We went to see the Cardiologist about what has been going on and to have an echo done on Danny.
I thought this shirt would work great for a Cardo appt :) LOL
We did find out that his heart is functioning less then it should be, but not by too much. The Dr really didn't find any answers as to why Danny was doing what he was doing or why his heart has a decline in function. Her theory was..........are you sitting down.........she believes he is...........
Um, excuse me? Danny is followed closely by GI, Dietary, and his Ped. I feel him ALL his food everyday and his labs have always come out "normal". He has lost some weight though. I was alil put off with the comment, but she stated it wasn't what we weren't doing...it was that he may need some more calories seeing he's older.
Well we hadn't had any other leads so we upped his formula and so far so good. He hasn't dropped his heart rate and temp lower then his normal low. Maybe this Dr is onto something here. She did say that if his "episodes" were due to Anorexia his heart could take months to fully function properly again. I guess it's one of the last things that regulates back to normal. So we'll see here again soon and redo all of the tests to see if there is any improvement.
We see Danny's Neuro on Monday and I'm going to run all the latest Danny tricks by him and see if he has any words of wisdom. He usually does :) We've ran drug levels to see if they were the culprit, but those too all came back good.
Oh Danny do you always have to be so difficult?!?!
We have three new nurses working with us ~ Ms Kelli, Ms Cori, and Ms Sue. They are all very nice and have been working out well. I say they are a work in progress and they are all progressing nicely. Of course there are a few hiccups here n there, but we are working out all the kinks. I'm sure that we'll have them Danny pros in no time. Danny seems to be adjusting to the change now. I think he enjoys having a new nurse everyday. It's like a box of chocolates....he never knows what he's going to get :)
July 7th was Danny's Trache Day. 5 years ago Danny had his trache surgery. It's weird that he's had the trache now the same amount of years he went without one. Boy what a difficult decision it was to make, but I'm so glad we did. His respiratory status is so much better since he's had it. He has such a better quality of life, not struggling to breathe all the time.
Avrianna had her first Camp up in Crystal Falls MI at Camp Batawagama. Ya~ say that 5 times fast! She once again had a blast. I wasn't sure if she'd like to be gone over the 4th, but I've been informed that every 4th she'd like to be up at Camp now. Silly me, what was I thinking, lol
We are gearing up for a BIG weekend ~ Dive Zones are Friday, Saturday, and Sunday. Hold onto your hats.....now we'll find out if she qualifies for Jr Nationals in August down in TN. I'm sure she's excited but alil nervous. She knows she'll have to bring her "A" game this weekend, but I hope she can enjoy herself too. She is now all fitted for the part ~
Diving, Supporting, and Promoting the Fox Valley Dive Team....when did she grow up?
Av has a few days off and then next Saturday it's off to the 2nd camp of the summer, Camp Onaway. This is a camp put on by the Boys n Girls Brigade. She's heard wonderful things about this camp, and can't wait to go.
Talking about Can't wait.....she is SO EXCITED to start 7th grade at Shattuck Middle School. We were at the store today and she already started getting some school supplies. Really girl?!?! Slow down!! I'm not even ready for school shopping yet, lol
The Osero's are now owners of a '14 Hurrican 216 Fun Deck Boat. It's a deck boat which has the floorplan like a pontoon and the hull of a regular boat.
It has plenty of room for Danny and enough power to pull skiers n tubers. Not at the same time of course. Danny enjoys tooling around down the river so when he's aboard it will be a nice quiet cruise. Dan, myself, and a friend of ours (Ricky) took the boat on it's first voyage. We took put it in the at the landing by our house which is on the lake and then went down to the river. I have to say I'm a river girl....I did NOT like the lake it was so rough. Yes, I'm a sissy!! I was all for taking the boat back and saying screw this brilliant idea. We've had it on the water a few times since then and have had a good time. Now that we have a better idea of what to do and not to do, I think the next time we'll bring Danny on it. Av is in 7th heaven now that we have a boat, she's all about the tubing and skiing....I know what a surprise, lol. We have a tube, but it's alil too small and the rope is too short so I guess it's off to the store to get ski's, tube, and more rope.
I'm all for the chillaxing and tooling down the river with Danny :)
See you guys at home.....I'm not going back on that lake. NOPE ~ I'll take Nanny's car home :)
Ready set go!!
As you can see Av doesn't like boating at all, lol. We took my Mom n Chuck and my Aunt Bonnie n Tom for a ride down the river :)
Last week I went and got my butterfly Tattoo fixed, improved. Once again Jake at Wicked Ink did amazing work. My butterfly actually looks like a butterfly now :) I had the words "I am strong enough to live this life" added also.
My Niece wanted a tattoo to. She wasn't ever good with pain....but she did great. I really love her choice. It's totally different then what she was thinking about getting and in a different location. Funny what you can up with sitting at a tattoo parlor long enough :) I think it's beautiful !
Now onto the 4th. Av was up North at Camp so Dan, Danny, and I went to Tomahawk to see Papa n Nana and hang out with some family n friends we don't get to see often. We had to pick up Av from Camp on the 5th and Tomahawk was a nice halfway mark to hang out at. The weather was wonderful, we just had an hour long rain during the arts n crafts show, but other then that it was great. We went out to eat, saw the parade, and stopped at some bars. It was very a relaxing time.
After busting my arse to get everything and then some packed in the RV I was seriously reconsidering why we were going. There is alot involved to get Danny out of the house for even 1 day.....ALOT. But then I saw this smile and I just melted. He loves to be in the RV and out n about. That makes the hard work ALL worth it
Ready to GO!!
We Drove up to Minoqua and at Norwood Pines. Very nice restaurant! They had these edible flowers on the our dinner plates. Neat!!
After dinner we met up with some friends for a birthday celebration. If you can't beat em, join em. Right Danny?!
The Leggett's and The Foster's.......Great group of guys :)
I hope you all had a Safe and Happy 4th!!