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Love this T-shirt....so appropriate! Everyone always wants to kiss him!! Thanks Griffy for the shirt! Too bad he was so sick when I took this. You can see how glassy his eyes are and how pale he is. Danny is going on 2 weeks with this last bought of Pneumonia ;( with no real improvement as of yet. Yesterday we went in for labs and more xrays. We started up steroids yesterday and MORE breathing treatments. Poor guy! I feel awful he been so sick lately. Guess I had this false impression that the trache would help him, well I guess it does with the cares of the pneumonia, but I was hoping he wouldn't GET it so much. This makes #2 in the last 2 months. As I know all TOO WELL every pneumonia it gets makes his poor lil boy more tired and can cause more damage to his lungs. I worry about that amount of pneumonia's he has had this year and I'm FREAKING out! I was always told that what Danny has won't take him, it will be a respiratory problem that will............... I'm worried :(
Here's is Danny's other nurse Meghan! I'm slowly getting pictures of Danny with his AWESOME caregivers. Danny and I are SO LUCKY to have wonderful people with us :)
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Avrianna being silly last night! :)
1 comment:
I ran across your blog a couple of days ago. I was wondering if Danny has a CoughAssist Machine. My sister is multi handicap and has had a trach for 8 years. She is 16 and has a history of respiratory problem(pneumonia). Three years ago she got a CoughAssist. It is WONDERFUL. You hook it up to her trach after a breathing treatment and it literally coughs for her. It has made a HUGE difference in her respiratory issues. Here is the link to the website: http://www.coughassist.com/
Check with your doctor about getting one for Danny. It will really be worth it. Email me if you have any questions.
Tia
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