The Verdict

It sounds like Monday we'll be able to go home! If he wasn't on TPN we could have gone home yesterday (Saturday), but the home health agency will need to make up the TPN n deliver it to us so with it being a weekend they weren't sure if they would be able to have it completed. That's ok, there is an end in sight, and Lil Man continues to do GREAT! I was so worried about this surgery and here he proves me wrong once again .... I'll take being wrong when he's too the better :) Last night Dan and Avrianna came down to visit and took me out to The Cheesecake Factory. UGH, I still think I'm full ~ LOL. We had the Oreo Cheesecake for dessert ~ I had alil bit of heaven :).
Well not too much to report, but I guess that's a good thing....right? I ended up finding out some of his meds were not correct on his med sheet so I'm hoping now that we've corrected things he's urine output improves :) Danny also had 2 "code browns" yesterday after each enemia....glad to see they are starting to give results :) BUT still no significant bowel sounds..WAKE UP already!
Avrianna had talked my ear off with all that she did at Girl Scout Camp. I'm so glad she enjoyed her camp time which I know helped keep her mind off of her brothers surgery :)
Thanks for stopping by to check in us! We LOVE to hear from you guys too so post a comment or sign our guestbook to let us know you stopped by ~ Until next time

Straight UP! Before n Afters

X ray showing Lower Lumbar curve and cath tip in the middle of his back BEFORE VEPTR

Xray showing the curve in lower lumbar.....it's almost gone! View of lower rods of VEPTR

View of upper part of the VEPTR rods......he's so tall they can't get it all in one xray any longer

BEFORE surgery the right side of him was 43" and the left side was 45" tall. Now that his pelvis is more level he is ..................... 47.5" TALL. He is actually 47" on the right side but WOW that's a 4" gain on the one side and his sides only differ half an inch instead of two. HOLY MOLY!
Sitting up BEFORE the VEPTR ~ impressive curve

Sitting up 48 hrs AFTER the VEPTR ~ AMAZING!

Danny only gave PT this face for a few seconds and then sat up in bed for over 5 minutes. What a ROCK STAR!

Back views ~ they are going to change the dressings tomorrow so I'll have a better idea of what's going on under those bandages.

You can see a LARGE abcess looking bubble in the center of his back......this I'm being told is "ok" muscle swelling from the rods being threaded under the skin.

In true Danny form he has thrown a few curve balls our way. Unfortunately his belly n GI tract hasn't woken up from surgery so they are starting TPN tomorrow. This is something I was totally prepared for, but was hoping it wouldn't happen. His CRP levels (inflammation marker) is extremely elevated so along with the high heart rate, fever, and lack of urine he has the doctors on their toes to figure out what is going on internally. Welcome To MY World, LOL! This afternoon he went into a hour spell of retching, boy that is so hard to watch. He couldn't catch his breath, poor thing! He is resting peacefully right now:) So far all n all I'm very happy with the VEPTR results. We'll see what this evening and tomorrow brings our way. He's had a Great team of nurses taking care of him....I've even gotten out of the room this time here n there to grab something to eat. Boy does that make the stay here SO MUCH easier when we have good nursing care and not to mention consistent nursing care. We've had the same nurses every day n night. They are starting to get the "Danny" way :0)

I talked with Avrianna and she is having a GREAT time at Girl Scout Camp. Yesterday they did tie dye, to was pool day, and tonight she is sleeping over at the camp. Sounds like a FUN time! I can't wait to see her and give her BIG Hugs n Kisses.

I've been keeping myself busy here between chattn it up on FB (what a great outlet of support) and have about 1/3 of Danny's birth to 1 scrap book done. Everyone that stops in wants to see it :) I LOVE talking about my Lil Man!

Thanks for stopping to check on us!