Well with Danny the wheels have fallen off and we are vigorously working to see if they can be put back on or if they are truly broken. Danny was admitted to CHOW last night with extreme hypothermia, VERY low heart rate, low platelets, high PTT (blood clotting level), and very lethargic and not responsive. I was really hesitant in going down, but I knew something was up with him. His physicians were all pretty concerned so off we went. We arrived at the hospital we were able to go directly up to the intensive care floor instead of having to go through ER first. Once he was situated in the room they set up all his monitors and his heart rate was 34 and his temp was a frigid 84.9 - WOW! Now that's taking low to the extremes.
We are still in the testing stage, and lots of them. Urine & blood culture, ultra sounds of his leg to see if there are blood clots, X-rays of chest to check lungs, another EEG, and tons of labs.
This is what I know so far about 24 hrs after admission. His lungs have edema (water inside) and they have effusion (water around the outside). His plateles continue to drop and his PTT level continues to climb. His liver and some levels of his thyroid functions are evelvated. The episodes he's been having we're found to not be seizure activity but significant dysautonomic storms. The neurologist feels his hypothalamus (part of brain) isn't working properly. So it'll be tricky to figure put some of the treatment for the storms with his already low heart rate.
The question of the hour is why and how is he so sick. Is something driving all this or is each one related to each other. Danny is definitely keeping everyone busy trying to figure all this out.
I'm Totally exhausted mentally and physically so I'm going to turn in for the night. I'll keep you posted on how things are progressing
Saturday, April 18, 2015
Let the construction resume. The weather is nice and the snow & frost are gone. So it's back to business, as usual. Of course Dan had to get a new yellow "toy" to play in the dirt and rocks. This is our building site for our new building with up to 3 spaces available to lease. Things are starting to take shape and the contractors are eager to start constructing the building. We already have one spot rented to a florist.....YAY as it will be convenient for me to have fresh flowers more :)
Dan is currently in Atlanta this weekend broadening his knowledge at a Clean Show Convention. Good god I can only imagine all the top notch laundry equipment that is there and all the ideas he's going to come home with. LOL
Lil Man had another EEG to figure out what going on with these "episodes" he's been having. It's one thing to have the episodes but they last pretty long and between the effect of the episode and the effects of the amount of rescue meds he needs it's throwing his system into a tail spin with not being awake, low temps, lack of peeing. I was happy that he actually performed this time while the equipment was on. 2 very long episodes!! Which was nice that Danny only had to wear it for 4 days and not 7+ days we had thought. I mailed back all the equipment and now we wait to see what the Neurologist can see.
Starting to get hooked up
Here's a video of him :(
Well it's been 2 months since I started this nutritional cleanse. One word.....AMAZING!! Amazing result, amazing energy I have now, and it's amazing how great I feel. Whala the new and improved ME :)
Yesterday the weather was gorgeous out...the temps hit 73 degrees and I worked outside and enjoyed every minute of it. I planted 15 trees, got about half of the lawn furniture and yard decorations out, and gave all three pups a shower. It was wonderful!! Today it's not as nice out and tomorrow the weather is suppose to be even cooler with rain. We NEED the rain, but I still would like some warm sunshine alil bit more. I was so enthusiastic to be outside I hit my step goal before 1pm, funny when my fitbit calls me an over achiever. For dinner I went out with Ms Gail, our former primary nurse. It was nice to sit around and catch up :)
Last weekend Av, myself, my nephew Tyler, and Tami hit the roads to Chicago again. Av had another dive meet, her last before regionals in Brown Deer on April 25-26. It was a very small meet, but great experiences non the less. Av took 1st place once again in BOTH the 1M and 3M events ~ Nice JOB!! She's been practicing this week to increase her dive list to some more difficult dives to stay up in the competition. Next year she moves up a diving age level and she will definitely have her work cut out for her. Here are some videos from our last Chicago excursion.
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Thanks for checking up on us! I hope this finds you and your well. Enjoy the Spring and stay healthy my friends!!
Saturday, April 4, 2015
On Palm Sunday Av was the Acolyte for the 1030 service :) It was a wonderful service and we even won a basket at the Auction for the Youth Mission Trip.
Av is spending this Easter weekend at the Mall of America with a fellow diver and friend. Her friends mom and myself were able to surprise the girls with a snorkeling excursion at the aquarium there in the big tank with fish, shark, stingray and such. So jealous!! I'm so glad she is having a great time and I'll be sure to share photos once I get to see them :)
Last weekend we were back at chicago for dive meet and this time we took my mom aka Nanny. It was definitely an experience! We had a wonderful time and Av brought home 2 more 1st place medals. I'm SO Proud of her!! Next week once again we'll be down in Chicago for another meet. Our last meet before Regionals the end of the month. Stay tuned ! For now here is another slide show of our last meet in the Windy City
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