Unfortunately the images on my MRI have shown that the meds to help slow the progression and the meds to help bring the inflammation down have done nothing to keep the inflammation/sores from getting bigger or making new ones. Since my last imaging I have gained more "hot spots" and the ones that I had already have grown in size....SHIT!! I have to tell you my breath was taking away when the Neurologists office called me and the first words out of her mouth was that the MRI wasn't good. I had an idea I was going to be getting bad news as I always have the technicians give me a disk with the MRI images for my records and when I went home after the MRI the first thing I did was bring the images up on my computer. Devastating when I can see plan as day all they lights that have shown up. When there is a lesion that is flaring, hot spot, exacerbating, active (call it what you will) it will show up as a bright white spot on the images.......and If I can see them with my "untrained" eye, I can only wonder how many of them I am missing. I have new and bigger ones also in my neck, and thoracic back along with my brain.
Welcome to my Brain!!
Rebif, but I have to say I'm not too ready to jump on this band wagon again. This med is an "oldie" but it comes with complications, of course
1. Injection site reactions ~ already had this with the last med so not a huge big deal
2. Liver Problems ~ I'm already teetering with elevated to high normal ALT functions, is it better to let MS progress or try to fit it and end up with significant issues that could result in liver failure.
3. Flu Like symptoms for 24hrs after injection. So I could potentially be ill 24 off and 24 on for months with chills, fever, body & muscle aches, BUT I can take more meds that would counteract those side effects (hmmmmm sounds fun, doesn't it?)
4. Anxiety/depression/suicidal thoughts......well I guess I won't have to worry about the MS then
5. Thyroid Problems ~ I already teeter between LOW and low normal with my TSH levels, so why not just destroy the thyroid all together.
6. Bleeding issues ~ causes the infection fighting blood cells to drop, sign me up!
7. Plus Epilepsy ! Hmmmm ~ I will probably will end up having seizures eventually....but I would like to prolong that chapter for as long as I can. Once those start I can only see a downward slope in my direction. They scare me, as they can happen at any moment without warning. What if I'm alone with Danny, what if I'm driving, what if, what if, what if!!!!!! Then I believe you have to be seizure free for 90 days before they will let you drive again...can you imagine, me home bound?
Now I know that these are all "possible" side effects I could have. BUT I have to tell you the last 3 meds haven't gone so hot for me. And now the options I have are ....... SLIM, thank you MS meds for making this fight even more difficult for me to travel.
I am asking about doing some more "alternative" options other then the med route. Stay tuned to see what comes next!!
This last does of steroids over the weekend, my med port didn't work properly, so they had to put in a IV access in my forearm, thankfully my veins cooperated this time around. Everyone needs alil "HOPE"
It's nice to having company, especially my Favorite Lil man with me during my infusions.
My inspiration and support !! Love getting my bedtime snuggles in, sorry dude this will NEVER get old for me :)
Love this Cup....you never really know.....do you ~ LOL
Pretty appropriate for me, right?!
It's all better with....... PUMPKIN, in my opinion.
The Perks of Dan being up North ~ I get to have PUMPKIN flavored coffee and all the extras :) He's not into all the foofoo stuff, so I take advantage of it when I can.
Well the 2014 Deer Hunting season is upon us. Ms Av is 12, went through hunter safety last year and can now officially be at the Shack during opening weekend. She was VERY excited to go. I have to say I had my reservations, but she loves being there and I guess she's fitting right in. I hope the guys enjoyed her being there as much she did. I have been informed that she wants to be there EVERY YEAR!!
Before she left she was up early on Friday before her ride got her (Dan was already up there) and here she is sewing herself and camo hat and she then made a hat for Danny too.
How crazy is this? I was out videoing the snow falling to send to Av n Dan when this deer comes out. It's was obviously wounded as you can see it's insides hanging from under the belly. This just angers me....DO NOT WOUND an animal you better know what you are doing. I went out to see if I could find it on our land but it was no where to be found. I had heard a round of 6 or 7 shots that day earlier...I have to wonder. If you can't shoot it on the first, ok maybe the second...then stop going out as it's not a hunt then. Poor thing! Would have been cool to see if it it wasn't hurt.
Danny and I had a special visitor this last weekend. Ms Krista and her baby boy, Kolton were in town and they stopped by to visit us! It was so nice to see them, boy we sure do miss her. He's just a Ham....I could just eat him up!! What a happy boy and that smile he has is just contagious. I was getting my Baby fix on!!!
I think I'm going to have to have a "baby" photo of Danny with all the babes that have been born. Just with the nurses there have been 7 pregnancies in the last 5 years. Now if we were to count the therapist that used to work with us you can add an additional, I believe 6 to that total. It's in the water here I swear!!
Danny and Sully have been bonding. Isn't this the cutest ?!?
A boy and a Pup!!
This year Danny made his OWN Tree with his hand, foot, and finger prints (thanks Ms Aleana).....we are calling it his Blessing Tree and we'll be adding sayings through the Holidays that Danny is blessed or thankful for. I even put him to work holding the glue stick so we could put his finger print lite bulbs on the tree. Way to go Danny!!
I am happy to report that Danny and I interviewed a new nurse last Friday and we LOVED her!! I am very excited to have her come work with us on Danny's Team. I keep wanting to pinch myself as things are falling into place as if they are "too good to be true". She's all the aspects I have been looking for in an RN to work with Danny. It's not easy, believe me...to find a nurse that I can honestly say I trust working with Danny is very hard to find. I've been burned enough times to be cautiously optimist but I can only hope that all my excitement and expectations are true and things are really going to start turning around with nursing for Danny. We will have a wonderful TEAM of caring, hardworking, dedicated nurses for Danny once again. Even though the last few months haven't been the easiest on myself, Danny, or our amazing nurses we already have.....I'm hopeful that the pieces are starting to fall back together.
I am putting together an order for custom tshirts for Danny's Team! Do you want to show Danny your support ?!?
We've chosen to do Option #5. They come in the blue or red, short sleeve or long. If you would like one for yourself or to dress up your family..... just let me know what color, size, and sleeve by Dec 1st (or asap) so I can put it on our order. I will have a better idea on cost once I get the total shirts ordered. The more shirts the better the deal. I will try to have as many as I can shipped to my house and hand deliver them to keep costs down for you guys, BUT feel free to order one and we can have it shipped directly to you for addl cost If you'd like one and you don't live close. I believe the short sleeve will be running $13-$15 and add $3 more for long sleeve. You can email me at email@example.com, FB message me, or text me your order.
Have a Happy Thanksgiving ~ From The Osero's !