How wonderful

I do have to say the new store in Oshkosh has been surprisingly booming with business. The first few days of being open (without any advertisement) and the place is just hoping with people. It's very exciting to see. Let's see how it does now that our ad is in the local paper. It looks as if we found a perfect location for our second store. How wonderful!

I went down to Milwaukee this week for my annual tune-up. My mom went with me for the day as I new it was going to be a long day and I didn't know how I was going to fair with the drive home. Other then being a LONG day and having a severe case of flatassatosis I had a good day. It was nice that my mom came with so she could see what goes on and she was able to ask questions that she had to my neurologist. I also enjoy having someone along with so I'm not talking to myself, lol. My infusion went well and then I was off to get a MRI of my head n C spine. That took alil over an hour....I actually dosed off in the tube :) Then it was off to go over the MRI result with the Doctor. I still can't believe I was able to talk about the MRI about an hour after I had it done. That's just unheard of with my older doctors.....I sat and waited FOREVER. Good news is ~ all my "Waegner's" are stable. They are not "Active" at the moment and they have NOT invited any new friends to come and join them. I have about 7 of them in my brain and the count in my C spine is up for debate, I believe there are only 3 there. So it looks as if this new med I've been on for the last year is working. I am not relapsing right now ~ How wonderful!

Danny went to see his Neurologist this week too. It's Neurologist week around here. Which I don't mind as both of our neurologist are AMAZING doctors. They both think outside the box when it's needed and they treat the person not just our diseases/disorders. They both listen and they both have a personality. We are truly blessed to be in the care of these doctors....I don't know where we'd be without them.

Danny's appt started off with getting his ITB pump refill and then we chatted with the doctor after that. Danny needs to have his pump replaced in the next year as his battery life is almost out. So I will be trying to coordinating that surgery for this year :( I am going to try to coordinate it with his rode lengthening in October, but it will all depend on if the surgeons feel it's safe to due both at the same time. Then we were off to the BIG Question as to what to do with these increasing "episodes" that have wrecked havoc once again with Danny. Fortunately Danny was having an off morning the day in the office and Dr Edgar was able to see first hand what is going on with these episodes. It's bitter sweet, as a mom you hate to watch your child go thru these but as a mom trying to figure out what's going on it was great he did them in front of the doctor. As we talked more in depth about them and what's going on, Dr Edgar now feels strongly that these are indeed Seizures, even though the EEG'S don't show them as a seizure. Danny's EEG is crazy active constantly with spikes, but they have never broke out into a seizure, on the outer surface so the EEG can pick them up . Seeing that these happen while he's sleeping and will wake him up, and now the Dr has seen how and what all goes on during these episodes....it all points to seizures. Hmmmm, I could have sworn I've been saying that for the last couple years. These seizures are coming from deep inside his brain where the EEG can't pick them up, just all the activity on the outside areas that is going on. Makes sense to where most of his brain damage is located. There is a test that can be done to verify seizure activity, that involves drilling a hold into his skull and putting probes internally on the brain so they can read whats going on throughout the whole thing, but we are NOT going to do that. They are seizures and we are going to treat them as such. Danny started a new seizure med, just last night, but it will take awhile to get up to the proper dosage while weening him off one of his other seizure med. The process should take about a month to get to where Danny needs to be and then we'll go back to see Dr Edgar again to discuss how it's working. Cross your fingers! This med Onfi, even though it brand new on the market, is the "best" option right now for Danny as the other 2 we were told about has significant side effects that are not options I need Danny to endure. How wonderful :(

Last weekend Avrianna had 4 days off due to conferences. She is doing GREAT in school! I'm so proud of her and her accomplishments. She alil chatty at school, I'm not sure where she gets that from ~ lol, but she remains all A's and 2 B+'s. Way to go Avrianna!! We went out to the ice arena with a girl friend of hers on Sunday to get out of the house and have some fun. Unfortunately about 20 minutes into the "fun" A's friend fell on the ice knocking herself out and cutting her face. I knew immediately she needed to go in for stitches so off to the ER we went. Making that phone call to another parent that they need to meet us in the ER there's been an accident really SUCKS. Once there they realized that there was more issues then just stitches as she started to get sick and she got confused. After 2 CT scans and xrays she was cleared of any brain bleed or broken bones, but she did have a bad concussion. Poor thing :( Of course this would have to happen on my watch, I felt horrible for her. She had to miss a whole week of school, no gym for her now for the rest of the week, and not to mention she now is sporting a pretty large shiner with stitches by her eye. She's been a trooper with all of this, I'm really glad to she doing better .... she had me scared the first night in the hospital. Avrianna feels awful for her friend so we went out and got her some flowers, toys, and her favorite Chocolate in hopes to cheer her up. We've visited just about everyday to bring her get well cards and to let her know we are thinking of her. This weekend we are having her over to watch some movies and play some board games. Very low key for her for awhile ~ How wonderful :(

6 days after fall

Avrianna got her braces off this week too. She was SO EXCITED to finally get them off. Phase 1 was a longer process then we had anticipated but now it's done and we await the process of Phase 2 which should start in about 2 years. UGH! She now has to wear a retainer and to hold all the correction in place. Boy did the retainers change ... she picked out the colors and it's lime green n blue that glows is in the dark and has dog paw prints all over it. Who needs a nite lite when your mouth glows, lol. How Wonderful!

Here is the mold from day one before her correction to what her teeth and bite look like now. Nice to SEE an improvement ~ WOW

Definitely Avrianna style!!
Thanks for checking up on us. Never a dull moment over here :)

Much Needed Updates

On Tuesday the 14th we took a trip down to CHOW for some follow up appts on Danny.
The first one was with Dental. He had only 3 teeth that had minimal tartar to be removed and then he got his teeth cleaned. What a trooper Danny was :) and cudos to the nurses for maintaining great dental hygiene....gold starts for having a great set of teeth for Lil Man. He wasn't too impressed with getting his teeth scraped but he recovered well. It was a great appt, just another cleaning in 6 months. He does he 2 more teeth that are loose but not loose enough to be pulled at this time.
The second was Danny's pre-op for the rod lengthening in Jan. This one was pretty easy, just vitals and look at the MRI images that were taken about a month ago. We talked about the procedure and if it was even needed at this time as his curve didn't move since the revision VEPTR surgery in August. I remembered one of the questions, when I was considering the VEPTR, was how did they know he needs to be grown? The answer I got was when the curve increased on the images. Well his curve is stable so why grow him out? I know "protocol" is to grow out every 6 months BUT if it's not needed then why do it? Danny's dysautomonia (a disorder of his body not reacting the way it is "suppose" to automatically) goes so out of control when he is put under anesthesia. So I left that appt very confused on what I should do and what were that right options for Danny.
Then it was break time.................Lunch at The Cheesecake Factory,.YUM ~ Life is good! I had all the comfort foods and then....of course CHEESECAKE. I mean how can one go to The Cheesecake Factory without eating a piece of cheesecake. I did share the Kaluha Coco cheesecake with the nurse because I was so full from the main course, so it wasn't too bad (with the weight watchers points, LOL).
Back to the hospital for our last appt with Palliative Care and Rehab. I couldn't wait to see them. These two Doctors get the WHOLE picture with Danny, not just a specialty. PLUS we haven't seen Dr Klingbiel in a long time as Danny was being seen by another Doctor in rehab that was also taking care of his baclofen pump. She is now gone, Danny's neuro is back taking care of the pump and we get to see Dr Klingbiel again, Wooooowhooooo! I LOVE these two Doctors, they make our stays in the hospital and the cares between all the specialist alot more bearable. I know they got my back and understand the whole quality vs quantity. I don't know what we would do without them in our corner. I informed them of the findings at the pre-op appt and BOTH of them are on the same page I am. PHEW! So I canceled Danny's surgery in Jan and I will have xrays of his spine in Feb when we are down there for other follow up appts to see if he'll need to be grown out this spring. I'm all for not putting him through surgeries IF they are not needed. The only disadvantage is that we were going to have an injection done in his hip to see if that helps with the pain Danny is having. They did increase Danny's baclofen pump ever so slightly in hopes to decrease his spacticity and spams and that will make his pain levels lower. Changing the pump is so easy, so why not try it, right. If it doesn't help then we know and can switch the pump back to it original settings. We'll see!
Unfortunately the seizure monster is back. Danny has been having alot of neuro issues lately and at times his oxygen levels even decreased.....NOT COOL! So you can bet that Danny just bought himself an EEG in the near future. We'll see when we can fit that in this Holiday season.
I got my Lab work and MRI results back last week. NOT so good :( BUT my eye exam went well, the MS has NOT attacked my eyes other then having the side effects of my headaches through my eyes, PHEW! All my labs were "off" but most of them are being blamed on having the IV treatment being the culprit of that. So I am going back in on Monday, for more labs to make sure I am back in "normal" limits as well as a more tests. The MRI I had done did show 3 new "hot spots" or lesions (1 in my right frontal lobe and 2 in my left frontal lobe making it a total of 7 now) so what I'm going through is indeed a full blown MS relapse, sigh. Then with being on the IV treatment to help with the relapse symptoms it did make my system feel even worse because it dropped my thyroid function more (which is already working shady), it increased my sugars (which I'm already at risk of being diabetic), and my blood pressures have been way HIGH. The headaches are coming from the lesions/soars forming in my brain. With me not improving after the "treatment" and the lesions not settling down (they glow when they are active on an MRI, hence the "hot spots" meaning they are active at that time. When they are not so bright they are not active.) after the treatment I've been up graded from relapse-remitting or remitting~progressive ~ which means that disease is taken hold and I'm not going back to "normal" after a relapse, I continue to deteriorate. SO........the decision was to switch my meds in hopes we can put this MS in REMISSION instead of the path it looks like I'm taking. With the change comes the risk, there is NO EASY answers with having a disease without a cure. You either let the disease kill you OR you could die trying. I have to give it every effort to make myself better! I am going to be going in to have a med port surgically implanted in my chest so I can start a medicine that will be given by infusion. BONUS is no more daily shots that bruise and sting like crazy. I will be going in once a month to the hospital to have the med done via my port, it should only take about 1 hour to give and then I have to stay another hour to make sure I don't have any immediate reaction. So that will be nice only 2 hours a month. This med has done wonders with shutting the symptoms down and not getting anymore lesions. I'm crossing my fingers it works. BUT it comes with added risk...one being infection from the port and the BIG one is the possibility of getting a brain infection that could be fatal or cause severe disability. No stress there, AH! The only good thing is that they are aware of it happening and they monitor you VERY closely. So I feel somewhat better about the situation, but I'm still alil edgy about it. I'm not sure yet of when the port will be done, but I have to wait to start the new med until I've been off the old one for a month. I stopped taking my meds as of yesterday, which is scarey in it's self with being in a relapse an now NOT being on any meds, I hope I don't any worse.
I am officially done with Christmas shopping AND wrapping. CHEERS! Bring on the Hohoho and the hot toddies. I'm ready! I'm still bummed about not being in Florida for the Holidays but I am looking forward to hanging out with Dan and the kids in our jammies playing with out new stuff :)
This week is full of events for me. I am going to work at Avrianna's school holiday store for a few hours tomorrow morning, then Tuesday we have Avrianna's Brownie Christmas party that was cancelled last weekend due to Blizzard Aiden, and then I have to help out and cook a dish for Avrianna's breakfast Christmas party in her class on Wednesday. Thursday starts Winter break so Avrianna will be home till Jan 3rd :) Not too mention all the medical crap between Danny and I. I have labs and possible port placement...Danny has his yearly physical with Dr Kasper. Then ahhhhhhhhh the holiday's, it's so weird knowing we don't have to go anywhere or do anything (as we used to run all over the place) and we can relax. I can't wait!
Thanks for following us and your support. Words can NOT express how much you and your support means to us.
Please have a Safe and Happy Holidays! From The Osero's

Results

First off...the top topic ME *sigh*. I'm alright bloggies! I know alot of you are worried, but honestly it really hasn't effected me. I think maybe when there is a definite diagnosis it might hit me briefly but right now I'm not acting or feeling any different. It's another thing on my list of to do things...it is what it is and we'll deal with whatever comes our way. I'm alil disappointed as the Neurologist appt (if I want it with the doctor) wouldn't be until the end of July so I'm going to stay on with the Practitioner but that appt isn't till the end of June. I hope nothing serious happens within that time frame. There have been many could be's so far, but not limited too: MS (multiple sclerosis), ADEM (Acute Disseminated Encphalomyelitis), CNVS (Central Nervous System Vasulitis), and some form of demylantion condition as the "insulation" around my nerves in my spine have started to deteriorate. They are lead to these option as they have found lesions (soars) in my brain and cervical spine (my thorastic spine looks good at this point). WHEW! So there is alot more testing to find out why and what this really is. I've heard a lumbar puncture is my next faze. Weird way to look at it is....I'm going through alot of the same experiences that Danny has already, NEAT ~ how many Mom's out there can say that! I look at my son and say "What do I have to complain about, if I end up in a chair?" What I have won't define me or who I am....it might take away some of my abilities but if you know me....that won't stop me! My worst fear (I try hard not to go there lately) is that I won't have the ability to care for my kids.....that would be devasting news! It's not the ability I'm worried about loosing...it's my cognition or my life for that matter. I have two kids that really need their mom, hell I really need them! Well know you all know what I know....which isn't alot but just enough to get you thinking. Thanks again for your support!

Today we went out to the new house....the tile is going in and so is the ceiling lift. I'm so excited! I love seeing the look of the house come together. You see just a small sample of what thing will look like and you really never know what it will LOOK like when it's put in.

The kitchen floorI can't wait to see how this lift works......I hope it helps make Danny's daily cares easier!We also went over to take a look at the changing tables that are being made locally by Steve Lockhart (Enable Design). OMG ~ the fire truck table is going to ROCK! Tuesday the kids and I got to see the head busts of the kids that I am having made locally too by (Tim Brunn) and I am in awe, speechless (I know, I can't beleive it myself). From there we went to see the stain glass (Coventry Glass) that is completed and ready to be installed in the house. It's been a VERY LONG haul and I'm so glad the house if finally coming together =)

Here is Danny hanging around at his last therapy session. Trying to see what he will do on all fours. He did great....we just need to get a bigger and better brace, this one is too small.

This is what happens when you lend over to pick something up on the ground and the cap off of Danny's formula pops open, heehee. She smelled like formula and was so sticky....we had to give her a bath after that, poor Bailey LOL

Today I am going to order Avrianna's 2nd grade school books.....WOW does time fly. I am so glad I get to have this opportunity with her.....priceless time that I will never get back. LOVE you GIRL!! She is doing so well ~ she has excessed all of my expectations.

Tomorrow we have a get together for the 25th birthday celebration for Make-A-Wish at the Timber Rattler Stadium and then we get to watch a game. So exciting.....please pray the rain holds out!!! I will post pictures tomorrow.

Thanks again for following our story....please post a comment or sign our guestbook to let us know you stopped by. We like hearing from you too :)

MRI Update

Not too much to report but the doctor called me tonight at 9pm (that's never good) to let me know the MRI with contrast still shows abnormalities in my brain and cervical spine.  So she is going to call the Neurologist tomorrow and her office will call me in the morning with an appt time.  I had an appt at the end of the month with the Practitioner but my doctor would like me to get in sooner and with the a Neurologist.  That's all I have to report...not much except more tests in my near future to pin point what is wrong.  I will keep you posted.  Thank you for your support and being there along this new journey with me.  SIGH :(

Progressing

Avrianna so VERY PROUD that she can FINALLY ride her "new" bike.  We've had this bike for over 1.5 years in the basement (yeah Daddy was thinking big, LOL), so after that long of just being able to look at it ..... LET'S RIDE BABY!

Here is a video of lil man working with his digital switch this afternoon.  He is doing so well with it.  WAY TO GO DANNY!

Make a Smilebox slideshow

Avrianna and I are so excited that this year we have a GREEN THUMB.  All the pants that we potted and replanted are still alive, WOOHOO.  The new hamster is still kicking too, thank goodness, LOL.

I took Danny into see Dr Kasper yesterday as the "sun burn" I though he had on his face would mysteriously fade out and pop back throughout the day.  I guess something blew or got on his face this weekend that isn't agreeing with his sensitive skin and his has dermatise (sp) so he has a blistery rash on his face.  I have to put cream on it twice a day, poor thing.

Last night I had my MRI with contrast....it went well and only lasted about 1.5 hours.  Mental note do not cross you legs when you have to not move for 1.5hours....legs and feet fall asleep fast and you can't do anything about it, LOL.  Now the sit and wait game for the results.  I will keep you posted.  I hope to hear something by tomorrow, but not sure. I'm on the doctors time now, heehee.

Planting and Replacing

Danny has a VERY red face....it looks almost as if he is sun burned (if he was in the sun then that would be an option) and on his chin is a blister that is seeping. Not sure what has brought this on or what it is, but I think I'm going to be bringing him in to have it checked out. One moment I think it's getting better and then a few minutes later the blister seems to be popped out more and his face starts to get red again. NEVER A DULL MOMENT!
Sunday I went to the store and got a bunch of potting flowers to give the outside alil more color. I haven't done potted plants before so this was an experience. Avrianna and I had a blast putting together a few pots. Then I got a hibiscus (thinking of you Linda). I always wanted one of these and I thought it was cool as this one has two different colored flowers on it.Ok from this angle it doesn't look like much but it took us all day to rearrange and replant. We are trying to make the outside have more "curb appeal" for when we officially put it up for sale. Give it a few weeks and it should start shaping up :)

It was a very sad afternoon here on Sunday........only after having her for 3 days, Rhino passed away. Avrianna was devastated! So we had to to run her back to the pet store for her to be replaced, ugh

Bye Rhino you will be missed!And HELLO Mittens....Mittens is a dwarf hamster. Again leave it to Avrianna to pick the smallest one in the bunch. Boy I hope this one hangs around longer then the last.We also had to put her hair up in the "maze" to make her feel better.....she was just crushed that Rhino died :( Sobbed and tears the whole way into the pet store. I think the people in the store knew exactly why we were coming in....sobbing lil girl with a hamster ball.

Tomorrow I am having another MRI done. This time it is with contrast, in hopes to make the abnormalities stand out better, and they are capturing a larger area. This procedure is going to take about 2 hours this time.....the last one was only 45 minutes. UGH ~ Two hours in a very lil tunnel and you can't move...two hours of clicking and banging. What if I have to pee ~ LOL. I will keep you all posted...see never ask "What else" as with our family there is ALWAYS a "What else" right around the corner! ***sigh*** Really when will the health issues STOP!

The Big Foot Walk

When we got to the park the clouds were out and it was VERY windy.  So we were freezing, within a half an hour or so it warmed up but boy the wind didn't let up one bit. Danny had some issues with the wind, but alil more venting and he was a trooper for his sisters program.  I know Danny is so proud of his sister....she is go good with him.  I'm one PROUD mom of BOTH my kids!  The Osero kids ~ our Team name Touched By An Angel ~ won a door prize because we were the highest pledged walkers today!  THANK YOU to everyone that pledged ..... what a wonderful program.  Avrianna was just tickled pink to not only show off her brother but to go up and accept the prize.  Thanks again ~ if you didn't pledge but still wanted to... they stated they are going to keep the fundraising page open for a few more weeks.  To pledge click HERE

Walking hand in hand ~ both VERY Proud to be each other! (lil tricky getting this picture by ourselves, they were going down hill, LOL)

Harriett Redman and her son, Phillip....Founder & President of the wonderful program Fox Valley Sibling Support Network.  Thank you Harriett for giving the siblings a place go and feel "normal".  What a great program!!They had games!

Better in the front seat then the back, right? heeheeThey has some therapy dogs....this one is Poppet what a GREAT dog.  I got some information from Poppets mom about the Therapy Dog program here in the Valley =)Avrianna found a new friend.....And Poppet found Danny ~ SMILES!!!!  Danny was so into Poppet...he kept turning his head to look at him (which by the way meant he has to turn his head to the left, Way to GO Danny!)  I hope to get a companion/therapy dog for Danny.  A small one that can be with Danny on his lap or/and in his bed.. a buddy that Danny can rely on :0)

Avrianna got her face painted

The TWO BEST KIDS I could ever wish for ~  I LOVE YOU GUYS!Just a quick update on the MRI status.  I did get Danny's images burned on a disk that also had the radiologists report on it.  I don't have a clue what the images mean to me yet, but the 2 paragraph report states that he has SEVERE BRAIN DAMAGE due to an earlier injury.  No doubt!  I'm glad there hasn't been any change or any new findings with Danny, but now I'm very interested to sit down and go over the images with the doctor so they can tell me what's what.

I got my MRI done yesterday and they also gave me a disk with my images on it.....again Greek to me.  The report wasn't on there, but I did get the radiologist report last night via online.  They found multiple abnormalities in my brain and neck area so I am going to have another MRI this time with a contrast and they are going to do more area.  I have all the terminology of what they found, but again GREEK to me with most of it.  So much for the "pinched nerve" looks like this is REALLY involved.  I kind of knew it wasn't good when my report was longer then Danny's, LOL.   I really don't have too many answers yet so I can't really say much.  I haven't even spoken to a doctor about the report ... just talked to the nurse stating they are going to call me on Monday to schedule ANOTHER MRI soon.  I will keep you all posted with this.  NEVER A DULL MOMENT....just when I think life is going well.  Oh well ~ It is what it is, I won't be able to change it, I'll get through this too =)  I just pray and hope I can still care for my kids .... that's what scares me the most.

Here's a picture of Danny and his therapist during his Physical therapy yesterday.   SO BIG!  He did great.  Today he had PT and OT tag team him and he did awesome again.  Of course he was showing off today as this was his last therapy session of the school year, LOL

A Preview of just some of the paint colors in the house....and they started the stone on the fireplace today too

 

Nanny Checking out Avrianna's room ~ I know check out that color, WOW

Looking into the dining room ~ the stain is starting to go on the windows and the doors too :)

Guest bedroom on Main floor ~ Calily Room

Front of House
Backyard and Pool

Tomorrow I go in for my MRI.....glad that we'll be able to get a better feel of what's going on with this "pinched nerve".  I hope I will get some answers soon.

This weekend on Saturday the kids and I are going to do the fundrasing walk for Fox Valley Sibling Support Network and we are excited.  Dan is throwing a bachelor party for his best bud Tim with a few of their close friends.  I hope they have a blast!!!  We're so happy Tim and Amanda found eachother =)

Productive Whirl Wind Day!

HOLY COW was today busy, but it went smoothly. This morning Danny and I went on our way to the hospital for his Renal ultra sound and afterwards to see his urologist to talk about how he has been and go over the results of the u/s. Of course they like to see the bladder full for this test..........and he peed right when she squirted the jelly on his belly, Oh well :) Once I got up to the doc appt they stated they needed a urine sample........well that would have been good info to know a few minutes AGO, sorry :) The doc came in and stated the "bubble" in his left kidney last year isn't a "bubble" anymore.....so he sent me down to x-ray. Danny had his MRI scheduled for today too so I needed to put the x-ray on hold to do the MRI (which he did AWESOME). I had given him his sleeping medicine (instead of sedating him) so I wanted to take advantage of the "heavy eyes". Unfortunately after the MRI was already in process I find out that no one made sure the Medtronic (ITB pump) rep was there to monitor it. UGH!!!!!!!! They did get ahold of him..........IN GREEN BAY 40minutes away and IN SURGERY! But he reassured me he would see Danny before the end of the day (which I was told wasn't a bad time frame, sigh). I should hear from Danny's Neurologist in 7-10 days with the report. I am very excited but very anxious about the results of really HOW MUCH BRAIN DAMAGE MY SON HAS. It'll be all good, I'm sure of it :) After the MRI they wheeled him across the hall and did his x-ray of his kidney. Then we went back upstairs to go over those and to hopefully be able to obtain a urine specimen, LOL. Well the X-ray didn't show any signs of this "mass" in his kidney......so why don't I go down AGAIN to have a CT done. We were able to get a urine specimen to be tested and cultured, YAY, but not without peeing around the catheter, heehee. I guess he told her where she should stick it, LOL. So down to get the CT scan ~ Yes I couldn't believe it either all were able to get Danny in right away, like that EVER happens. The CT does in fact so the mass, but not in the solid form that he had thought....the doctor was thinking a BIG stone, but this is "mooshie" (like my terminology) and in a "pocket"plus his kidney has significant calcium deposits. Now we have to schedule a scope surgery so the doctor can go in and find out what this mass is. YIKES! "On a good note", the doctor says I get to see more of him......we have a comedian here, LOL. He's a great doctor but really don't want to be seeing more of him :( But will do what we have to do. Then the urine tests came back...his PH levels are WAY TOO HIGH. He believes the PH level and possibly the mass is all due Topamax (which is one of Danny's seizure meds) so here we go again....waying which one is more important? I have a call into Dr Kasper to go over today's knowledge and get his opinions. Plus the Urologist is sending a complete report to Dr Kasper and Danny's Neurologist.
With 15 minutes to spare Danny and I hopped in the van drove across town and went to my physical, oh yay! She says I look GREAT! She is alil concerned about the headaches and the tingling/numbing in my legs also so I have an MRI for myself a week from today. And because I didn't have time to eat breakfast or lunch today I was able to do all my blood work instead of having to come back....BONUS! I'm not too worried about the MRI....it is what it is, my kids have shown me to NOT get uptight about the medical stuff. And we'll deal with whatever path life takes us/me......I look at my lil man and know there is NOTHING I CAN COMPLAIN ABOUT, if I have to go on with alil of what he is living so be it!
As I was pulling into the driveway home there was a man wearing scrubs in my driveway.....yeap they pump guy came to our house. HOLY CRAP! He was so very nice.....he even set off the alarms so I would know what each one sounded like...non emergency and emergency. The pump did in fact shut down when Danny was in the MRI.....but it reset itself about an hour after the MRI, whew that was good. Thanks for coming out for a house call!
Dan is off racing tomorrow so if you got nothing to due....stop on down to WIR in Kaukauna, and check it out. They have show with wheelstanders and possibly some JET cars (my personal fav).
Our walk is on May 30th so ~ Please pledge your donations by clicking on the box to the left in our blog for Firstgivings and sponsor us on our walk for the Fox Valley Sibling Support Network fundraising walk. To read more on the FVSSN
Thanks for checking in on us!