip we've had to cancel in a year :( Unfortunately she knows this is Our lifestyle and that's how we roll, but it doesn't make things any easier.  DC will always be there and we WILL get there!!

Life here is a roller coaster ride and we just need to sit back a hang on for the ride.  If we dwell on all the things that "change" we won't enjoy this things that are in front of us.