Nothing Goes Smoothly

Last night the kids and I went to WIR to watch Dan race. There was a big show with jet cars and Fireworks at the end. We took our neighbors with us too, we all had a great time! Danny was a trooper and had a great time, not to mention he was a popular attraction with the girls, as always LOL
Danny helping Mom out stage the car for Dad :) He's sooooo cool!

Dan's first burn out

Dan's second n last of the night burn out. Unfortunately he broke out (went faster then he said the car was going to go) by .007 of a second. It was so close, but hey it was a good race :)

Danny watching his newest Girl ~ Jill

His first Jet car experience! He did pretty good, he only "spooked" when the car went by....as I'm sure he felt it pass. I had ear plug and ear muffs on so the noise didn't bother him at all :)

Jill ~ "The Queen of Diamonds" ~ her jet car did 299 mph

Danny sporting his autographed pic of "The Queen of Diamonds"

Avrianna has been excited for many years to drive a Jr Dragster (mom's still not on board for this yet). So to see a local dragster driver that is a girl (not to mention the Jet drag driver was a woman too) Avrianna was stoked! Here she is with the neighbor girls and Nikki Londerville

Now this didn't help matters either ~ LOL. Thanks Nikki!

Dan's Cheer leading squad in the stands, heehee

Danny got his newest walking sling ~ I LOVE IT! Looks like he is going to go parachuting. I'm READY!

I can sit him up tall

Standing.........Really Mom, do I have to? I can't believe how tall he it.

OK Mom, are we done yet?
Must be genetic.....the attitude. Not sure where my kids get that, LOL

As of today the surgery is still schedule for July 13th at 10:15am down at Children's Hospital, and we are going to have a PICC line put in here at the local hospital the day before. Hoping to resolve any hiccups that day of surgery. BUT if the labs Dr K took on Friday come out funny then the deal is off. Leave it to MY SON to throw and curve ball at us in the last inning. He has been developing Petechiae in multiple areas of his body. Mostly where he has pressure contact but none the less something not normal with Danny. We need to rule out the serious reasons for him to get it. Right now the only flag if you would call it a flag is his platelets are alil low (not terribly low, but low). We are awaiting his PT & PTT results which will show Danny's clotting ability, if that is off then I'm sure EVERYTHING is off. We should hear from Dr K with the results tomorrow. I will keep you all posted
Dr K. ~ Love this picture of Dr. K pondering on Lil Man..... Hmmmmm, Danny!

He has veins, right?

Dr. Kasper hanging out with his Biggest fan ~ trouble is with DOUBLE trouble, I'll let you guys figure out who is who, LOL

I was on a mission the other day..... A FB friend was inquiring about a few of the things in a picture that she saw that Danny uses. So on here and on FB I updated Danny's equipment. That was so much fun and it was way over due. I didn't think it was going to spark such an interest with my SN families. I'm so glad I was able to help out and spark some ideas with them. I LOVE it when I can do some good and help out.

Today we were suppose to get our family pictures retaken. Key word here is "suppose to"! Avrianna woke up on the wrong side of the bed today and EVERYTHING wasn't right with her, the hair, the make-up, the earring, the outfit, etc...which then put her in a tail spin of hysterical crying. So much for pictures! I cancelled as I didn't want to waste the photographers time coming over to the house and have Avrianna look like hell from crying so much. It was suppose to rain and be crappy, BUT of course the sun was out the whole time our pictures were scheduled for. I could just cry, I'm so disappointed as I really wanted FAMILY pics done. Now I can just hope that we can coordinate something before the surgery. UGH!!!! My head feels as if it's going to explode this afternoon.........hmmm, can't figure out why? LOL! Maybe I should have just stuck with dogs, heehee. It's just the way things roll around here, NOT SMOOTHLY

On too dogs ~ Bailey has been cone free for just over 24 hours. Yippee!!!! I think we're all excited about that. She hasn't touched her legs since I took the cone off, I guess she got the hint!

Waiting

That sums it up around here....alot of waiting. It's not necessarily a bad thing, but none the less still waiting.

Bailey went on Monday to have her staples removed and she was a trooper. I know I wouldn't take it as well as she did. BUT she still needs to have her cone on as the one side is still looking icky and she won't stop licking it. I am taking her in once again today as I found two staples that were hiding, I guess, so off to the vet we go.

We put duct tape around the edge as she LOVES to ram anyone and anything with that cone....I think in hopes that if she annoys enough it will get removed, LOL NOT!

Our garden is growing like crazy due to the heavy rains (unfortunately so is the weeds)....but here are some recent pictures of our 1st garden.




Even the plants that the deer hit/ate are growing back :) I'm going to have veggies coming out of me ears this fall, LOL. Get ready Lisa :)

I am still waiting for confirmation on the date for rescheduling Danny's surgery. It is tentatively scheduled for July13th and we've decided to opt for the VEPTR 2. In talking with other physicians and parents that have kiddos with the VEPTR I think it is going to be the best option for Danny right now. We are still waiting (1 week) for the neurosurgeon to confirm that July 13th will work for him as Danny needs that ITB pump catheter repositioned and I want it done when the VEPTR is getting done, get r done all in one shot. It amazes me that it's been 1 week and the neurosurgeon's "people" still hasn't been able to get in contact with him to confirm.........not getting the warm fuzzy once again.

We are continuing to enjoy the summer season. Avrianna is now in drama, right the prefect thing for her. She is enjoying the doing what she does best.......DRAMA! The weather looks to be wonderful over Father's Day weekend :) Dan's dad and Claudia is coming over for the weekend and we are all siked! Good food, Good drinks, and great company!

We were suppose to have our family pictures retaken this morning but unfortunately something came up with the photographer so we've rescheduled it for next weekend. I'm excited that we are going to have another opportunity to retake them. Even though some of the ones I did get were nice they really weren't what I had hoped for....so we're going to have more pictures of us together taken. I would have been devastate if something would have happened with Danny during his first attempt at the back surgery because there is really on one nice picture of all of us together and I want to have a GREAT one. I know I'm crazy, but I just want to have the best memories possible. I can only hope the weather will be as nice as it was today so we get the opportunity to have outside pics of all of together. Here are the pictures that I liked from the first time she was out.

As you can see they are very nice :) But I can do head shots of the kids....I guess I was looking for more things that I can't do.
Thanks for stopping by and checking in on us!

The cone of Shame, LOL

It's never a dull moment around here :)

Well Ms B (aka Bailey) some how bent one of her dew claws on Wednesday. So Thursday morning I brought her into the vet..........yeap she had surgery to have both side removed, seeing she was a "repeat offender" of the dew claw. She did great in surgery....they did find a heart murmur and an inhalation defibulation with her heart (meaning her heart beat faster when she breathes in), but she's going to be 10 in Sept so I'm not surprised her system has some issues. We got to pick her up at 4 in the afternoon the day of surgery and she was loopy, poor thing

Saturday I was able to take off her bandages. I thought something was going to be up with the left side as Friday evening she was acting like she was in alot of discomfort and not putting pressure down. When I took the bandage off it was still actively bleeding , swollen, and had some green/yellow goo coming out, sigh. Back to the vet we went Saturday morning......she has an infection, UGH. They put her on another antibiotic, more pain killers, and re wrapped the wound on just the one side as the right side is doing great.

This is the "good" side. I was amazed at how many staples they use and such a big incision for just a dew claw

So on Monday I was able to take off the left side bandage.....it was still bleeding and not looking right. BACK AGAIN to the vet we went. She needed 2 more staples added (unbelievable that she allowed them to do that with no numbing stuff), it still looked infected and was still bleeding. Of course she showed her true licking abilities when the bandage was off at the vet so on came "the cone of shame", LOL.

Bailey in NOT liking the cone on, but seems to be adjusting. She'll ram everyone and anyone with that thing in hopes that someone will take it off, poor thing. I will take it off for her to eat and drink, but other then that she has proved not to be trusted as she'll lick at the sites, UGH!!!!! We have to go back on the 14th (if everything goes well and we're not back before) to have the staples removed.

It's always something, right?

In talking with other parents and with some of Danny's doctors........I do feel the VETPR2 is going to be the best route for Danny at this time. Not only will it allow for him to finish growing it is a shorter surgery that will hopefully be less stress on his body. The surgery scheduler is looking at when we can get Danny in as I would like it to be within the month. I am hoping that way he will be nearing the end of his recovery when school starts next year. I will keep you all posted on when it's going to be.

Avrianna has been a busy lil girl with trying to figure out what to do with this summer break. She's done alot of playing with her friends. We've made a chore/attitude chart for her summer break in hopes to continue structure and education during this time off, let's hope it works. I was very impressed with her willingness to add things to the list and her help in making the rewards if things are complete plus the penalties when things are not done. Next week Avrianna will start the summer school program from 12-3 Mon-Thurs for 3 weeks with Drama (boy is summer school different from when I was a kid...then it was like a penalty not doing all the fun classes). She also starts her Friday Go Girl Go class through the park n rec which is designed for girls in 3-6 grade to have fun and help them with making "good" decisions. In the middles of July she will be going to a Girl Scout Camp for one week, going back n forth except the last day she will be sleeping over. She's very excited to go as one of the neighbor girls and fellow brownie members will be attending it with her.

Our dedicated farmer......in the pouring rain replanting more tomato plants, LOL. It's been very cool and rainy around here the last week. Which has made for wonderful garden growth. There are flowers and sprouts coming up everywhere. Plus the fence as (so far) worked in keeping the ever hungry wildlife out. Woot Woot!

Craziness

Monday was Danny's last PT session for his summer session...I know summer just started, right? Well because MA has been a pain in my back side in approving the sessions they can not see him till they get word it's ok from MA. Mind you I started this process back in MAY, thinking I wouldn't run into this problem. So needless to say I'm NOT a happy Momma! The system just sucks!! I can only hope they get their CRAP together and GET IT DONE so my lil guy can get his PT. I am highly considering looking into private therapies in the home so I'm going to do my homework and start investigating what's all out there.
Monday my in laws came down Papa n Nana to hang out with us. They got a tour of the Laundry Mat and the new house and then they came over to have dinner (take out Chinese, yum) and a slumber party. I stayed up way past my bed time chit chatting girl talk with Claudia, it was GREAT! Then yesterday the kids and I kidnapped Claudia, we met up with my Mom and Aunt Bonnie, and we SHOPPED till we dropped. I went and got my hair cut to start off the morning and then we were off. We all had a great time and the bargains ~ The full size van was FULL! 8 FULL hours of shopping ~ we had spent so much time out that they needed to stay one more night, heehee. They were up and off heading back up North early this morning. THANKS Papa n Nana we LOVED having you guys over ~ WE MUST do that more often. MISS YOU ALREADY
While we were shopping lil Ms Avrianna started to get a soar throat and lil man just wasn't his self (crying and didn't seem comfortable at times). This morning Avrianna still had a soar throat, I checked it out the it was very RED. So I called Dr Kasper's office to have her looked at today. I was able to make an appt in the morning so it was alil crazy around here trying to get us all ready and showered before we went in. As I was giving lil man a shower he was still "off" and then all of a sudden ~ SEIZURE! God I hate them even more when he's wet...timing is so bad :( He came out of it after 7 minutes but I called back to Dr Kasper's office to see if he could see Danny too just in case these two are SHARING something. Avrianna does indeed have a soar red throat with a low grade fever but no strep. Whew! I need to watch her to make sure she doesn't spike a fever or go yellow (jaundice) as with her not having a spleen things could turn south VERY quickly. The verdict with Danny is ...... he's just Danny. LOL! Ok, I'll explain that one......We are changing his seizure meds around and seeing there is no physical reasons for Danny to have crying bouts or prompt a seizure. That we are thinking it's the change in meds. Danny doesn't do well with change, he tends to make a mountain out of a mole hill. With changing the meds he could be "confused" or feeling different and that's the only way he knows how to voice his differences. Again this is NOT a definite but that's the theory we're going with on him right now. Got to love the seek n find game with a non verbal child....you KNOW something is wrong now figure it out, sigh. While Dr Kasper was checking out his ears he was pulling out some wax that was in the way to seeing the ear drum.......the wax ended up being the ear tube. So now no tube in the left ear.....got to see my first tube, LOL. Dr Kasper went over some of the images with me on Danny's brain MRI.....WOW ~ Danny you ROCK and my HERO!
Bailey (our family dog) had to go into the vet today too....I know, right? She had to have her bi annual labs done to check out the level of Lyme's disease in her system, we should have the results back in about 2 weeks.. Yeap she's got Lyme's and Allergies.....laugh with me NOT at me, LOL. While we were there we got her nails trimmed, she's so NOT a fan of that.
This morning I got a phone call from NeuroScience and the Nurse Practitioner that was to see me on the 22nd isn't available on that day any more....WHAT? So we had to bump my appt back even more to continue the diagnosis of what's up with me. *SIGH* A part of me is ok with that and then there is a part of me that is........I have soars and masses in my brain and cervical spine how long should I be putting this off? The diagnosis process is so much different when it comes to me then with the kids. I can always go into ER if I should have a change in my symptoms or if I get new ones (like I know what that would be when I don't even know what the heck I have). Funny how they will see you RIGHT AWAY when you are having a stroke or something but trying to pinpoint what, when, or how they will put it off for months. The system SUCKS!
Thanks for checking in on us.. Never a dull moment! If you get time sign our guestbook or post a comment....we LOVE to hear from you too.

UGH!

Well yet another thing to add to the Osero family plate. The dog! Her lymes disease is acting up again so Bailey is back on her lyme medicine. Yeah a dog with Lymes, allergies and chronic ear infections but...... she's my baby. She turned 8 in September. This year she has defeinatly slowing down and she is getting so white on her face.
With us going to Florida I will need to keep her on the flea/tick stuff and heartworm pills all year long. While we were at the vets today they cleaned her ears, she got all her shots, and I had them cut her nails. She's all ready to go, she loves it down in the sunny state too.
MY babies!!





Today they called and comfirmed both surgeries on the 2nd of Jan. I'm feeling better today about it. Aniexty!!!!! I did tell Avrianna, as she heard the message on the machine, that she is also going to have surgery with her brother (THE SAME TIME & DAY) and she did VERY WELL! I'm leaving it alone. I told her and I'm very surprise with the good reaction so I'm not going to rock the boat.
Yesterday Ms Kristi (OT) came out and made a lamb out of cotton balls with Danny and he didn't seem to impressed with it. He had this face on him that something was wrong. So I got him out of his stander and Ms Kristi played with him on the floor and sang him songs. I did show her the video I made of him after his shower yesterday...he was having a blast talking up and storm and swinging his arms around. Something got him excited and I was actually able to catch it on video. If I can figure out how to get it on the computer I will share, but I'm not very computer savy (my neighbor might have to help me out on this one so bare with me, LOL). I'm so happy I was able to get it on video it's so AWESOME. Today Mr Dan (PT) is coming out to play with him. He is in a good mood now so hopefully he will want to play with Mr Dan alittle later.
Well off to clean out the basement. Have a good Friday!