Back in Surgery

The last couple days have been crazy! Sorry for the lack of updates yesterday, but I was able to bust out of the hospital for the day to go to the new house and start the decorating process as everything is starting to come together. I left here around 9:30am and I got back at 10:30pm while Dan came down to hang out with lil man for some much needed Male bonding. When I got back I was exhausted and just wanted to crash. It was a long, stressful but productive day. I was totally overwhelmed when I entered the house, WOW. I had tears in my eyes thinking Danny came very close to not seeing HIS home. The reality of all that has happened to my lil man in the last couple months hit me like a brick. Then reality hit of how much stuff I had to do in such little time....I went into GO mode! Don't forget to stop by the house during the VHBA Parade of Homes to check out our home, by Mike VanHoof Custom Family Homes.
Danny is finally in surgery.....only 5.5 hours late, but "Git-R- Done". Right around 1 this afternoon of course lil man got VERY irritated and spiked a fever. DANNY!!!! So I gave him a cool wipe down, the nurse gave him some additional pain meds, and we hoped for the best. By the time the OR was ready for him his temp did come down alil but he was still high (rectally) so we pulled the rectal probe and he was good to go, shhhhhh. Last night and this morning he started to wretch again on only 5-10cc of meds in his tummy so they ran a PH level of his tummy contents and IF the prevacid was working his level should have been about 6, Danny's was 2 so that isn't good at all. Which I can now chalk up another reason for his discomfort, sigh. I can only hope after GI does their thing we get some much needed answers gut wise for Danny. First off tonight Urology is going to pull the stent and blast the stone on the right side. Finally taking care of the kidney issues so we don't have to worry about that. Then GI will come in and they are planning on doing on Endoscopy (scope going from mouth down into tummy) and a Colonoscopy (scope going from butt through intestines) with doing some biopsies in hopes to find answers to Danny's wretching n diarrhea issues. I believe tomorrow they are planning on taking him down to IR and having them put in a G-J feeding tube before we start to attempt the feeding again. Surgery should take about 2.5-3 hours so I should see him back in the room in about an hour. Danny was just miserable today so I was glad they were able to still get him into OR tonight as I'm not sure what we were going to do with him over night he was so uncomfortable. I will post once he gets back to the room and settled in!

Upper GI & Pump refill

What an evening here at the Osero household last night! I went to bed around midnight because Danny needed to be NPO (nothing to eat) after midnight for his upper GI at 11 today. After I went to bed lil Ms Avrianna came in saying she had a nightmare...so I crawled in bed with her. Then around 3 Mr Man was crying....I finally got him settled back down around 5 and took a few hour nap, WHEW! Needless to say I'm dragging my butt today, LOL. But managed to get myself ready and BOTH kids a bath before having to leave at 10:30 this morning.
The anxiety level was HIGH as I was returning to the hospital that the kids were delivered in. I'm getting better though, so that's good. I even managed to pop my head into the NICU and show off Danny to the docs and nurses that took care of him. Another BIG step for me, but I'm very glad I did it....It was great seeing you guys once again! I gave them our new website so they can stay up and with our journey's too :).
Danny's upper GI went well. Under an X-ray they pump a barium dye into his stomach through his G-tube to see if he is having any serious reflux and how his tummy is emptying. Everything looked pretty good...no signs of reflux (at that moment) and his tummy emptied into the small intestines well. WAY TO GO!
Then we went up to see Dr Edgar for the baclofen pump to be refilled with new meds. I told Dr Edgar about the laughing spell the other day and asked about it being a seizure. I know, I know, I should just be happy about it, but Danny has NEVER done that before EVER. And yes there are seizures that do that, he said. So I am going to re post the link to the video of Danny laughing so he can check it out. Even though it was awesome and it made me cry.....I need to make sure he is ok and safe. Amazing how you have to take a laugh SERIOUSLY. I also rocked the boat alil and requested a MRI of Danny's head when we get back from Florida. I haven't seen images of his brain since he was days old. I want to see what REALLY happened to him. Dr. Edgar, bless his heart, warned me of what I might see (or lack there of) and he wanted to make sure I was OK with that. He asked why I wanted to see his brain...as many don't or won't. I'm so in the needed to know with my kids and I just NEED to know. I know it won't change how I feel about Danny and I can't change how he is, but I want to see his brain. I want to see the damage to get a better feel of why/how things play out with him.
Well I need to get rolling as Avrianna has Pioneer's and then she is going to a Valentine's craft so I need to get her ready and get the last of her school work DONE! Thanks for following us!