Sunday, January 23, 2011

Our Craziness :)

Just wanted to share with favorite swimmer! I'm so proud of her :)
Ive posted some other of her events on Youtube also if you'd like to take a look.
Avrianna has been entered into an 8 and under All Star swim meet in Whitewater, WI Feb 13th which should be a wonderful time. Then the next weekend she has her last swim meet on Sat & Sun afternoon in Fond du lac. Then the next season Avrianna will be put in the next swimming level ... SILVER. She's very excited about that, but still wants to take a "break" for the summer with the team again, so she won't start back up with the team until next Fall.
Here she is sporting all her metals, ribbons, and trophy in front the the board Dan made for her.Avrianna is selling Girl Scout Cookies again this year.....yeap it's that time again. So if anyone would like some let me know. Even if you have too many already or if you don't care for them (gasp) you can donate boxes. Avrianna has a fellow GS who's uncle is going back over seas to Afghanistan for his 2nd tour and we are going to donate cookies to his platoon. Come on guys, lets support the Girl Scouts and our troops :) I know I would make an awesome sales person, just ask Danny's Nurse, LOL.
I decided I needed a new look once again....
BeforeAnd After the color and highlighting ~ I did myself....not too shabby :)Then I treated myself to a very over due hair cut last night.Yeap I went even shorter....again. But I like it :)
Of course we had to highlight Avrianna's hair cute!Danny has been fighting off a double ear infection.....gotta love seeing this, NOT!I took him into Dr Kasper's so he could really clean out his ears as they were very goopy. I think it helped so he is currently just on ear drops. We are trying to stay away from oral antibiotics as much as we can because they really do a number on his system.
This is GROSS!
But No One seems to know what the heck it is. We've been getting this goo out of Danny's tummy a few times a week. This coming from a boy who eats nothing.....and doesn't get anything purple. So.................? Go figure Danny throwing us another puzzle.
So I received a phone call from the Neurologist's nurse....stating the EEG shows NO seizures and the doctor thinks his seizures are being controlled properly. UM....then what is going on with Danny? I asked her what does the Dr think....of course no reply. UGH! If you'd look the definitions and actions to a typical Tonic Clonic (Grand Mal) seizure ~ he's having them. So if they look like a seizure but they are not......what the heck am I suppose to do? Another appt will be in the making, you can bet on that.
This would be the single Lumen Power Med Port that was implanted in my chest. Looks like a mouse....and it's purple ~ LOL
They did NOT knock me out....I was up and talking with them the whole time....DARN! But I did enjoy NOT puking afterwards. They didn't send me home with any pain meds. Just to take Tylenol for discomfort. Now I'm a tuff cookie, but the first 48 hours would have been wonderful to have some pain killers. OUCH! I was swollen in my chest, to my under arm and up over my shoulder. YIKES!
The first night
By the second nite I had to take off the tape and gauze as....Danny and I must has the same sensitivity to tape. I got hives and my chest turned fire red. And Itch! Let me tell you that ice, neosporin, and benadryl were my best friend. You can see the bruising was turning green, eekI got to take the stitches out and it felt wonderful!By the afternoon it started to split open
And by the the opening got bigger! UGH! I had stery strips here and tried to close it back up but no go. I reacted to that also.
I can't wait to start up my new med. As I've really been aching and getting weaker. Plus this headache that I've had since the end of November REALLY can go away! This all SUX! I can't tell you enough how much I HATE MS :(
Dan's test came back from his cyst and all was good..... not skin cancer, phew! Last Sunday morning Dan was going to let me sleep in and surprise me with breakfast as Avrianna was at a sleepover, but things didn't go as planned. All of a sudden he was bent over and in so much pain he was shaking. He gave me a kiss and said see ya later.....UM, where are you going. "TO ER" Well you know it's bad if he's going to go to the ER and it must be really bad that he is going to drive himself in, as he couldn't wait for 10 minutes (at best) for the nurse to get there so I could take him in. Off he went and I got myself presentable so when the nurse got there (about 5 minutes after he left) I was off to find him in the ER. I wasn't far behind him and they were just finishing taping the IV down. They gave him some IV pain meds......that didn't work, so they gave him another dose....that didn't work. By this time he was shaking so hard you'd have thought he was standing outside in his skivvies. Then they changed the med and he finally got "some", not all, relief. Off to get a Cat Scan he went........the verdict, a 3.5mm kidney stone finding it's way to the bladder. YIKES ~ but now he knows what Danny had to go through :(. Heavily medicated they sent him home to me to deal with, HA. Luckily he slept ALL afternoon due to all the meds he was on. He woke up, had to pee, and WALL"A the stone (his baby boy as he would put it) had been passed. UM ~ that little piece of rice WITH drugs doesn't compare to the 9lb 3 oz bumbling baby boy WITHOUT drugs, so NO sympathy here. But he's as good as new, heehee. That my friends bought him a referral to a Urologist. Unfortunately it was a useless appt as the pathology test of the stone hadn't come back yet. So depending on the results of that will matter on what, if any actions will need to be taken.
I had to go in for a follow up appt with Endocrine from my Thyroid....remember all the poking! My blood work still isn't great, BUT not bad enough for the doctor to start to treat me with meds at this time. I fluctuate with the different MS meds so much that he's just going to keep a close eye on me. Well with the port in the blood work won't be so bad now. I did go in for another ultra sound on the growth that I have in my thyroid and it has grown but not significantly as again .... close eye.
Yesterday was the post season Packer/Bear game. I don't get into football, but when the Packers play the Bears especially in a occasion like this we try to have fun. Dan is a .......Bear fan ( I know, I know... I try not to hold it against him) which he's converted my son. Now that's just not right. As of yesterday Danny is now grounded for a week cuz......
You get the picture....but he's still so damn cute. Danny that is ~ LOL
So of course the girls need to be be on the opposing end.
Yeap ~ this is me in my comfy cozies. Thanks alot Avrianna, LOL. Yes I have a Farve jersey on...I am NOT and will NEVER be a Farve fan, but this was the only jersey I have. As I put it last nite...... Well Brett #4 Packers + #4 Jets + #4 Vikings = #12 Aaron Rodgers, Ya Baby! Super Bowl 45 here we come.
*WARNING* The National Weather Service has issued a Flash Flood Warning for Chicago and surrounding areas for Sunday the 23rd of January. This warning is NOW in effect. This Flash Flood is caused by the tears of Chicago Bears fans as they saw their Superbowl dreams fade away. Crying will intensify now that the game is over.

Our new mailer postcard Advertisement for the Laundry.....Check it out on Wash Wednesday $1.00 off the 30#-80# washers ALL DAY!

Thanks for checking in on us!

Wednesday, January 12, 2011

Where to start with the New Year. There has been a lot going on in the Osero household. Which is why I've been such a slacker on here. Sorry :(.
We laid low once again for ringing in 2011. A very good friend of ours came over for a tenderloin dinner and then a movie. I had actually thought I might stay up to watch the ball drop (well the New York ball) as Avrianna wanted to see it. When I went into her room at 10:30 she was out cold so ...... I got to go to bed too. Guess what.......the new year still came even though we were sleeping, LOL.
Danny has been having more "seizure" like activity, so he did have a 48 hour EEG. I believe we got some good activity while the EEG was on but now we just have to wait to hear what the report has to say. Danny was such a trooper with his head all wrapped up but by the end I could tell her was done with it. Nothing tends to go smoothly so far this year and to start it off was .....what we saw once the gauze was removed -Yikes. He had soars n blisters on his forehead and hair line. We're it sure if it's from a reaction of the chemicals that were put on him for the wires to stick or if the wrapping was just on is head too tight. Either way I'm not impressed about it. Danny had a bone age scan done, which is just a X-ray of his hand and then it gets sent in for it to be compared to others, showing what his bone size is ........... Danny's bone are that of a nine year old. He's testastrone levels also came back not average for his age. A 6-9 yr old boy should have levels between 10-25, Danny's was.......a jaw dropping 179 ( just about an adult males level). It shows as he has his manly hair growing. I had said I would let his upper lip grow soil more and then laser it off so we didn't have to deal with anymore and I still have my baby face still. Dr Kasper disagreed with me and said he thought Danny would look good sporting a go tee. UM, no not at 7. Would someone tell Danny he IS only 7 so he need to stop growing up so darn fast!
Dan had to have a procedure done in the clinic to remove a cyst like thing on his head. The procedure went longer then we thought and the cyst was different then what the Dr had thought so the Dr has sent it pathology .... Now to wait and see what comes of that. When Dan goes. in next week to have the sticthes removed they will go through the pathology report with him then. When we were waiting for Dan to go in, I ran into the lab to get my thyroid test redone because the last time I took has it done it was the lowest it has ever been. The theory is it was so low do to me being on the iv steroid treatment for my relapse. Well after three pokes and now bruises were able to get enough blood to run the test.
Avrianna had a swim meet in Wausau last weekend and she rocked IT. She had 8 events and placed in all 8 of her events. She improved on some of her times and received her first trophy EVER for swimming. It was very exciting and I'm so VERY proud of her. We made it a girls weekend and just us girls went up to them leaving Dan and Danny to do some one on one male bonding time. It was nice for all of us, but I have to admit it was very strange not to be around Lil Man for the night. it been years that I've nit been with him a night and I can count on less then one hand the I've nit been there with him at night. I was feeling alil lost but we all survived :)

Avrianna holding her trohpy proud..along with her friend Evelyn, Grave and Lauren
Her trophy....she placed 6th on her age bracket for the whole weekend :) Way to go Avrianna!Monday Danny had to have his ITB pump refill so we went up to Green Bay. Once there we found out that the process has now changed and Dr Edgar no longer refills the pump his nurse does. I was bummed to say the least as i was hoping to hit him up on the EEG that was done to see if he had seen it yet plus i just like chit chatting with Dr Edgar. After the second attempt at poking to find the port access and Danny getting upset I requested the nurse to get the Dr so he could do it. Danny was very upset as the nurses was really fishing to find the port so much that she bent the tip of the needle, grrrrr. Why is it that people think that if Danny can't be heard and because he can't flail around like typical children they must not be in pain. The little boy is a living, breathing, feeling, human and MY son so act like it! One shot and Dr Edgar got the needle right where it needed to go :). I did ask if he read the EEG yet and he hadn't but he said he'll get out the large pot of coffee and take a look. We did go through some options of different meeds for me to look into IF www felt there needed to be w change after we see what kind if activity is going on. Once it was time to leave Danny really started to go to the ugly cry....crying over the trache and he was heard loud in clear, then the lip....yeap it's back and he knows how to use it. Ugh- didn't help me keep my stress level down i can tell you that. So we went out to eat (yeap I had to share my strawberry smoothies with him) and some retail therapy.
Yesterday I had my follow up appt with my endocrine doctor for my thyroid which was pretty much a waste of time as the labs that were drawn where never processed so he didn't have any recent number to go by so........ You guessed it back to lab. 5 pokes later and a very large hematoma in my hand they got blood, grrrrr. I was pissed to say the least! My numbers are still low but not as low as before :). Next week i go back for an ultra sound to see if the growth in my thyroid is getting any bigger and the i go back to see the Dr to go over all the findings.
Tomorrow bright and early I go in for surgery to have a med port placed in my chest. I'm not sure where they are going to find a vein to put the IV in but I hope they knock me out curtsy before they start digging as I'm sower ands bruised all over my arms n hands already. I am really looking forward to taking a good nap but not so much the puking afterwards as I always get sick after being put under. We'll see how I am feeling and if not too bad I will post on how things went
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