Where did June GO??

We just ran through June and are stepping into July.  Lets see what July has to bring us.

Danny pretty much hung out and tried to stay healthy for his much needed surgery.  

It was a rough day for Ms Gail :)  Glad they are able to "enjoy" some of the day as Lil Man has really kept her busy lately.

June 25th marked the 3 yr anniversary of the crash of '09 when Danny coded after 11 days of being hospitalized for a respiratory illness.  He was ambulanced down to CHOW for the duration of our 79 day stay.  What a lil fighter he is !

Yesterday Danny had his VEPTR rod lengthening done along with having his ear drums permanently perforated.  He has had a LONG battle with ear infection and ear tube issues (he's a tube pusher) so he now has holes in his ear drums allowing all the fluid and goo to drain out all the time and "Naturally".
Here he is all ready to go into the OR...sporting the hospital gown I made him and the matching cap n booties that Ms Keren made him.  He was the "coolest" kid in the OR, let me tell you!

 Surgery was late so we had ALOT of waiting .... like 3 extra hours :(  But they got him in and he did FANTASTIC!  Dr Tassone once again grew Lil Man about another 1".  YIKES!!  This HAS to STOP.  Look at where his head is on this bed and this was taken BEFORE he grew.  OMG

 Ortho did have comment that I could indeed STOP Danny from growing.  Of course I knew his back could be fused so his torso stays at that length, but the Dr also stated he could go in and sucher Danny's growth plates then in turn totally stopping the growth process and keeping him this size.  Not sure we'll need to go there, as Danny is pretty far into puberty already so he might stop all on his own.  Dr Kasper said to NOT rule that option out, but we'll look further into his "growing" before making any drastic decision like that.  I was told hat even though to sucher the growth plates is a very quick and easy procedure....it is a pretty painful one.  I will feel as if he had broken bones all over :(  I need more research.

4hrs after surgery Danny and I were on our way home :)  What a super trooper!!  Today he is doing pretty well all things considered.  He is riding the vent and having some GI issues, but we are able to keep things under control for the most part.  It will be awhile before he is back to his baseline.....I'm just glad he's well enough to be in the comforts of our home with "his girls" taking care of him.

I ordered some Tubie Whoobies to for his G-tube.  I couldn't decide so ........................aren't they adorable?!

LOVE my new sassy bumper sticker ~ saw this and I just HAD TO HAVE IT

Avrianna has kept me pretty busy with all her summer camps ontop of her Diving/Trampoline, playing with friends and sleepovers.
She had a week of Volleyball camp....and she Rocked at it!!

 The next 2 months for 2 days a week she is doing archery.......of course Rocking at that too!

 Next month she is going to try Karate.  I wonder if this kid can NOT excel at something, LOL.  I'm so proud of her :)
Last week Avrianna become a "Mommy" of 2 guinea pigs.  The brown one is "Teddy" and the tri color is "Bugsy".

  She spend ALOT of time with them and can be found in her room chilling out watching TV with them.

Well that was June in a Nut Shell.  I hope I can be alil more organized and update more in July.  Usually we are off Up North for the Fourth, but this year we are going to be hanging out at home.  We'll give Danny more time to recover and check out the festivities around here.
I hope you ALL have a SAFE and Happy 4th of July.  Please remember it's not about the BBQ's and the fireworks, thank the ones that serve our country.  Our freedom isn't FREE!!

All Seaons Photography

SERIOUS DILEMMA HERE!! 

Last week we had our family pictures done and now I have to decide which ones to have printed.... You will see what I mean ~  

They ALL are fantastic!  

How is one to choose ??  LOL

Thanks to All Seasons Photography for coming out to the house and capturing some AMAZING moments for us to cherish FOREVER.......even though we were dealing with the thunder, lightening, hail and rain :)

 Going to plow this one up

I think this one is going to be big portrait ~ I LOVE our expressions 

 Proud Dad

 Beautiful

 Sibling LOVE is like No Other

 Angelic

 Stunning

 He had such a good time :)

My Favorite :)

  In Our daughters Eyes ~

I couldn't have asked for anything more.  The photographer was fantastic :)  And you can tell Danny liked her as he hasn't smiled/flirted like that in a LONG time. 

Thank you again All Seasons Photography

All Seasons Photography

New London, WI

She does photos In or Outdoors ~ At her studio or she travels

Go to www.photosbyseason.com, follow her on FB, or  call (920) 982-0799

I promise you ~ You will not be disappointed!!

Bittersweet

Today I will have a 5th and 3rd grader......what's up with that?  Where has the time gone?  I remember hearing all the time, when I was younger, how fast time goes by and I never understood what that meant....until I had kids.  WOW~ the time is slipping away.  I'm extremely proud of their accomplishments thus far in life.....but I want to be selfish and keep them here always :)  I feel just ill thinking about my lil girl all grown up and moving away ~ I know it will be here before I know it :(

Last day of school and he got a Dr's Excuse ~ lol

This week we closed on the sale of our condo in Florida.  I'm glad that process is over with, but I'm sure going to miss that place.  Lots of memories and wonderful people there.  The kids and I spent a lot of time together there in the winter (months at a time), when I home schooled Avrianna, before the "Crashed of '09" (I was dx with MS and Danny was hospitalized for 79 days straight ~ he coded, then trached, and had a hell of a time recovering).  What a great place it is, and it was great for our family, but once again our lives have changed and we need to keep moving forward .

We have our house on Shady Ln just about ready to be put on the market.  What a haul that was to get it Turn Key Ready, but it was all worth as it looks SO NICE now.  I hope trying to sell it is less painful then it was getting it ready.  With that being said, I will be sad to see it go....lots of memories in that place too.

I know I'm a mooshy sap.

Once again plans in The Osero household have changed.  I "postponed" our DC trip that we were going to take this week as Lil Man is still full of unexpected surprises ie: Not peeing regularly, seizures, GI bleeds, pain, more ventilator time.  Just this morning due a routine trache change I noticed inside his trachea to have a not so nice look OR smell (YUCK) to it.   I don't feel comfortable taking him out of state when he is so unstable.  The choice to not go now was not an easy one to make, and having to tell "A" we were postponing it ..... well that just broke my heart.  As I know she really wanted to go and I hate having to disappoint her.  This is the 3rd trip we've had to cancel in a year :( Unfortunately she knows this is Our lifestyle and that's how we roll, but it doesn't make things any easier.  DC will always be there and we WILL get there!!

Life here is a roller coaster ride and we just need to sit back a hang on for the ride.  If we dwell on all the things that "change" we won't enjoy this things that are in front of us.

It Happens :(

BRISTOL, Va. -- Emergency crews rush to help a when a child's wheel chair overturns into a creek.

Crews are treating the case as a near drowning

It happened in Sugar Hollow Park in Bristol, Virginia this evening.

Crews were called to the scene just after 8:00 PM.

We've learned a young boy in a wheelchair ended up in the creek.

Bystanders pulled the boy out of the water; then crews rushed him to the hospital.

We’ve learned the boy is expected to be ok.


As you can see one of my good FB SN Mom's had a pretty rough weekend so I thought I would share with you/her OUR story in hopes to show ACCIDENTS happen even to the "BEST" of us.  First I would like share that I am so upset with the NEWS for printing this without all the facts.  The most important of all is that the brakes failed on the wheelchair!  This mom is a WONDERFUL mother and her son is SO BLESSED to have parents to care for him.  This was an accident due to failed equipment and all of us with wheelchairs now how the brakes can be.  Don't beat your self up, You are an AMAZING mom and an inspiration to us all.  Love You Guys!!!

Ironically tomorrow is the anniversary date of Danny's fall back in '07.  I don't think I've ever publicly admitted this one as I felt just AWFUL, but to show that our "Special" kids can and do indeed have accidents.....well here it goes.

The kids and I were out at my girlfriends house for the afternoon and when I came home I saw my husband trying to back up the enclosed car trailer with the extended cab long box pick up in our driveway.  So I drove the van (we had the full size green machine at the time) in the garage, turned it off, and left the kids in the vehicle to watch TV while I helped Dan back the trailer in.  I "thought" that was the safest spot for them to be.  Mind you at this time Avrianna was 4.5yrs old and Danny was 3.  I was unaware how attentive a 4.5yr old Lil Girl could be, AS she thought she would help Mommy by getting Danny out of the van while I helped Daddy.

I had NEVER shown her how to get Danny out of the van, but she was obviously watching ME.

I could not see the van in the garage as I was in the back of the trailer directing Dan.  When all of a sudden I heard this UNGODLY SCREAM!!!! One that I have never heard before nor wish to every hear again.  I ran as fast as I could back around the trailer towards the garage.....I was in flip flops so I went ass over tea kettle trying to get there and my shoes went flying.  Dan threw his truck in park as he was flying out the door and when we got to the van this is was we found............

Danny flipped over face first on the ramp n concrete floor with his wheelchair on top of him and Avrianna laying along side of him.

I couldn't breathe ~

Danny was knocked out cold and very banged up.  I know you are not suppose to move someone with a possible head trauma but I COULDN'T leave him there like that.  So I held his head tight to his head rest and Dan n I flipped his chair over, placing it back on it's wheels.  Avrianna was still screaming.....I'm sure in shock, and she also got hurt.  I told her to RUN to our neighbors house, tell Lynn what happened, have Lynn look her over, and STAY THERE.

I wasn't sure if this was the it for Danny and didn't need Avrianna to see that .........

I was screaming at Dan to call 911 (yes I didn't have my cool calm demeanor, like I normally do in a crisis situation).  I didn't handle this crisis well  AT ALL ~ I was a MESS!!  Danny was still KNOCKED OUT and I really had thought this possibly killed him.  Once the first responders arrived Danny was starting to open his eyes alil, but he still didn't cry or make a peep (he NEVER did cry for this fall).  I guess he thought I was making enough fuss for all of us :(  It was very difficult for the paramedics n EMT's to figure out too what extent injuries Danny had when.......he already has severe brain damage.  All of the "normal" signs are already abnormal for Danny's normal.  He can't talk, his eye don't dilate right, there is no body tone, seizures,  etc.

*SIGH*

When the ambulance got there the took him out of his chair very carefully and put him on a stretcher and C collar.  And as I was telling the paramedics and police officer what happened ..... I felt as if I should just hold my arms out and have them cuff me right there.  Yes officer,  I left my 2 very young kids unattended in a vehicle.  Thankfully he didn't cuff me, he tried to console me, and once they had Danny stabilized for the ride I flew in the back of the ambulance to head to the ER ~ where I got to retell the story over to all of them.

 I FELT LIKE THE WORST MOTHER EVER!!

So this is what happened ~ well the best I can put together as AGAIN I wasn't there.  UGH!!
Lil Miss "A" got Danny out of the van ...... took off his seat belt and chest belt, Unlocked the easy lock system (which locks his chair to the floor of the van), opened both the big side doors on the full size van, and lowered the lift.  She then proceeded to roll him out on the ramp.  Which would have been just fine BUT...... instead of lowering the ramp to the van floor level, she lower the ramp all the way to the ground level and then pushed him out the van doors.  Once she realized what was happening, she held onto the chair as it was falling out of the van, and she went along for the ride.  I truly believe if she wouldn't have done that, to help tip the chair alil on the side, and have her body take some the impact .... it WOULD have killed him.  He fell face first from about a 3ft drop onto the ramp grate and concrete floor with his 75 lbs wheelchair ontop off him.

That's when I heard Avrianna's SCREAM!

Once at the ER all they could really do is CT scan his whole body (to find out what kind of injuries and where they were) and to monitor him.  So that's what they did ~ Danny sustained a concussion, sprained arm, wrist, leg, ankle, some nasty cuts n bruises on his face and he spent a day in the hospital.  We got very lucky things didn't turn out worse.  I was pretty banged up from falling while I tried to run with flip flops.  Avrianna had some bangs n bruises BUT the most damaging for her was the emotional side.  I couldn't get her into that van for weeks after that :(  And she refused to push Danny in his chair for a very long time.

She felt awful and was emotionally scarred :(

Well that's our story ~  the medical team afterwards joked that Danny had his first "regular" kid fall.  I'm glad he was ok and that was the only "regular" kid accident thus far.

Camera Craze

Well you ALL know me and my OCD with Pics ~ So I though I'd share some of the last weeks moments.  I just love pics ~ you can look back at the memories.  I know all too well how fast things can change and I don't wont to forget or miss out on any memories. 

 We never know what the next moment will bring.  The reality is ~  live life in the now it goes by so quickly.

"A" having a blast in the pool with her friends

 She is also my poser.  So one night we had some fun with my phone ~ wow is she growing up and becoming a beautiful young girl.  I Love Her!!

 So I HAD to have a day with Danny :)  I'm so glad I was able to get some pics with him out of his wheelchair and off the vent.  What a Handsome young boy ~ Love you Lil Man

Please Don't take a breathe for granted ~ It comes so hard for him. There are too many vivid reminders that Danny also is just a heartbeat, breathe, or a seizure away from death.