Wednesday, September 18, 2013

Bump in the road

"A Mother understands what her child doesn't say"


Just when you think you have an issue taken care of......

It is NOT!!

Danny has been in alot of discomfort, as I stated in the last few posts.  Well we once again went to the Dr's to do some "hunting"...this time with xrays.

This is a photo of his right hip/femur after his girdlestone procedure (where they cut off the head of the femur to alleviate his hip from dislocating), a couple years ago.
(It's backwards) ~ but here is the xray from yesterday.  As you can see the top of the femur is no longer flat, but it has now grown out into a sharp point. 
Owwwwwwwwwie!!!!  
Of course the Ortho Dr/Surgeon is out of town this week, so we are going to keep him comfortable until we can get a game plan when the Dr returns.  I talked with his PA today and she told me that the Dr is already aware of the issues at hand with Danny so at least he can brain storm alil.  I'm going to assume that there is going to be a surgery in Danny's near future.  
There are two issues that are going on with this ~
1. the femur bone has migrated up due to the shorten muscle in his leg and 
2. the bone has regrown UP (and into a point) from where it was cut off.  
There is alot of clunking and crying when moving his right leg or knee.  I'm not sure if the knee is a separate issue or if it ties in with the leg/bone.  Once we talk with the Dr maybe he can shine some light on the situation.  But for now comfy is our main goal!!

UGH!!

So we see alot of this face :( 
 Pulling at the heart strings!!

 Here are his scoliosis xrays that we took yesterday too.  Amazing how much this lil boy has endured in his 9yrs of life.  He is my HERO!!  What a strong lil Man!!  At least his back is healing and doing great from the spinal fusion.
WOW!!  Did you check out those screws?!?  Hell ~ did you check out all that hardware?!?

Today marks my last year in the 30 something range.  Yea it's my bday!  It's been a great day.  Danny has been pretty comfortable, I got some beautiful yellow roses, went out for breakfast, started a new workout (Focus T25), and got a banana cream pie :)  (kinda throws the workout out the window, but I can't say NO to banana cream pie!!)
Avrianna has a half day today from school, but there is no hanging out with mom as I'm not cool enough.  LOL  She has some friends over and they are playing Wii Dance.  Tomorrow we are going to go out for lunch to the Melting Pot to celebrate our birthdays as Dan's is Friday the 20th.  September is a busy celebration month for us ... our anniversary is on the 8th (it was 12 yrs this year), My bday, Dan's bday, and Bailey (my 4 legged baby) is going to be 13 on the 21st.

I will keep you posted with what the next step is going to be with Danny.  I hope we can get everything taken care of and have him back to a comfy state before our vacation in October.  I've had to cancel this trip 2 times already and I don't think I want to cancel it a 3rd time :(

Tuesday, September 10, 2013

Back on Track

Things at the Osero household are back in full school year swing.

We definitely like to be BUSY :)

Avrianna's first week of school went GREAT!  She is making new friends and really likes the teachers and curriculum .... so far.  Her week schedule is FULL....with School 5 days, diving 3-4 nites, piano 1 nite, Confirmation and bells 1 nite, and brigade 1 nite.  Mom's taxi service is up and running :)  There is NO more room for anything else, even though Avrianna would love to add more things on her plate if I let her.

The mystery was solved on Mr Danny.  We brought him into see the Dr (not Dr K as he was out on vacation, of course.  Danny loves to get ill when Dr K is out) and after a thorough exam she found that Danny's throat was raw with blisters.  He was diagnosed with Coxsackie Virus.  We still did a panel of labs with blood, urine, and stool as his system was out of whack.  We had thought he had another UTI, but thankfully the specimen was just contaminated so no further treatment was needed.  Everything else came back normal except Danny's potassium levels were low again despite adding in potassium into this daily nutrition already.  So we upped the dose to 2 packages and we'll see how that goes.  With all the results coming back normal, it looks like his autonomic system is going even more crazy when he is ill ... a new "normal" for us to get used to.
I officially took Danny out of the school system last week.  It was a difficult decision, but I just didn't see any advantage as there really hasn't been any progress in the last few years.  I will miss his teacher and therapists greatly they have become great friends through the years.

I have plateaued once again in my mission to become healthier.  This week I've stepped up my game and started to get out more to walk and I've made a valid effort to make better food choices.  I kind of let it slip alil this summer.  I did gain about 3lbs over the summer and that was disappointing to know that I let my hard work slip.....so it's GO TIME.  I am going to start something new and try an exercise workout....I've been doing alot of brisk walking anywhere from 1.5 miles to 4 miles depending on the day, but this is going to be a lot different for me.   It's called T25 from Beachbody.  I'm excited and worried....I'm just not sure what my body will allow me to do.  Well I won't know if I don't try,      Right?  Along with my natural supplements and this T25 workout I'm also going to try Shakeology.  I will post my highs, lows, and results with you guys......my wonderful blog support.

GOD HELP ME!!

Dan is loving that the weather is cooling off, the leaves are starting to change, and hunting season is right around the corner.  This year is going to be extra special as this is the first year Avrianna is going to be hunting with him.  Well not the actual season opener.....don't think I can subject her to that yet, LOL, but she is going to be participating in the Youth Hunt.  She is very excited...and so is Dan.  They both are like two kids when they are taking about getting ready, what they need, and practicing.  Avrianna got her own gun last week and they went up north this last weekend so they could get her gun sighted in, practice shooting and check the trail cameras.  Dan was floored when the first shot Avrianna ever took with her gun was .......

A bullseye!!  And the next 7 shots were also ALL in the red bullseye zone.
She's a natural!

Tuesday, September 3, 2013

Here's to a Great School Year!

6th Grade is here!!  First Day of School she's ready and excited....Bring it on!!  
 The bus stop is further away this year so Avrianna is going to ride her bike to a friends house down the street and then they will walk to the bus stop together.  I'm sure when she has to bring her trumpet in school I'll have to drop her off, but who knows ..... Ms Independent will figure out a way to get it all on her bike :)  This year she also will have to transfer buses so she'll have 2 buses to get to school and 2 buses to get home.  We live maybe 7 minutes away from school, but she gets on the first bus 1hr and 15mins before school starts.  We might be taking her to school more often then riding the bus.  We'll have to see how it all plays out the first few days.
 Where are the years going ??
Homeroom, Math, Reading, Science Teacher Ms Galica
Language Arts and Social Studies Teacher Mr Sollitto
Check out his room.....so cool :)

The last few day have been rough on Danny.  Once again he is in serious discomfort and I don't know why.  I have a few ideas....but nothing that is jumping out at me.  Man would I give anything for him to just be able to point in the direction.  SIGH!!  Most of his waking hours is grimacing or crying.  My heart is breaking!!

First day of school and he is resting comfortably, for now.  He was up at 4am crying away, so I'm very happy he was able to get some more sleep.  I did not register him for school this year, let's see how this goes with the school district.
I have a few calls into the doc to see what we can do to help him out.  I hope to have some sort of idea of what's going on very soon.  I HATE not knowing what's wrong and to see him so miserable is taking a toll.

With the summer coming to an end....So is the Garden.  Let the Harvesting BEGIN!!
We picked 3 - 5 gl buckets full of roma tomatoes and started getting busy canning.  We ended up canning 15 quarts of spaghetti sauce, YUM!!  I think we'll have at least another batch of tomatoes that big to get out of the garden yet.  
I'm not sure if we are going to have such a large garden next year, if one at all.  They are alot of work and we just don't have the time or energy to maintain it.  I said "that's what they make Farmers Markets for"....they can grow it :)  The only things that did well this year, was the tomatoes, zucchini, yellow squash, and strawberries.  SO much for the beets, peppers, beans, peas, cucumbers....not worth all that time when the stuff doesn't grow.  

I Saw this bumper sticker.....and HAD TO HAVE IT!!  


I wish everyone a safe and exciting 2013-14 school year.  Thanks for stopping by to check in on us.  As always....I'll keep you posted!

Friday, August 16, 2013

Where as the Summer gone??

2 week left of summer......WOW!  It sure doesn't feel like summer is ending.  Man does the time FLY BY!!  School registrations, pictures, and open houses are just around the corner.  Didn't they just get out of school.

Avrianna had her first time around the new school the beginning of August where they gave them a mock schedule to see what it's like to move around, she got her locker with com, and learned she will be in the Enterprise "house" for the next year.  She was alil bummed as this house has the leasr amount of teachers then the other houses......she was looking forward to having different teachers.  I told her she has alot of years ahead of her with tons of different teachers.  Avrianna has registration next week and there she will get her real schedule and then the week after that they have open house at the school where she can look around more and fill up her locker.   I believe we are done with the school shopping for clothes and supplies :)  She went into see the Dr for the vaccines she needs for 6th grade, poor bug got her shots the day she went to the dentist to have work done in her mouth which required lots of shots....she was a trooper though.  Avrianna is now wearing daily contacts instead of the ones she wore at nite.  I hope there will be less issues with getting her to wear these softer ones.  So far so good!!

Once again I'm at a cross roads with Danny and school.  I KNOW he will NOT be going into the school setting, but I'm pondering on if I continue them to come out to the house.  Danny is so hit and miss with either him nothing feeling good or if he's sleeping.  I absolutely LOVE his teacher and therapist....I just don't want to waste their time.  Danny seems to have plateaued with his abilities (school wise).  We have just about everything we can think of to help him right here at the house and the nurses do well with using the resources we have here for him.  I enjoy them coming out to the house ...... so is it more for me then for Danny? LOL

Danny has been a mystery here and there.  We have an appt with Urology next week to see if he has any ideas as to why all of a sudden Danny is getting UTI's.  We've been into see the ENT for his ears as both of them will actively start to bleed.....for what reasons we do not know.  And last week this shows up all over his scars................

 Theory is there was Whey in one of the formula supplements I had given him and it was a reactions to that.  OR he has been "off" the last week + with crying and irritability (again no answers as to why) so maybe it was a virus that broke and ended with the hives.  I guess some virus' can do that?  But why only on his scars??
My medical enigma  :)  He's so damn cute!!

We are having issues with the carpet in our house.......what else is new with this house, sigh.  Man this is getting REALLY old!!  Back in December I found this in the middle of our living room floor.  My first thought was to blame one of the dogs....why not?  We had it repaired and then more n more were showing up.  You'd think I would see them doing this, I should see fibers laying around, or at least in their poop when I pick it up.  NOPE none of the that.  We know have 3 upstairs and 3 holes downstairs.  UGH!!  The fibers are just GONE.  I went to the carpet place to let them know how unhappy I was about the holes and to look at getting new carpet.  Now the theory is there could be a flaw in the carpet adhesive.  We'll see what comes of all this, but either way I'm not looking forward to recarpeting the house.  Blah!!

 New carpet ideas, have prompted new furniture for the living room :)  I got a sectional when we first moved in and it has been driving Dan NUTS from day one.  The room is an octagon shape and to fit an L shape sectional in there really doesn't work well.  So I had separated the pieces showing some of the hardware on some of the sides and Dan didn't like it at all.
Well there is NO MORE of that.......


 Yesterday I took Avrianna and my nephew to Wisconsin Dells at Noah's Ark.  It was alil cooler, but it turned out to be a great day with the lines ..... well there really was NO lines.  They got to do all the rides that were open at least once mostly twice and even more on some.  All those rides and we still were out of there about 4.  The sun felt great!!  That water was COLD!!!!!
 right before the wall of water was going to hit them :)  they are standing in the middle
 brrrrr

 I watched on this ride - Someone had to take the picture :)


 All those death defying rides and they both loved the zip tie over the pool.  All I kept thinking about was the movie "Grown Up's", lol

 

 Where's the Waldo's??
 Found them



 I did a good job "supervising".  I went on most of the rides Once.  Then that was enough for me.  Sitting in the sun.....now that's my zen.  
 Since we had time and we didn't want to go home right away.....we went to some other Dells sights.
Top Secret.  The upside down white house.  I have to say......DUMB!!  Not worth the money.  We went at $5 ea (normal is $12, I believe) and it wasn't worth the $5 we paid.  The coolest part is the outside in my opinion.


 Then we went on the "Duck" boats.  Now that was FUN!!  We had a great tour guide.
 And look who got to be the drivers co pilots?
 On Land
 And on Water
 Beautiful scenery!!


I hope everyone is enjoying their summers.