Av's first day of High School life ~ Be Safe, Be Kind, and Be Amazing!
This cutie would have been going to his first day of Middle School as a 7th grader. Bittersweet
Rock climbing and zip lining at the New Zoo
The beginning of a great 4 years for these two
After photos they had a triatholon ~She swam 500 meters
Done!! Finished with a time of 49.31
Out of 12 girls Av placed 2nd on her first meet for High School ~ The HS dive meets are not broken down by age like the club is. All HS from freshman to senior compete against each other. Way to GO AV!
Not only is her foot healed but I believe we finally found a therapy that is giving her relief from the ongoing knee and shoulder pain she's been dealing with for over a year now. Cupping then followed by laser treatment. With cycling through many physical therapists and many different therapies I'm so happy we've found something that works as I was starting to wonder if there was anything out there that was going to help her.
She learned not only to drive the zero turn lawn mower but she's also been driving my car and BIG RED up n down the driveway. For all my neighbors that have been out and heard her sing her heart out while on the lawn mower.....I apologize ~ LOL
Danny has been challenging the last few weeks ~ Unfortunately he's gone full circle in regards to C diff. We treated him with a fecal transplant (you didn't read that incorrectly) back in November which thankfully took care of it, but from the prepping of the colonoscopy and the fluid they overloaded him with he has been battling fluid in and around his right lung ever since. If you remember, he even went sepsis on us back in the spring because of it. Well do to all the antibiotics to help him try and keep the infections at bay that has given him ..... yeap you guessed it, C Diff again. WTF!! Also with all the extra fluid we had to up his water pill and that resulted in his potassium levels dropping to a dangerous level. Thankfully that is easily fixed by added more potassium to his diet.
Waiting to have Xrays an labs done at Dr Kaspers office
He has ALL his nurses nervous and even on their day off Ms Keren surprises us at the clinic so she can see and hear what's going on
Unfortunately the xrays that were done here at home had shown significant fluid in his lungs and they wanted us to HIGH TAIL it to CHOW ASAP. I didn't think he was as sick as they were telling me he was, but I knew something was up as he wasn't acting himself hence the Dr visit in the first place. So I broke the rules and stayed home till the next morning and then talked with the Dr's down at CHOW to run more tests instead of just admitting him. Thankfully and Unfortunately the xrays here at home were done improperly and the new excess fluid was just a shadow on the xrays due to their technique. The new xrays done at CHOW showed his lung to be ok and we didn't have to get admitted. Dodged that one!!!
Back in the van and heading home.... So I didn't have to miss the first day of school for Av and my date nite with Dan on Friday. So glad I went with my Mommy gut or I would have went down there in a rush for nothing. They have figured out the decrease in one of his meds put him withdrawal causing all his grief.
There was so fun days for Danny~
Can't forget the annual Town of Neenah's Fireman picnic ~ we got caught in the rain there too, but thankfully we took cover in the pavillion before getting soaked
EMMA's Wedding ~
We clean up pretty well
Check the awesome cowboy boot and converse sneakers I had made ~ Danny wanted to match the rest of the wedding party so he needed a pair of boots. I found this lady at the farmers market and bought some cool hats from her. I had joked about having boots n shoes made and she said she could do them for me. She lives in Neenah also which made it so much easier for her to do some tweeking to make them work just right...but I think they turned out amazing. I even had her do another pair of converse in black, grey and white. Thanks Made By MEE (check out her FB page)!!
Look who runs over to give him a kiss before the ceremony ~
The seizures stared to plague Danny during the dinner and just kept coming so around 8pm we called it a nite and went to the hotel.
With the increase in episodes we added meds in hopes to get them under control better, but that comes with a cost ... He's been snowed and was having more cardiac issues. So we decided to start removing some mess that we believe we're Not helping Danny. Unfortunately the decrease was too much for him and Danny started to go through withdrawal. Let me tell you, that's some scary stuff. After adding some of the med back he seems to be on the mend. Phew!! I don't wish that on anyone. He's more alert, not as agitated and all sats/numbers are returning back to his normal.
I'm excited to announce a new venture in Danny's care. As you all know I'm / We are an open book - That being said this blog is to educate and hopefully help anyone who maybe be in our shoes. I have researched and ordered "Charolette's Web" CBC oil along with GABA (gamma amniobutyric acid). CBC oil is legal in Wisconsin as its not the full medical marijuana because it doesn't have THC (which is labeled as the mind altering component to marijuana). CBC oil has been known to help aid in seizures, movement disorders and Dysautonomia all of which Danny has. GABA helps calm the brain from anxieties, stress, and medical issues. With these two new NATURAL supplements I'm hoping for some wonderful improvements with lil to no side effects, not only for Danny but I am going to try them also for my MS, fibro, neuropathy, and anxiety. Stay tuned !! ~